Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 10 of 35
Estimating the prevalence of autism spectrum conditions in adults: extending the 2007 adult psychiatric morbidity survey
- Authors:
- BRUGHA T., et al
- Publisher:
- NHS Information Centre
- Publication year:
- 2012
- Pagination:
- 31p.
- Place of publication:
- London
This report extends the 2007 Adult Psychiatric Morbidity Survey. The original data has been combined with data from a new study of the prevalence of autism among adults with learning disabilities living in private households and communal care establishments in Leicestershire, Lambeth and Sheffield. For this latter study, 290 adults were recruited resulting in 83 interviews with those living in private households. Sixty four per cent of communal care establishments approached took part in the study leading to 207 interviews. The overall prevalence of autism from the combined data was 1.1 per cent. The prevalence of autism was higher in men (2.0 per cent) than women (0.3 per cent). The learning disability study demonstrated that the prevalence of autism increased with greater severity of learning disability/lower verbal IQ. Sex differences were less marked in adults with learning disabilities compared with the general population. The estimated prevalence of autism changed very little when the data were re-analysed to take into account that the prevalence of autism might be higher or lower in other settings, such as prisons. This study has demonstrated that autism is common among people with a learning disability. Taking this into account gives an estimated overall prevalence of autism in England of 1.1 per cent; compared with a previous estimate of 1.0 per cent in the APMS (2007).
A community survey establishing the prevalence rate of autistic disorder in adults with learning disability
- Authors:
- MORGAN C.N., et al
- Journal article citation:
- Psychiatric Bulletin, 26(4), April 2002, pp.127-129.
- Publisher:
- Royal College of Psychiatrists
Most studies into autistic disorder have concentrated on children. This study aims to establish a prevalence rate of autistic disorders in an adult population with learning disabilities. An overall population rate of 7.7/10 000 for autistic disorder was found, which is a prevalence rate of 30 percent in those with learning disability. The prevalence rate was higher in intensive service settings. The findings suggest that specific funding and interventions need to be targeted for the treatment of autistic disorders.
'Fulfilling and rewarding lives': the strategy for adults with autism in England (2010)
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2010
- Pagination:
- 74p.
- Place of publication:
- London
Published on 3 March 2010, the first autism strategy for England sets out a clear framework for all mainstream services across the public sector to work together for adults with autism. Autism is a lifelong developmental disability and while some people with an autistic spectrum condition (ASC) can live relatively independently, others will have high dependency needs requiring a lifetime of specialist care. There are approximately 400,000 adults with ASC in England, around half of whom also have a learning disability. Actions in the autism strategy include a new National Autism Programme Board to lead change in public services set out in the strategy; a programme to develop training with health and social care professional bodies; autism awareness training for all Job Centre Disability Employment Advisers; guidance on making public services accessible for adults with autism, like improving buildings, public transport and communication; and a clear, consistent pathway for diagnosis
A Guide to services for adults with autistic spectrum disorders for commissioners and providers
- Authors:
- MORGAN H, JONES G, JORDAN R
- Publisher:
- Mental Health Foundation
- Publication year:
- 2001
- Pagination:
- 24p.,bibliog.
- Place of publication:
- London
This guide has been written for those professionals who commission or provide services for adults with autistic spectrum disorders. It may also be of interest to care managers; practitioners; and those wanting guidance on the range of services available, including GP’s, psychiatrists, psychologists, community nurses and social workers. The guide outlines what autistic spectrum disorders are and how common they are, and relates this to the implications for practice. It also sets out sources of information and looks at forward planning to meet the needs of adults with the disorder.
Family carers managing personal budgets for adults with learning disabilities or autism
- Authors:
- TURNPENNY Agnes, et al
- Journal article citation:
- British Journal of Learning Disabilities, 49(1), 2021, pp.52-61.
- Publisher:
- Wiley
Background: There are a growing number of people with learning disabilities and autism who access personal budgets in the form of direct payments in England. Although they are often involved in decisions about their support, personal budgets are usually managed by someone else, typically a parent. This study examined the experiences of carers who manage personal budgets for adults with learning disabilities or autism with a particular focus on the challenges of securing suitable support and implications for their own well‐being. Methods: This was a qualitative study using a descriptive phenomenological approach to investigate the lived experiences of family carers who manage personal budgets. We conducted semi‐structured interviews with 13 family carers. Interview transcripts were thematically analysed using the framework approach. Results: Our analysis identified five main themes. The first theme relates to why carers decide to take up a personal budget in the first place and their initial expectations. The second theme, restricted choice, highlights the difficulties in securing adequate support and services in the context of what are often described as “complex needs.” The third and fourth themes relate to the tasks involved in managing a personal budget and the challenges associated with the dual role of the carer as a parent and a “professional.” The fifth and final theme, mixed emotions, describes the impact on the subjective well‐being of carers. Conclusions: Family carers indicated that the benefits of personal budgets outweighed the difficulties and stress inherent in managing them. They need adequate support to ensure that personal budgets deliver personalised and self‐directed support and greater well‐being, and are sustainable arrangements. (Edited publisher abstract)
Coronavirus (COVID-19): guidance for care staff supporting adults with learning disabilities and autistic adults
- Author:
- GREAT BRITAIN. Department of Health and Social Care
- Publisher:
- Great Britain. Department of Health and Social Care
- Publication year:
- 2020
- Place of publication:
- London
Guidance for care staff who are supporting adults with learning disabilities and autistic adults during the coronavirus (COVID-19) outbreak. The guidance includes information on keeping people with learning disabilities and autistic people safe, supporting them to understand the changes they need to make during the COVID-19 outbreak, and helping staff protect their own wellbeing. It includes links to relevant resources. It builds on the COVID-19 adult social care action plan and more detailed guidance published by the Social Care Institute for Excellence. [First published 24 April 2020. Last updated 24 August 2021] (Edited publisher abstract)
Understanding and responding to behaviour that challenges in intellectual disabilities: a handbook for those who provide support
- Editors:
- OSGOOD Tony, BAKER Peter
- Publisher:
- Pavilion Publishing
- Publication year:
- 2019
- Pagination:
- 200
- Place of publication:
- Hove
- Edition:
- 2nd ed.
An accessible and practical handbook for people who are supporting children and adults with learning or developmental disabilities and/ or autism who display behaviour that challenges. Based on research, policy and latest practice, it reflects changes that have taken place since the previous edition, in particular the values and approach of Positive Behaviour Support. Contents include: assessing behaviour that challenges, building a good rapport, keeping people safe, learning new ways of behaving, and working with families. Case studies are included. The hand book will be relevant for professionals, support workers, students and family members. (Edited publisher abstract)
Using wordless books to support clinical consultations
- Authors:
- HOLLINS Shelia, et al
- Journal article citation:
- Journal of Mental Health Training Education and Practice, 12(4), 2017, pp.260-271.
- Publisher:
- Emerald
Purpose: Based on a literature and practice review, the purpose of this paper is to examine the theoretical and clinical basis for using wordless books with patients who have intellectual disabilities (ID) and/or autism. Design/methodology/approach: A literature review identified seminal peer-reviewed English language articles relating to the neuroscience of information and emotion processing for adults with ID and/or autism. In addition to published examples, illustrative case examples were contributed by clinicians regularly using wordless books. Findings: Many people, including those with ID, selectively attend to visual information. Minimising the cognitive load by using wordless pictorial narrative reduces anxiety, and empowers the patient. Clinicians using such resources describe positive clinical outcomes. Only the Beyond Words wordless books have been identified in published clinical trials. Research limitations/implications: Although existing evidence suggests a strong positive impact, further research into the use of wordless books for people with ID is needed. Practical implications: Wordless books are reported to help develop staff skills and empathy for supporting adults with ID. The books facilitate some legally required reasonable adjustments to increase service access. Staff training is needed for effective use of wordless books. Originality/value: Wordless books specifically designed with and for adults with word processing difficulties, ID and/or autism to enhance health literacy and explore their own narratives and emotional responses around health experiences and personal traumas are a unique approach. This paper may also offer the first exploration of their neuropsychological underpinnings. (Publisher abstract)
Adult - community CRT. Workbook 1: Care and Treatment Review (CTR): key lines of enquiry
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 23
- Place of publication:
- London
A workbook for panel members to record their findings during a Care and Treatment Review (CTR) for adults with autism or learning disabilities in the community. The workbook is based on the key lines of enquiry (KLOE) and shows what sort of questions to ask and where to find evidence. It also provides space to record findings and to record what you think if the person’s quality of care overall for each KLOE. The KLOEs, are: Does the person need to be in hospital?; Is the person receiving the right care and treatment?; Is the person involved in their care and treatment?; Are the person’s health needs known and met?; Is the use of any medicine appropriate and safe?; Is there a clear, safe and proportionate approach to the way risk is assessed or managed?; Is there active planning for the future and for discharge?; and Are family and carers being listened to and involved? It will also help with deciding what goes into the CTR report. It is one of a series of 6 workbooks, which each cover different types of CTR and Care, Education and Treatment Review panels. (Edited publisher abstract)
Adult - hospital CTR (secure). Workbook 3: Care and Treatment Review (CTR): key lines of enquiry
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 23
- Place of publication:
- London
A workbook for panel members to record their findings during a Care and Treatment Review (CTR) for adults in a secure hospital setting. The workbook is based on the key lines of enquiry (KLOE), shows what sort of questions to ask and where to find evidence. It also provides space to record findings and to record what you think if the person’s quality of care overall for each KLOE. The KLOEs, are: Does the person need to be in hospital?; Is the person receiving the right care and treatment?; Is the person involved in their care and treatment?; Are the person’s health needs known and met?; Is the use of any medicine appropriate and safe?; Is there a clear, safe and proportionate approach to the way risk is assessed or managed?; Is there active planning for the future and for discharge?; and Are family and carers being listened to and involved?. The workbook will also help with deciding what goes into the CTR report. It is one of a series of 6 workbooks, which each cover different types of CTR and Care, Education and Treatment Review panels. (Edited publisher abstract)