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Case studies about improving support for people with a learning disability and autistic people
- Author:
- LOCAL GOVERNMENT ASSOCIATION
- Publisher:
- Local Government Association
- Place of publication:
- London
This resource brings together case studies relating to people with a learning disability and autistic people. The case studies come from the Care and Health Improvement Programme's new Supporting adults with a learning disability to have better lives outcomes and improvement framework. (Edited publisher abstract)
Mental health bulletin: 2019-20 annual report
- Author:
- NHS DIGITAL
- Publisher:
- NHS Digital
- Publication year:
- 2021
- Pagination:
- 27
- Place of publication:
- Leeds
This publication provides a detailed picture of people who used NHS funded secondary mental health, learning disabilities and autism services in England during the financial year 2019-20. Key findings include: 2,878,636 people were known to be in contact with secondary mental health, learning disabilities and autism services at some point in the year – 763,888 of these were under 18 years of age; this means that 5.1% of people in England were known to be in contact with secondary mental health, learning disabilities and autism services during this year; 3.6% (104,536) of people known to be in contact with secondary mental health, learning disabilities and autism services spent time in hospital as part of being in contact with these services during 2019-20. (Edited publisher abstract)
Estimating the prevalence of autism spectrum conditions in adults: extending the 2007 adult psychiatric morbidity survey
- Authors:
- BRUGHA T., et al
- Publisher:
- NHS Information Centre
- Publication year:
- 2012
- Pagination:
- 31p.
- Place of publication:
- London
This report extends the 2007 Adult Psychiatric Morbidity Survey. The original data has been combined with data from a new study of the prevalence of autism among adults with learning disabilities living in private households and communal care establishments in Leicestershire, Lambeth and Sheffield. For this latter study, 290 adults were recruited resulting in 83 interviews with those living in private households. Sixty four per cent of communal care establishments approached took part in the study leading to 207 interviews. The overall prevalence of autism from the combined data was 1.1 per cent. The prevalence of autism was higher in men (2.0 per cent) than women (0.3 per cent). The learning disability study demonstrated that the prevalence of autism increased with greater severity of learning disability/lower verbal IQ. Sex differences were less marked in adults with learning disabilities compared with the general population. The estimated prevalence of autism changed very little when the data were re-analysed to take into account that the prevalence of autism might be higher or lower in other settings, such as prisons. This study has demonstrated that autism is common among people with a learning disability. Taking this into account gives an estimated overall prevalence of autism in England of 1.1 per cent; compared with a previous estimate of 1.0 per cent in the APMS (2007).
Family fall-outs and how to avoid them
- Author:
- SCOWN Steve
- Journal article citation:
- Learning Disability Today, April 2010, pp.26-27.
- Publisher:
- Pavilion
- Place of publication:
- Hove
The families of people with learning disabilities and autism often complain of feeling unimportant and left out when service providers get involved. Their impression can be that important decisions are made without their involvement, and that all their years of love and intimate knowledge go unnoticed and unheard. Professionals have as their priority the well-being of the person at the centre, not their family, and may even see the parents and families as meddlers. This article argues that most family members are just trying to do the best for their relative, and that most people with learning disabilities will benefit from having their family actively involved in their lives and forming an integral part of their support team. The article discusses the challenges of how to develop a family-friendly approach which involves a cultural shift in services and different ways of working with families, and also the need to adapt to the changing social market that personalised support has introduced and proactively engage with families. It describes a family reference group, Forward with Families, set up by the support provider Dimensions, in order to assist in developing and implementing a whole organisational approach.
Home ownership for people with long-term disabilities (HOLD): factbook
- Authors:
- LOCAL GOVERNMENT ASSOCIATION, ASSOCIATION OF DIRECTORS OF ADULT SOCIAL SERVICES
- Publisher:
- Local Government Association
- Publication year:
- 2018
- Pagination:
- 14
- Place of publication:
- London
This factbook is about the HOLD shared ownership scheme and was developed to support those professionals who are working with people with a learning disability, autism or both as part of the Transforming Care programme. However, shared home ownership is a possible option for a much wider range of people; this guide is therefore relevant to other professionals too. Shared home ownership won’t be right for everyone, but we do know that it can work really well for some people who may have very specific housing requirements. We know, for example, that individuals with complex and challenging behaviours often require tailored solutions that will minimise the triggers for behaviour, in some cases with significant adaptations and/or modifications, and where location and environment are very important in achieving sustainable housing solutions for people. Where the person lives, who they live with, the design of their home and how they are supported (including in an environment that they are comfortable with) can have a significant impact on wellbeing and behaviour. Home ownership under the HOLD scheme enables the individual and their family to select a property from the open market, within their budget, just like everyone else who is looking to buy a property. This gives them a much better opportunity to choose where they live and the kind of property they will be living in, coupled with the security of tenure that only home ownership delivers. The step by step guide included in the second half of this document is a guide for those professionals involved in the process to help ensure things run as smoothly as possible. Anyone who has ever bought a house knows that it can be full of twists and turns, so keeping a strong commitment is critical to success. (Edited publisher abstract)
Housing for people with a learning disability or autistic people
- Author:
- LOCAL GOVERNMENT ASSOCIATION
- Publisher:
- Local Government Association
- Publication year:
- 2022
- Place of publication:
- London
Brings together a range of resources to help councils transform the local housing offer for people with a learning disability or autistic people. Housing arrangements for people with a learning disability and autistic people have come a long way since the 1960s, when people were housed in institutions that kept them apart from the rest of society. This is a result of national government and local authorities working together with people with a learning disability and their families to move towards a system founded on the principle of choice and control, personalised services and independent living. (Edited publisher abstract)
A strategic assessment of the accommodation with support needs for people with a learning disability, autism and mental health conditions 2020-2030
- Author:
- LOCAL GOVERNMENT ASSOCIATION
- Publisher:
- Local Government Association
- Publication year:
- 2021
- Place of publication:
- London
Building the Right Home and the National Service Model state that people should have choice about where they live and who they live with. It is critical that people have the right accommodation to meet their needs to ensure sustainable housing solutions. This means that we have to have a personalised response to accommodation, which will require us to fully understand a person’s individual needs and then seek to meet those needs in the best possible way. The project set out to provide the evidence for accommodation needs in line with the principles that people with learning disabilities and/or autism who display behaviour that challenges, including those with a mental health condition should be supported to live in their own homes in the community with the right support, in a home of their choice, where they feel happy and safe. To assess the accommodation needs case management data was analysed along with interviews with practitioners while those with lived experience took part in designing and completing a survey. The project identified that some existing placements for all cohorts could move to supported living. The 10-year projections across the ICS, taking re-lets into account show a need for 663 units of accommodation with support for those with learning disabilities and autism, while the need for those with severe mental health needs is 653 accommodation units. (Edited publisher abstract)
Learning disability and autism finance briefing
- Author:
- LOCAL GOVERNMENT ASSOCIATION
- Publisher:
- Local Government Association
- Publication year:
- 2021
- Place of publication:
- London
This briefing outlines the work which continues to take place to ensure that there is a clear and agreed financial model underpinning the mutual objectives of ensuring a reduced reliance on inpatient care for people with a learning disability, autism or both – through investment in community alternatives to hospital care. This note has been written with local authorities in mind but will also be relevant to those working within Clinical Commissioning Groups (CCG), Transforming Care Partnerships (TCP), and those leading on learning disability and autism within an Integrated Care System (ICS) or Sustainability and Transformation Partnership (STP). Dedicated or ringfenced sources of funding consist of: Funding Transfer Agreement (FTA); Pathway Funds; Continuing Healthcare (CHC) and Section 117; National Programme funding; Community Discharge Fund. (Edited publisher abstract)
Inclusion under the Mental Capacity Act (2005): a review of research policy guidance and governance structures in England and Wales
- Authors:
- RYAN Hayley, et al
- Journal article citation:
- Health Expectations, 24(1), 2021, pp.152-164. Online only
- Publisher:
- Wiley
Objective: To investigate how people with communication and understanding difficulties, associated with conditions such as dementia, autism and intellectual disability, are represented in research guidance supplementary to the Mental Capacity Act (MCA: 2005) in England and Wales. Methods: A documentary survey was conducted. The sample comprised the MCA Code of Practice (CoP: 2007) and 14 multi‐authored advisory documents that were publicly available on the Health Research Authority website. Textual review of key words was conducted followed by summative content analysis. Results: Representation of people with communication and understanding difficulties was confined to procedural information and position statements that focused mainly on risk management and protection. Whilst a need to engage potential participants was recognized, guidance provided was imprecise. Conclusions: Tensions exist between the protection versus empowerment of people with communication and understanding difficulties in research. The development of structured, evidence‐based guidance is indicated. Patient or public contribution: People with communication and understanding difficulties and carers participated in a working group to explore, discuss and interpret the findings. (Edited publisher abstract)
Reasonably adjusted? Mental health services and support for people with autism and people with learning disabilities
- Authors:
- BATES Peter, TURNER Sue, NATIONAL DEVELOPMENT TEAM FOR INCLUSION
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2012
- Pagination:
- 65
- Place of publication:
- Bath
The law requires mental health services to make reasonable adjustments so that they stop discriminating against people with autism or learning disabilities. ‘Reasonably adjusted?’ describes the reasonable adjustments mental health services have put in place for people with learning disabilities and people with autism. It is organised in three sections, starting with a summary of the context. The second section follows a care pathway from first contact with primary care services through referral to specialist help and on to discharge, reporting on the adjustments made by individuals and organisations that are trying to provide high quality services to people and their families The third section: ‘Effective services in a flourishing community’ begins with a broad view of active citizenship and follows an organisational pathway. ‘Reasonably adjusted?’ offers practical examples and includes an easy ready summary. Its content forms the basis of a subsequent NDTi publication, ‘The green light toolkit’ (2013). (Edited publisher abstract)