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Where should people with dementia live? Using the views of service users to inform models of care
- Authors:
- FOBAT Liz, WILKINSON Heather
- Journal article citation:
- British Journal of Learning Disabilities, 36(1), March 2008, pp.6-12.
- Publisher:
- Wiley
This paper reports on research that illuminates how people with a learning disability understand dementia and indicates the implications of these understandings for developing appropriate models of care. As this new policy and practice area struggles to provide appropriate and effective models of care for people with a learning disability and dementia, an awareness of service users’ understandings of dementia leads to a number of important insights. The wider research programme from which this paper is drawn aims to identify best practice in supporting people with learning disabilities to stay in their own homes as they grow older and develop dementia. A combination of focus groups, ethnography and individual interviews were conducted at eight sites across England. Participants were people with a learning disability who had dementia, and those who have lived with someone with dementia. The findings have the potential to improve support to this population as they grow older.
People with a learning disability: their concerns about dementia
- Authors:
- WILKINSON Heather, KERR Diana, RAE Catherine
- Journal article citation:
- Journal of Dementia Care, 11(1), January 2003, pp.27-29.
- Publisher:
- Hawker
Reports on a study to explore the knowledge and views of people with a learning disability on dementia. The study also gathered views of people with learning disabilities on a booklet explaining dementia, developed with one of the researchers in collaboration with the Scottish Down's Syndrome Association.