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Self- and proxy-rated needs in adults with mild to moderate intellectual disabilities: perspective matters
- Authors:
- SCHUTZWOHL Matthias, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(2), 2018, pp.285-295.
- Publisher:
- Wiley
Background: Adults with an intellectual disability should be supported according to their individual needs. The perception of need, however, is influenced by the values and expectations of the judging person. Method: Using the Camberwell Assessment of Need for Adults with Developmental and Intellectual Disabilities, self- and proxy-rated needs of n = 193 adults with mild to moderate intellectual disability were compared. Results: Mean total needs and met needs, but not unmet needs, differed significantly between perspectives. As concerns the assessment of specific areas of need, indices revealed a complex and multifaceted pattern of agreement and disagreement. Conclusion: Different viewpoints should be considered when assessing needs among adults with intellectual disability. With respect to areas other than basic, everyday areas of need, involvement of the adult with intellectual disability is strongly recommended. The assessment of mental health problems requires the involvement of clinical professionals, assessing problem behaviour broad diagnostic measures beyond a standardised instrument. (Edited publisher abstract)
Ageing and health status in adults with intellectual disabilities: results of the European Pomona II study
- Authors:
- HAVEMAN Meindert, et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 36(1), March 2011, pp.49-60.
- Publisher:
- Taylor and Francis
POMONA II was a European Commission funded public health project collecting information from 14 countries using a set of key health indicators specifically relevant for people with intellectual disabilities. This research focused on age-specific differences relating to environmental and lifestyle factors and the 17 medical conditions measured by the POMONA Checklist of Health Indicators. The article describes how information was collected using the POMONA Health Interview Survey and Evaluation Form from a sample of 1,253 participants in Austria, Belgium, Finland, France, Germany, Ireland, Italy, Lithuania, the Netherlands, Norway, Romania, Slovenia, Spain, and the United Kingdom. It then presents the results of the analysis, with tables showing characteristics of people with intellectual disabilities in the study, frequency of social contacts with relatives or friends according to age, lifestyle risk factors in people with intellectual disabilities according to age, and general and age-specific prevalence rates of health problems. The authors discuss how healthy older adults with intellectual disabilities are with regard to lifestyle factors, and whether there are health disparities between older adults with and without intellectual disabilities. They note that some evidence of health disparities was found for older people with intellectual disabilities, particularly in terms of under diagnosed or inadequately managed preventable health conditions.