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Learning disability strategic action plan 2022 to 2026
- Author:
- WALES. Welsh Government
- Publisher:
- Wales. Welsh Government
- Publication year:
- 2022
- Pagination:
- 20
- Place of publication:
- Cardiff
This action plan sets out the Welsh Government's overarching strategic agenda for the development and implementation of learning disability policy for the remainder of the current term of government, 2022 to 2026. The action plan (and associated delivery plan) is a living document and will be updated to reflect any changes to priorities and circumstances as they arise. It is designed to be flexible and contains actions that can reasonably be expected to be achieved given the ongoing focus on pandemic recovery and limits on available resources. Priority areas identified in the plan include: overarching/cross-cutting, including cross-government activity that may not sit in one specific area; COVID recovery; health, including reducing health inequalities and avoidable deaths; social services and social care; facilitating independent living and access to services through increased access to advocacy and self-advocacy skills, engagement and collaboration; education including children and young people's services; employment and skills; housing - appropriate housing, close to home, access to joined-up services; and transport. (Edited publisher abstract)
Social care dental team
- Authors:
- KELLY Grace, ROGERS Gaynor
- Journal article citation:
- Llais, 103, Summer 2012, pp.19-20.
- Publisher:
- Learning Disability Wales
Some people have difficulty getting to the dentist because they use a wheelchair and have problems with transport. Others have medical problems that need special attention or have difficulty with communication. In 2008, Special Care Dentistry was established as a new specialty to make sure that disabled people have equal access to dental treatment that meets their needs. The Special Care Dentistry Service provides a dental service for people needing Special Care Dentistry. People who are disabled or have difficulty leaving home can phone to discuss treatment and possibly a home visit. The dental team has portable dental equipment which they take on a home visit. This article describes the Special Care Dental team and how it provides a full service for people with a learning disability.
Teenage direct payments made transition easier
- Author:
- -
- Journal article citation:
- Llais, 85, Autumn 2007, pp.17-18.
- Publisher:
- Learning Disability Wales
Not many adults with a learning disability access direct payments. The number of young people doing so is even lower. Parents describe how their son, who has complex health needs and severe learning disabilities, was the first 16 year old to access direct payments.
Accessing social care and health care services: the rights of adults with a learning disability
- Author:
- TUCKER Jason
- Publisher:
- Mencap Cymru
- Publication year:
- 2015
- Pagination:
- 47
- Place of publication:
- Cardiff
This tool kit aims to set out the duties and obligations that local authorities and health authorities have to provide social care and health care services, and to explain how those services can be accessed. It focuses on the law and procedure applicable in Wales, and particular consideration is given to the rights of adults with a learning disability. Part 1 explains how a local authority determines whether a person is eligible to receive services and provides an overview of the key services that are usually available from local authorities. Consideration is also given to when local authorities can charge for the services provided, and how any charges are calculated. Information is also provided regarding carers’ assessments. Part 2 explains the duties and obligations that local health boards have to provide health care services, including community-based services. Consideration is also given to assessing capacity, and when people can be deprived of their liberty. Part 3 explains the key ways in which decisions regarding social and health care can be challenged where there is a disagreement about the level of services to be provided. The tool kit also contains a Future Changes section, which highlights some of the key changes that are likely to occur when the Social Services and Well-being (Wales) Act 2014 takes effect in April 2016. (Edited publisher abstract)
The All Wales Learning Disability Strategy: current status and implications for people with current status and implications for people with mental health needs or severe challenging behaviour
- Authors:
- FELCE David, ALLEN David
- Journal article citation:
- Advances in Mental Health and Learning Disabilities, 1(1), March 2007, pp.33-36.
- Publisher:
- Emerald
This article briefly summarises the main Welsh policy principles that apply to all people with learning disabilities, including those with mental health needs or severe challenging behaviour. The authors briefly review progress in supporting people with complex behavioural needs, reflect on areas where development in practice has not lived up to policy rhetoric and also examine the consequences of this policy to practice gap. The authors then describe current barriers to further service development. Finally they suggest a number of changes that are necessary for the current inadequacies to be resolved.
Opening doors
- Author:
- CHIMBA Innocent
- Journal article citation:
- Llais, 83, Spring 2007, pp.9-11.
- Publisher:
- Learning Disability Wales
The author reports on the progress of a new project which aims to extend the advocacy support services provided by Advocacy Action Wales (AAW) to adults with a learning disability from the black and ethnic minority communities in the Gwent region. The project is funded by the British Institute of Learning Disabilities (BILD).
Support for families with a learning disabled child
- Authors:
- DAVIES Jill, WILLIAMS Laura
- Journal article citation:
- Care and Health Magazine, 3.05.05, 2005, pp.34-35.
- Publisher:
- Care and Health
Looks at the findings of a report by the Foundation for People with Learning Disabilities (FPLD) which highlights the lack of support for many parents of children with learning disabilities. During the research families from in different parts of England and Wales, were contacted and their emotional needs from the time of diagnosis until their child was five were explored. Four main areas were examined: how the diagnosis was delivered; the information given immediately after the diagnosis and in following years; the emotional and practical support required; and the impact on family life.
Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020
- Authors:
- FLYNN Samantha, HATTON Chris
- Journal article citation:
- Tizard Learning Disability Review, 26(3), 2021, pp.174-179.
- Publisher:
- Emerald
Purpose: This paper aims to present data about access to health and social care services during the COVID-19 pandemic for adults with learning disabilities across England, Northern Ireland, Scotland and Wales. Design/methodology/approach: Data were collected directly from 621 adults with learning disabilities and through separate proxy reports by family carers and paid support staff of another 378 adults with learning disabilities. The data were collected between December 2020 and February 2021 and concerned the use of health and social care services since the start of the first COVID-19 national lockdown in March 2020. Findings: Access to and use of health and social care services significantly reduced for adults with learning disabilities across the UK during the COVID-19 pandemic between March 2020 and February 2021, with many people not receiving any services at all during that period. Similar patterns were seen across England, Northern Ireland, Scotland and Wales. However, data suggest some variations between countries for some services. Practical implications: Future pandemic planning must ensure that access to these essential services is not completely lost for adults with learning disabilities and their family carers, as it was in some cases during the COVID-19 pandemic in 2020. Originality/value: This is the largest study about the impact of the COVID-19 pandemic on health and social care services for adults with learning disabilities in the UK. The authors primarily collected data directly from adults with learning disabilities, and worked with partner organisations of people with learning disabilities throughout the study. (Edited publisher abstract)
Deaths of people with learning disabilities from COVID-19
- Author:
- HESLOP Pauline
- Publisher:
- University of Bristol
- Publication year:
- 2020
- Pagination:
- 44
- Place of publication:
- Bristol
This report describes the circumstances leading to death for a representative sample of 206 adults with learning disabilities. The majority of the 206 deaths (79%, n=163) were attributable to COVID-19: 27% of the total number of COVID-19 deaths notified to the LeDeR programme from 2nd March 2020 – 9th June 2020. Forty-three (21%) of the 206 deaths were attributed to other causes and are included as a comparator group – 6% of the total deaths from other causes occurring during this period. The study finds that there is a striking difference in age at death between COVID-19 deaths in the general population compared with people with learning disabilities. In the general population of England and Wales, 47% of deaths from COVID-19 were in people aged 85 years and over. Of all deaths of people with learning disabilities from COVID-19 notified to the LeDeR programme, just 4% were aged 85 years and over. A third (35%) of those who died from COVID-19 lived in residential care homes, rising to almost half of those with Down’s syndrome. A quarter (25%) lived in supported living settings. Priority must be given to supporting measures to prevent the spread of COVID-19 in these settings. People who died from COVID-19 were more frequently reported to have respiratory conditions (72%), compared to those who died from other conditions (60%). Access to healthcare that was problematic for some people who died from COVID-19 included: the responsiveness of NHS111; access to COVID-19 tests; and access to specialist learning disability nurses. Ensuring that these services are fully accessible to people with learning disabilities, their families and paid carers would improve service provision. (Edited publisher abstract)
Accessing social care and health services in Wales
- Author:
- CARDIFF UNIVERSITY. School of Law and Politics
- Publisher:
- Mencap
- Publication year:
- 2017
- Pagination:
- 61
- Place of publication:
- Cardiff
- Edition:
- Version 2
This toolkit provides information and advice on access and entitlements to health and social care services for people with learning disabilities in Wales. The guide aims to help people are acting as learning disability advocates, including parents, carers, volunteers or professionals by providing them with clear information. The toolkit is divided into three parts: the duties and obligations of local authorities to assess and provide social care and support services; the duties of local health boards to provide health care services, including community-based services and assessing mental capacity; and information about challenging decisions about health and care services. The guide includes links to resources and an additional resources section which provides details of organisations providing information relating to social and health care provision. (Edited publisher abstract)