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Inclusion in political and public life: the experiences of people with intellectual disability on government disability advisory bodies in Australia
- Authors:
- FRAWLEY Patsie, BIGBY Christine
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 36(1), March 2011, pp.27-38.
- Publisher:
- Taylor and Francis
In the last decade, Australian governments have used disability advisory bodies as a means to canvass the views of people with disability and involve them in the process of policy making. This study explored the political orientations that members with an intellectual disability bring to disability advisory bodies and their experience of participating, in order to consider the types of support necessary to facilitate their participation. The 9 main participants were the only people with an intellectual disability who were members of disability advisory bodies in Australia in 2005. 2 or more in-depth interviews were conducted with each of them. 12 people associated with the participants' membership of the advisory body, including support workers and other members, were also interviewed. 3 political orientations were identified: democratic orientation (participation as a right), professional orientation (participation as a status symbol) and communitarian orientation (participation as the role of a community member). The participants found the work hard but rewarding, encountered both practical and intangible obstacles to participation, and received varying types of support. The article discusses the findings, with examples from the interviews, including experiences of participation, challenges and types of participation support.
Under scrutiny
- Author:
- TICKNER Marilyn
- Journal article citation:
- Professional Social Work, February 2001, p.7.
- Publisher:
- British Association of Social Workers
Evaluates the Mental Health Act White Paper in terms of its benefits to adults with learning difficulties.
Viability of a dementia advocacy effort for adults with intellectual disability: using a national task group approach
- Authors:
- JANICKI Matthew P., KELLER Seth M.
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 11(3), 2014, pp.176-191.
- Publisher:
- Wiley
The World Health Organization's report, Dementia: A Public Health Priority, noted that the number of people worldwide affected by dementia is significant and will continue to increase. The report called on nations to address dementia by developing national plans and undertaking public health initiatives. Special mention was made of the situation of people with intellectual disability, some of who manifest high risk for dementias. In the United States, the National Task Group on Intellectual Disabilities and Dementia Practices (the “NTG”) was created to ensure that the needs and interests of adults with intellectual and developmental disability who are affected by Alzheimer's disease and related dementias—as well as their families and friends—are taken into account as part of general-population dementia health and public policy efforts, particularly as noted in the U.S. National Plan to Address Alzheimer's Disease. To this end, the NTG's multifaceted advocacy efforts have included (1) identifying best practices for providing care and services to affected adults with intellectual disability; (2) developing and identifying a functional workable administrative dementia early detection and screening instrument; (3) producing educational materials useful to families, adults with intellectual disability, and nongovernmental organisations; and (4) furthering public policy initiatives on dementia as they affect adults with intellectual disability. This article describes the origins of this group, its functions and accomplishments, as well its role with respect to national dementia advocacy, as a prototype for other national efforts that can be used to promote the interests of adults with intellectual disability affected by dementia and improve the quality of their lives. Suggested are means for replication of such an effort in other national environments. (Edited publisher abstract)
Listening to the views, wishes and feelings of disabled children and young people in the Quality Protects era
- Author:
- KHAN John
- Publisher:
- Council for Disabled Children
- Publication year:
- 2001
- Pagination:
- 41p.
- Place of publication:
- London
Real consultation with children and young people with communication or learning disabilities still poses major challenges for professionals. It has been demonstrated that communication is possible, indeed essential, even when children have complex communication difficulties. Consultation with children and young people should not be viewed as an optional extra, but as an integral aspect where services impact on the lives of young people. As part of the Quality Protects programme the Council for Disabled Children has been working closely with numerous local authorities to find ways of involving disabled children and young people, not in only in their own statutory care reviews, but also in the development of the services they receive.