Search results for ‘Subject term:"learning disabilities"’ Sort:
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Valuing people
- Author:
- GEORGE Mike
- Journal article citation:
- Care and Health Magazine, 28, 29.1.03, 2003, pp.34-35.
- Publisher:
- Care and Health
Outlines progress to date with the Valuing People White paper, and highlights key issues for practice and practitioners.
Action guide: valuing health for all; primary care trusts and the health of people with learning disabilities
- Authors:
- GIRAUD-SAUNDERS Alison, et al
- Publisher:
- University of London. King's College. Institute for Applied Health and Social Po
- Publication year:
- 2003
- Pagination:
- 42p.
- Place of publication:
- London
The outcome of a three-year project supported by the Department of Health, the Action Guide promotes the constructive engagement of PCTs in improving health outcomes for people with learning disabilities. Twelve project sites across England explored the strategic and practitioner links needed to address health inequalities and improve access to health services. The ideas and examples in the Action Guide show how the knowledge and expertise of people with learning disabilities themselves and of specialist learning disability staff can help PCTs to deliver and commission better services. Local 'champions' played a key role in ensuring that people with learning disabilities were included in mainstream health priorities and activities such as NSF implementation and the development of PALS. Involvement of self advocates has been a powerful experience in some areas. The project has demonstrated the importance of the linking role that can be played by specialist learning disability health professionals, 'facing both ways' between learning disability and mainstream health services. Practical outputs include training materials for primary health care teams, health checks to act as a basis for Health Action Plans, personal health records in accessible formats, and materials to aid preparation for going to the doctor or hospital.
Who gets to decide?
- Author:
- LEASON Katie
- Journal article citation:
- Community Care, 17.07.03, 2003, pp.28-30.
- Publisher:
- Reed Business Information
The draft Mental Incapacity bill should improve the way decisions are made for those who lack capacity. Looks at the concerns of some people who fear they may lose even more control over their lives.
Citizen advocacy in Camden and Westminster: an independent evaluation funded by BILD; April 2003
- Author:
- CAMDEN AND WESTMINSTER CITIZEN ADVOCACY. The Advocacy Project
- Publisher:
- Camden and Westminster Citizen Advocacy
- Publication year:
- 2003
- Pagination:
- 36p.
- Place of publication:
- London
The BILD Citizen Advocacy Project currently working with local advocacy groups and advocacy organisations in Camden and Westminster to: produce common guidelines for citizen advocacy groups; explore the benefits of local affiliations between advocacy groups; and map the existing provision of advocacy groups. BILD is part of the new consortium which will be responsible for distributing the additional monies for citizen advocacy referred to in Valuing People.
Advocating for equality
- Authors:
- LEWINGTON Wendy, CLIPSON Caroline
- Publisher:
- SCOPE
- Publication year:
- 2003
- Pagination:
- 41p.
- Place of publication:
- London
The aims of this research were: to establish the level of advocacy provision for people with physical, sensory, communication and profound and multiple impairments; to make recommendations to Government, policy-makers and others on how to ensure that people with sensory, physical, communication and profound and multiple impairments are able to access appropriate independent advocacy provision; to identify what support and resources current advocacy providers would require to develop their schemes to include people with physical, sensory, communication and profound and multiple impairments; to establish whether local authorities have a local advocacy plan and whether advocacy providers feel this would be beneficial in their area The main findings from the research also included the following.. Many disabled people with physical, sensory, communication and profound and multiple impairments would benefit from the support of an independent advocate.. There is inadequate independent advocacy provision, especially for people with physical, sensory, communication and profound and multiple impairments. The main causes of lack of independent advocacy provision are funding issues and a lack of skills and experience around working with these groups of people. The types of independent advocacy undertaken by advocacy schemes may not always meet the needs of these groups of people. Finally, there is very little evidence of advocacy plans at a local level, but overwhelming support for their development among advocacy schemes.
Paying the piper and calling the tune?: the relationship between parents and irect payments for people with intellectual disabilities
- Authors:
- WILLIAMS Val, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 16(3), September 2003, pp.219-228.
- Publisher:
- Wiley
The aim of this paper is to investigate the role parents are playing in direct payments provision for their son or daughter with intellectual disabilities. The paper draws on a UK-wide inclusive research project, carried out by researchers who were members of an organization of people with intellectual disabilities. The purpose of the project as a whole was to explore what support works best for people with intellectual disabilities to access direct payments provision in the UK, and one of the key supports for certain people was found to be parents and families. Drawing on interviews with 29 family carers, the researchers found that parents were often strong advocates of independence for their son or daughter, and only acted as barriers to direct payments when they did not have sufficient information. Parents were found to be playing significant roles as initiators, managers and supporters of direct payments for their son or daughter; however, these roles were matched by important gains in quality of life and relationships within the family. The paper considers the implications of the power balance between persons with intellectual disabilities, their parents and their staff. Direct payments can alter that balance radically, but it is still important to have a good, independent direct payments support scheme to enable the person with intellectual disabilities to be in control.
A survey of self-advocacy groups for people with learning disabilities in an English region: part II
- Author:
- McNALLY Steve
- Journal article citation:
- Journal of Learning Disabilities, 7(3), September 2003, pp.231-250.
- Publisher:
- Sage
This article is on the development, implementation and analysis of a survey of self-advocacy groups for people with learning disabilities in the midlands region of England. One hundred questionnaires were posted to groups and 53 were completed — a good response for remote work with groups whose members may not read. In postal surveys non-response can be overestimated because ineligible or unreachable respondents may be regarded as refusals. Three respondents identified themselves as ineligible; therefore the response rate was no less than 54 percent. Groups provided information about their origins, structure and functioning. Among the key findings were the consistency of the issues identified as important, and the willingness to engage in research. The overwhelming majority of groups indicated that they would participate further in the project. Participatory research paradigms from the social model of disability can enhance our understanding of self-advocates' experience.
Moving from long-stay hospitals: the views from Northern Irish patients and relatives
- Authors:
- McCONKEY Roy, et al
- Journal article citation:
- Journal of Learning Disabilities, 7(1), March 2003, pp.78-93.
- Publisher:
- Sage
A cohort of 68 persons had been resettled from a long-stay hospital over a 5 year period, with over 90 percent moving to residential and nursing homes. Interviews were conducted with 39 residents and 34 relatives. Residents had more likes and fewer dislikes about their present accommodation than about the hospital. Nearly all were happy to have moved. A minority of families had been unhappy before the move. After the move, all families felt the residence was at least equivalent to the hospital, with most rating it as much better. Families liked the staff, the atmosphere, the buildings, and the individual rooms. They disliked the congregated living models, the failure of people to move on, and the dearth of social networks. Recommendations include increased awareness of new housing and support options, regular reviews of clients' needs and aspirations, and opportunities for access to independent advocacy services.
Leadership and change in human services: selected readings
- Author:
- WOLFENSBERGER Wolf
- Publisher:
- Routledge
- Publication year:
- 2003
- Pagination:
- 272p.,bibliog.
- Place of publication:
- London
Wolf Wolfensberger is a significant figure in the world of human services, especially in the field of learning disability. His work on normalization and citizen advocacy in the late 1960s and early 1970s has been acknowledged by supporters and critics alike to have been fundamental to developments in a number of countries, most notably the USA. Canada, Australasia and the UK. The term citizen advocacy was coined in the 1970's by Wolfensberger, who believed that people in institutional care needed independent representation by people in their communities if they were ever going to experience normal living. His further work in developing the theory of social role valorization, the successor to normalisation, and as a commentator on broader trends in society and their effects on vulnerable people and services for them have ensured his place as a major voice for values and the human worth of all people.
Preventing developmental disabilities and promoting maternal and child health: women organising for change
- Author:
- WILSON Ann M.
- Journal article citation:
- Affilia: Journal of Women and Social Work, 18(4), Winter 2003, pp.473-478.
- Publisher:
- Sage
Learning difficulties and related developmental disabilities affect 1.5% of the population in the United States. Efforts to address preventable developmental disabilities, such as those caused by lead poisoning, fetal alcohol syndrome, and traumatic brain injuries, have been the focus of activities in one state for almost 20 years. These efforts were created, and have been organised and sustained, by women. The prevention coalition was established to foster cooperation, identify and develop resources, and advocate for programmes, services, and legislation. The coalition further promotes the development of leaders in the human services and public health fields and embraces feminist principles of collaboration, mutual support, nurturance,and self-empowerment in its organizing efforts. Implications for community organizing and development, public awareness and community education around primary prevention issues, legislative advocacy, mentoring and coaching of emerging leaders, community partnerships, and social change are discussed.