Search results for ‘Subject term:"learning disabilities"’ Sort:
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Representation of people with intellectual disabilities in a British newspaper in 1983 and 2001
- Authors:
- WILKINSON Penny, McGILL Peter
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 22(1), January 2009, pp.65-76.
- Publisher:
- Wiley
Articles from The Guardian newspaper in 2001 were analysed and compared to a previous analysis of material published in 1983 the examine the media representation of people with intellectual disabilities. There was much more coverage of people with autism or Down syndrome than expected from their actual frequency in the British population of people with intellectual disabilities. Newspaper reports continued to be about children more often than expected when about autism or Down syndrome, but not when about people with other intellectual disabilities. Medically related representations were less than in the past but juxtaposition with other client groups continued. More 'people-first' terminology was now used except in respect of people with autism. Articles systematically under-represented complexity and severity of need. Policy and service changes may have contributed to the decline of medically- and child-related representations within non-specific intellectual disabilities. The continued over-representation of children in articles about autism and Down syndrome, and the generally increased reference to people with those syndromes, suggests growing differentiation within the population of people with intellectual disabilities. The focus on people with less severe or complex disabilities echoes criticisms of Valuing People.
Case report: challenging behaviour in a young adult with Down's Syndrome and autism
- Authors:
- PRASHER V.P., CLARKE D.J.
- Journal article citation:
- British Journal of Learning Disabilities, 24(4), 1996, pp.167-169.
- Publisher:
- Wiley
An association between Down's Syndrome and autism is reviewed. A case of severe challenging behaviour in a young adult with Down's Syndrome and childhood autism is reported. Areas of further research including prevalence studies, psychopathology and investigation for underlying genetic aetiological factors are discussed.
Family expectations and transition experiences for young adults with severe disabilities: does syndrome matter?
- Authors:
- BLACHER Jan, KRAEMER Bonnie R, HOWELL Erica J.
- Journal article citation:
- Advances in Mental Health and Learning Disabilities, 4(1), March 2010, pp.3-16.
- Publisher:
- Emerald
This study examines the differential impact of young adult diagnosis on families during the period of transition from school to adult life. Two hundred and forty six parents of young adults with severe learning disability, aged 18 to 26 years, participated. The young adults were classified into four diagnostic groups: 30 for autism; 68 for Down's syndrome; 95 for cerebral palsy; and 3 to an undifferentiated learning disability group. The parents were asked questions relating to their expectations of their offspring’s transition to living and working environments post high school, and the parental satisfaction and worries were also assessed. The findings showed that more community expectations of work for young adults with Down's syndrome, and more restrictive expectations for young adults with autism, including more expectations that young adults with autism would move out of the family home into a residential environment. Parents of young adults with autism also worried significantly more about various aspects of transition than other parent groups.
Injuries, falls and accidents among adults with intellectual disabilities. Prospective cohort study
- Authors:
- FINLAYSON J., et al
- Journal article citation:
- Journal of Intellectual Disability Research, 54(11), November 2010, pp.966-980.
- Publisher:
- Wiley
Injuries, and in particular falls, are a major causes of death and disability. Research indicates that young people with intellectual disabilities (ID) have a higher rate and different pattern of injuries compared to the general population, but data for adults is very limited. This study was designed to determine the incidence and types of injuries experienced in a 12-month period by a community-based cohort of adults with ID (n = 511, 53% male, mean age 43.7 years, range 16-79) living in the Glasgow area. Face-to-face interviews were conducted with participants 2 years after they had first been recruited into a longitudinal study. Incidence of at least one injury in a 12-month period was 20.5% (105), of which 12.1% were related to falls. Analyses looked at the type and causes of injuries and risk factors in terms of the nature of the disability. The impact Incident injury was predicted by having epilepsy and not having autism. Incident fall injury was predicted by urinary incontinence, while Down syndrome reduced risk. It is concluded that adults with ID did have more injuries, falls and accidents when compared with the general population. The authors suggest that there needs to be greater emphasis on individual injury/fall risk in the provision of support for people with ID at both the individual and organisational level.
Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome
- Authors:
- DABROWSKA A., PISULA E.
- Journal article citation:
- Journal of Intellectual Disability Research, 54(3), March 2010, pp.266-280.
- Publisher:
- Wiley
This study examined the profile of stress for 162 parents of pre-school children with autism, Down syndrome and typically developing children, and to assess the association between parenting stress and coping style. Findings indicated a higher than average level of stress in parents of children with autism. Also, an interaction effect was revealed between the child’s diagnostic group and parent's gender for two scales of parenting stress: dependency and management; and limits of family opportunities. Mothers of children with autism scored higher than fathers in parental stress, whereas no such differences were found in the group of parents of children with Down syndrome and typically developing children. It was found that parents of children with autism differed from parents of typically developing children in social diversion coping. Emotional coping was the predictor for parental stress in the samples of parents of children with autism and Down syndrome, and task-oriented coping was the predictor of parental stress in the sample of parents of typically developing children. The results strongly supported earlier findings on parenting stress in parents of children with autism, and also shed light on the relationship between coping styles and parental stress.
The child with special needs: encouraging intellectual and emotional growth
- Authors:
- GREENSPAN Stanley, WIEDER Serena, SIMONS Robin
- Publisher:
- Perseus
- Publication year:
- 1998
- Pagination:
- 496p.bibliog.
- Place of publication:
- Cambridge, MA
Presents a guide to raising a child with special needs. In this essential work they lay out a complete, step-by-step approach for parents, educators, and others who work with developmental problems. Covering all kinds of disabilities, including autism, PDD, language and speech problems, Down syndrome, cerebral palsy, and ADD - the authors offer a new understanding of the nature of these challenges and also specific ways of helping children extend their intellectual and emotional potential.
Aging and developmental disability: current research, programming and practice implications
- Editors:
- HAMMEL Joy, NOCHAJSKI Susan
- Publisher:
- Haworth Press
- Publication year:
- 2000
- Pagination:
- 100p.,bibliogs.
- Place of publication:
- Binghamton, NY
This book explores research findings and practice implications pertaining to normative and disability-related aging experiences and issues. The book discusses the effectiveness of specific interventions targeted toward aging adults with intellectual disabilities such as Down’s syndrome, cerebral palsy, autism, and epilepsy.
Gap analysis of service needs for adults with neurodevelopmental disorders
- Author:
- BURKE Shanna L.
- Journal article citation:
- Journal of Intellectual Disabilities, 23(1), 2019, pp.97-116.
- Publisher:
- Sage
- Place of publication:
- London
In Florida, the Agency for Persons with Disabilities provides waivers for adults with the following types of disabilities: intellectual disability, autism spectrum disorder, cerebral palsy, spina bifida, Down syndrome, and Prader–Willi syndrome. This review examined the peer-reviewed literature to indicate and assess the common needs for individuals with intellectual and developmental disabilities. Current models of service delivery, the efficacy of these services, and remaining gaps in the need fulfilment of individuals within the six diagnostic categorizations of interest were examined. Severity level within each diagnostic category was plotted on a matrix according to whether the needs of individuals were minimal, moderate, severe, or universal. The study found that sexual health education, socialization, and adult-focused medical care are universal needs among the six conditions. The study indicates that health-care professionals must work toward addressing the many unmet needs in comprehensive life span care services for adult individuals with neurodevelopmental disorders. (Edited publisher abstract)
Comparing differences in support needs as perceived by parents of adult offspring with down syndrome, autism spectrum disorder and cerebral palsy
- Authors:
- LEE Chung eun, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(1), 2019, pp.194-205.
- Publisher:
- Wiley
Background: Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome (DS), autism spectrum disorder (ASD) and cerebral palsy (CP) regarding support needs of their offspring with intellectual and developmental disabilities (IDD) and their families. Method: Data were collected via a national survey in the United States with 189 parents of adults with IDD. Results: Across the quantitative and qualitative analyses, parents of adults with DS (versus CP and ASD) reported significantly greater recreational, natural supports, more formal services and less future planning barriers. Conclusion: The results indicate that the DS advantage may persist in adulthood regarding support needs. More research is needed to understand different types of support needs. (Edited publisher abstract)
Our family, our future: 30 families with disabled children tell their stories
- Author:
- CONTACT A FAMILY
- Publisher:
- Contact a Family
- Publication year:
- 2009
- Pagination:
- 68p.
- Place of publication:
- London
Thirty families from across the UK whose children are affected by a range of disabilities tell their story. Parents talk about their children's achievements, acknowledge the challenges, reflect on their aspirations and fears for the future.