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Avoiding institutional outcomes for older adults living with disability: the use of community-based aged care supports
- Authors:
- ELLISON Caroline, WHITE Amy, CHAPMAN Libby
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 36(3), September 2011, pp.175-183.
- Publisher:
- Taylor and Francis
Most people, regardless of ability or impairment, want to remain independent and living in their own home as they age. This study aimed to establish if accessing community-based aged care supports was perceived as assisting individuals ageing with a disability to remain living in their own homes and to avoid more institutional models of service. Sixty individuals aged 50 years and over with an intellectual, physical or neurological disability were interviewed to determine their perceptions in relation to ageing and the supports needed to remain living in the community. In addition, 26 staff and 6 family members were interviewed. The findings indicated that the participants receiving community-based aged care supports reported benefits including opportunities to develop relationships, maintain daily living skills, and participate in community activities. However, due to a lack of confidence in the availability of access to mainstream community-based aged care services, many participants felt vulnerable or unsure about their future and ability to remain living in their own home. Several participants commented that this meant that an undesired early relocation into residential aged care or congregate disability services appeared inevitable.
Bridging aging and intellectual/developmental disabilities in research, policy, and practice
- Author:
- HELLER Tamar
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 16(1), 2019, pp.53-57.
- Publisher:
- Wiley
Bridging the fields of aging and intellectual/developmental disabilities (I/DD) in research, policy, and practice can improve the lives of people both in aging with I/DD and in older adults aging into disabilities. These two groups have both unique and common needs for health and long‐term services and supports. Examples of bridging include exchange of research, adaptation of interventions, and development of policy embracing ideas from both fields. Research exchange includes scoping reviews of health promotion and family caregiving interventions in aging and I/DD. Adaptations from aging include chronic disease self‐management, falls prevention programs, dementia caregiving, retirement planning, and end‐of‐life care. The Administration on Community Living programs in the United States are examples of policy initiatives that bridge aging and disabilities. Opportunities for bridging the fields of aging and I/DD exist, and there are numerous examples of productive practice. Moving forward, it is important to consider the influence of future developments, such as technology and universal design, on the bridging movement. Further research can benefit our understanding of how to improve the bridge between these fields to an even greater extent. (Edited publisher abstract)
The relationship of person-environment fit to perceptions of autonomy, competency and satisfaction among older adults with developmental disabilities
- Authors:
- HUTCHINGS B. Lynn, CHAPLIN Erica
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 14(3), 2017, pp.214-223.
- Publisher:
- Wiley
The overlay of age-related cognitive and physical impairments onto existing intellectual and physical disabilities, a paucity of informal social relationships, a limited education and low income levels place the current generation of ageing adults with intellectual disabilities at risk of premature behavioural limitations and increased dependency. Person-environment fit and its relationship to perceptions of autonomy, competency, and satisfaction were explored through qualitative data collected from consumers. Face-to-face, in home interviews were conducted with 91 consumers who were asked to assess their own ability to carry out self-care and household tasks. Interviewers then observed consumers performing these tasks. A multi-stage data analysis process identified emergent themes that included issues related to autonomy versus dependence, belonging versus isolation, residential permanency versus transience, and social inclusion versus exclusion. The study also collected quantitative data, both from consumers and interviewers acting as observers. Consumer ratings of their own ability were consistently lower than observer ratings. Fostering home-based independence and autonomy among people ageing with developmental disabilities are discussed in relation to perspectives on the home environment. (Edited publisher abstract)
The body in health and social care
- Author:
- TWIGG Julia
- Publisher:
- Palgrave Macmillan
- Publication year:
- 2006
- Pagination:
- 198p., bibliog.
- Place of publication:
- Basingstoke
The body is central to many professional and policy concerns. Focusing on health and social care, this book shows how important the body can be to a range of issues such as disability, old age, sexuality, consumption, food and public space. Twigg shows how constructions of the body affect how we see different social groups and explores the significance of the body in the provision and delivery of care. Written in a lively and accessible style, the book offers fresh insights into classic areas of health, social care and society.
Aging and developmental disability: current research, programming and practice implications
- Editors:
- HAMMEL Joy, NOCHAJSKI Susan
- Publisher:
- Haworth Press
- Publication year:
- 2000
- Pagination:
- 100p.,bibliogs.
- Place of publication:
- Binghamton, NY
This book explores research findings and practice implications pertaining to normative and disability-related aging experiences and issues. The book discusses the effectiveness of specific interventions targeted toward aging adults with intellectual disabilities such as Down’s syndrome, cerebral palsy, autism, and epilepsy.
Going through the menopause: perceptions and experiences of women with intellectual disability
- Author:
- McCARTHY Michelle
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.281-295.
- Publisher:
- Taylor and Francis
This article explores the perceptions, experiences and support needs of women with intellectual disability as they go through the menopause. Findings are presented from semi-structured interviews with 15 women with mild to moderate intellectual disability aged 43-65 years. Levels of knowledge about what the menopause was, when it happened, and whether it happened to all women, were found to be generally low. More significantly, the majority of the women did not understand the significance of the menopause on a woman's reproductive capacity. The women's experiences of change and transition were on a predominantly physical level, with some emotional effects, but little or no psychological and social impact noted.
Mortality of people with intellectual disability in northern Sydney
- Author:
- BAKER Wesley
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.255-264.
- Publisher:
- Taylor and Francis
A population-derived cohort of 693 people with intellectual disability in the Lower North Shore (LNS) area of Sydney, New South Wales, Australia was followed from 1989 to 1999 to determine mortality rates, the demographics of the deceased, and causes of death. The general population of LNS was used for comparison. Age- and sex-adjusted mortality rates were higher than those in the LNS population. The main cause of death was respiratory disease, followed by external causes and cancer. Of those who had died, the greatest proportion were functioning in the severe to profound range of intellectual disability, and half were living in institutional care. Public health resources and services need to be directed to this vulnerable population in order to address the excess mortality.
The Multidimensional Observation Scale for Elderly Subjects (MOSES): studies in adults with intellectual disability
- Authors:
- DALTON Arthur J., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.310-324.
- Publisher:
- Taylor and Francis
Describes the results of five studies aimed at evaluating the usefulness, reliability, and validity of the Multidimensional Observation Scale for Elderly Subjects (MOSES) in the assessment of change in ageing persons with intellectual disability. Three hundred and thirty-six individuals with an average age of 49.8 years, including an equal number of men and women, were participants in one or more of the five studies. There were 220 participants with Down syndrome, 81 persons without Down syndrome with intellectual disability, and 35 persons from the general ageing population who were clinically diagnosed with Alzheimer's disease. Results concluded that the MOSES is a behavioural observation scale that can provide useful information in clinical settings as well as in research.
Development of an instrument for early detection of dementia in people with Down syndrome
- Authors:
- JOHANSSON Per Erik, TERENIUS Olle
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.325-345.
- Publisher:
- Taylor and Francis
The successful detection of early signs of dementia in people with Down syndrome could form a basis for useful early support and for drug treatment. This report describes the development and preliminary application of an interview and test instrument for the assessment of dementia among people with intellectual disability, as well as a framework for diagnosis. Reported are the assumptions for the items used, descriptions of the process and items used, and the associations of test items with predicting the presence of dementia. The authors conclude that a protocol combining testing and interview has promise and potential for detecting early signs of dementia in this population and could prove feasible for use in practice.
The situation of older people with intellectual disability in Nepal: a pilot study
- Authors:
- SHRESTHA Shraddha, WEBER Germain
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.242-254.
- Publisher:
- Taylor and Francis
In Nepal, the longevity of people with intellectual disability (ID) has increased during recent decades due to improvements in nutrition, sanitary conditions and health services. The findings were that the family is the prime resource for support for older people with ID, that the family's attitude plays a central role for the use of existing service provision, and that most parents of people with ID have made no plans for the future situation of their adult children (except that parents of adult sons with ID have often arranged or are planning a marriage for their son in order to assure his social security in adulthood and old age). Special services for older people with ID, as such, are not available in Nepal.