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Swansea People First Peer Health Advocacy project
- Authors:
- COLEMAN Lynn, OWENS Mark
- Journal article citation:
- Llais, 81, Autumn 2006, pp.18-19.
- Publisher:
- Learning Disability Wales
The first author explains the work of the Swansea People First Peer Health Advocacy Project. The second author briefly recounts his own experience as a group member.
Paid advocacy pays!
- Author:
- LANE Jane
- Journal article citation:
- Llais, 100, Autumn 2011, pp.41-42.
- Publisher:
- Learning Disability Wales
The foundation of Advocacy Matters (Wales) (AMW) began in 1989 as a result of the closure of Ely hospital in Cardiff. AMW provided a Citizen Advocacy partnership to patients which involved preparing and training local volunteers to form a long-term partnership to help their ‘partner’ speak up about their rights and communicate what they wanted. This article discusses the Protection of Vulnerable Adults (POVA) scheme, a part of AMW which was introduced to give significantly greater protection and support to adults from abuse and inappropriate care. Three case studies are presented which detail the need for paid advocacy in people’s lives, each highlighting the positives that a paid advocate can bring to vulnerable adults living in care.
A guide for advocates: supporting people with learning disabilities who are described as having challenging behaviour
- Author:
- CHALLENGING BEHAVIOUR FOUNDATION
- Publisher:
- Challenging Behaviour Foundation
- Publication year:
- 2010
- Pagination:
- 77p.
- Place of publication:
- Chatham
A practical guide providing key information about best practice in supporting people living with challenging behaviour in England and Wales. The resource is written for both professional advocates and family carers advocating on behalf of people with learning disabilities who are described as having challenging behaviour. The characteristics of good support are identified, with suggested questions for advocates to ask around personalisation, activities and opportunities, staff training and communication skills. The guide also looks at issues such as the use of medication, physical intervention, barriers and seclusion, sectioning under the mental health act and alleged offending. Key bullet points identify the issues that may be encountered, checklists and case studies and a charter for challenging behaviour are included.
Opening doors
- Author:
- CHIMBA Innocent
- Journal article citation:
- Llais, 83, Spring 2007, pp.9-11.
- Publisher:
- Learning Disability Wales
The author reports on the progress of a new project which aims to extend the advocacy support services provided by Advocacy Action Wales (AAW) to adults with a learning disability from the black and ethnic minority communities in the Gwent region. The project is funded by the British Institute of Learning Disabilities (BILD).
Women with learning disabilities who offend: what do we know?
- Author:
- HAYES Susan Carol
- Journal article citation:
- British Journal of Learning Disabilities, 35(3), September 2007, pp.187-191.
- Publisher:
- Wiley
This paper aims to summarise what is known about women with a learning disability who offend and indicate some directions for future research.
Mental health, mental capacity: raising a human rights issue: workbook
- Author:
- BRITISH INSTITUTE OF HUMAN RIGHTS
- Publisher:
- British Institute of Human Rights
- Publication year:
- 2017
- Pagination:
- 36
- Place of publication:
- London
This booklet provides advice to help people with a mental health or mental capacity issue using health and care services to advocate for their own human rights. It provides on how you can identify whether an issue you have with your care or treatment is a human rights issue, and if so, how to raise it using human rights. It contains tips and tools about how to use human rights to challenge poor practice or decisions about care or treatment. It also includes flowcharts to aid with decision making and outline the steps that can be taken to challenge and resolve the decision. Case examples illustrate how the flowcharts can be used. The booklet has been co-produced with six other organisations as part of the project Care and Support: A Human Rights Approach to Advocacy. (Edited publisher abstract)
Mental Capacity Act 2005: post-legislative scrutiny: report of session 2013–14
- Author:
- GREAT BRITAIN. Parliament. House of Lords. Committee on the Mental Health Act 2005
- Publisher:
- Stationery Office
- Publication year:
- 2014
- Pagination:
- 143
- Place of publication:
- London
The Committee’s key finding in this evidence-led inquiry is that the Mental Capacity Act 2005 is not widely implemented. To address this, the Committee recommends that responsibility for implementing the Act be given to an independent body. The Committee’s second key finding is that the Deprivation of Liberty Safeguards are not fit for purpose. The Committee recommends that they be replaced with new provisions. This report considers: whether the Act is working as intended in respect of the Act’s five core principles; how to address poor implementation of the Act; advocacy and advance planning; whether the Court of Protection is appropriate (or should there be a Mental Capacity Tribunal instead); and criminal law provisions under Section 44 of the Act. It summarises and refers to cases of unlawful detention under the Act (Steven Neary), and the deprivation of liberty of an autistic man with a profound learning disability, HL at Bournewood Hospital for 32 years. It includes as a good practice example, the work by Jim Blair, a learning disability nurse consultant who explained adjustments made for effective treatment and outcomes for adults with learning disabilities appropriate to their needs. The Committee makes recommendations to Government to: work with regulators and professional bodies to ensure the Act is given a higher profile in training, standard setting and inspections; increase staff resources at the Court of Protection to speed up handling of non-controversial cases; and reconsider the provision of non-means tested legal aid to those who lack capacity, especially in cases of deprivation of liberty. Local authorities should use their discretionary powers to appoint Independent Mental Capacity Advocates more widely than is currently the case. The Government should act on the poor levels of awareness and understanding of Lasting Powers of Attorney and advance decisions to refuse treatment among professionals in the health and social care sectors. The Government should also review the criminal law provision for ill-treatment or neglect of a person lacking capacity, to ensure that the Act is fit for purpose. The Committee recommends that the House of Lords seek an update from the Government twelve months from now to find out what they have done in response to their key recommendations. An easy read version is also available. (Edited publisher abstract)
Knowledge of advocacy options within services for people with learning disabilities
- Authors:
- MARTINS Claudia Da Silva, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 24(3), May 2011, pp.274-279.
- Publisher:
- Wiley
The Independent Mental Capacity Advocate (IMCA) service was introduced by the Mental Capacity Act (2005). It provides advocacy services to people aged 16 or over who are assessed as lacking capacity to make a decision and have nobody to represent them. Professionals working in health and social care systems with people with learning disabilities need to have a good understanding and awareness of the IMCA service. The aim of this study was to evaluate the extent to which care managers in learning disability services understand the role of the IMCA service, and the difference between the newly created statutory IMCA and existing general advocacy (GA) services. The study participants were 22 social workers and community nurses from 3 community teams within learning disabilities services. The participants completed a questionnaire based on 9 scenarios where they were asked to identify the appropriate professional to contact and to explain what their role would be. The participants’ understanding of these issues was generally poor. There was a substantially less than 50% correct response rate for identification of scenarios that called for an IMCA referral, and the ability to discriminate between the roles of GA and IMCA was limited. Only around half of the participants correctly identified that the function of advocacy is to represent the client’s views, and a significant minority incorrectly attributed decision-making functions to the IMCA.
Independent mental capacity advocates under the Mental Health Capacity Act 2005: Part 1
- Author:
- -
- Journal article citation:
- Openmind, 148, November 2007, pp.24-25.
- Publisher:
- MIND
Independent Mental Capacity Advocates (IMCAs) provide a new, independent safeguard for people who lack capacity to make certain important decisions and have no one to represent them. The article provides an overview of the IMCA service.
Involving service users in professional nurse education in Wales
- Authors:
- FISHER M., COYLE D.
- Journal article citation:
- Journal of Learning Disabilities for Nursing Health and Social Care, 3(4), December 1999, pp.209-213.
Reports on a small scale survey was conducted among nurse educationalists within Wales. This survey showed that there has been very little service user involvement in professional nurse education in Wales. The authors discuss the possible reasons for such low level involvement. Looks at the history of service user involvement and the development of advocacy both within the UK and other countries and the impact of various government initiatives on the situation.