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Meanings and experiences of menstruation: perceptions of institutionalized women with an intellectual disability
- Authors:
- CHOU Yueh-Ching, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 21(6), November 2008, pp.575-584.
- Publisher:
- Wiley
No studies have ever been conducted concerning menstrual experiences among women with an intellectual disability in Taiwan. An in-depth interview was conducted at three public institutions and perceptions and experiences regarding menstruation were elicited from 55 women aged 21–65 years. The participants knew about menstrual blood and could recognize the experiences of period pain and its link to femininity. The women's management of menstruation played a big part in their institutionalized life, where they had relatively limited choice and autonomy. Positive feelings towards the menstrual cycle were experienced by some participants; however, many had negative attitudes towards sexual activities or parenting, even though they knew the association between menstruation and pregnancy. Although these women's experiences of perimenstrual symptoms are quite similar to those of women without intellectual disability, their menstrual management, interpretations and attitudes to menses are influenced by their institutional life and by the society at large.
Neglect of people with intellectual disabilities: a failure to act?
- Authors:
- JENKINS Robert, DAVIES Rachel
- Journal article citation:
- Journal of Intellectual Disabilities, 10(1), March 2006, pp.35-45.
- Publisher:
- Sage
- Place of publication:
- London
Evidence from numerous studies strongly suggests that many people with intellectual disabilities have greater health needs and also have restricted access to health care compared to the general population. Given this evidence and that this has existed for some time, when does failure to act on this knowledge constitute a form of abuse? The motivation for this article emerged from both observations made during a wider study on abuse policies and practice and a growing awareness that abuse literature is not fully engaged with a broader definition of neglect. This article considers these issues with reference to the wider context of duties of care, freedom of choice and the attitudes of staff that shape responses to abuse. Practitioners are challenged to consider what can be done to overcome neglect with specific reference to the neglect of health needs.
Tackling health inequalities in Wandsworth
- Author:
- GILES Jo
- Journal article citation:
- Community Living, 18(4), May 2005, pp.8-10.
- Publisher:
- Hexagon Publishing
The author reports on a project in Wandsworth called Health Matters that is designed to initiate deviceful ways to support their local health providers by making their services easier to use. The project was inspired by the result of 10 focus groups of people with mild to moderate learning difficulties who believed that they had two barriers facing them in life: (1) society did not know enough about learning difficulties and (2) that people ignoring or talking over them were commonplace. The project set out various ways to promote awareness of learning difficulties that included training, identification cards, improving hospital accessibility, a CD and website.
Structural damage
- Author:
- WHITE Caroline
- Journal article citation:
- Community Care, 26.9.96, 1996, pp.18-19.
- Publisher:
- Reed Business Information
The author reports on how people with learning difficulties face a future of inadequate housing and health care, with poor education and employment prospects, and this situation is compounded by the attitudes of the public and some social care professionals. These are the worrying findings of an inquiry by the Mental Health Foundation.
Predictors of female worker attitudes towards menstruation and the provision of help to institutionalized women with intellectual disabilities in Taiwan
- Authors:
- CHOU Yueh-Ching, et al
- Journal article citation:
- Social Science and Medicine, 67(4), August 2008, pp.540-543.
- Publisher:
- Elsevier
No previous research has examined the importance of both individual and environmental factors for predicting caregivers' menstrual attitudes. To explore the predictors of female caregivers' attitudes towards menstruation and the help they give to women with intellectual disabilities, we conducted a cross-sectional questionnaire survey which was completed by 725 female workers from 12 institutions in Taiwan. The Menstrual Attitudes Questionnaire (MAQ) and a structured questionnaire were used. Logistic regression analysis revealed that individual characteristics such as age and education were significantly associated with menstrual attitudes of female caregivers working with institutionalized women with intellectual disabilities. Furthermore, the environmental context, such as the frequency of discussions with colleagues, training in menstrual management care and the level of difficulty when giving help in menstruation management, was important for improving caregivers' menstrual attitudes. This study contributes to the existing literature by determining both individual and environmental predictors of caregivers' menstrual attitudes.
Disability in pregnancy and childbirth
- Editors:
- MCKAY-MOFFAT Stella, (ed.)
- Publisher:
- Churchill Livingstone
- Publication year:
- 2007
- Pagination:
- 219p.
- Place of publication:
- Edinburgh
This title is directed primarily towards health care professionals outside of the United States. No other book advises midwives on the special needs of mothers with disabilities. Although an increasing number of women with disabilities are having children, the needs of this minority group are not always being effectively met. Disability in Pregnancy and Childbirth provides essential practical information to healthcare professionals working with this group. Contents include: social construction of disability and motherhood; women's health and disability; maternity services and women's experiences; the role of the midwife in maternity service provision; women with intellectual disabilities; midwives skills, knowledge and attitudes; sensory impairment; the interaction between specific conditions and the childbirth continuum.
Health gain through screening - users' and carers' perspectives of health care: developing primary health care services for people with an intellectual disability
- Authors:
- MARTIN D.M., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 22(4), December 1997, pp.241-249.
- Publisher:
- Taylor and Francis
Describes Primary Health Care Project for People with an Intellectual Disability which began early in 1995 in Northern Birmingham to facilitate equal access to health care services for adults with an intellectual disability, and to establish a health screening protocol. The aim of the study was to identify the experiences, expectations and opinions of the people using these services. The implications of this methodology and its findings are discussed.