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Reported barriers to the implementation of person-centred planning for people with intellectual disabilities in the UK
- Authors:
- ROBERTSON Janet, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 20(4), July 2007, pp.297-307.
- Publisher:
- Wiley
Research in the US and UK has demonstrated the effectiveness of person-centred planning (PCP) for people with intellectual disabilities. However, it is important to acknowledge problems that arise when implementing PCP. This paper considers barriers to PCP reported during a longitudinal study of the impact of PCP. Person-centred planning was introduced over a 2-year period for 93 people of whom 65 had a plan developed. Information was collected regarding barriers to PCP every 3 months from key informants using self-completion questionnaires. Barriers to PCP were widespread particularly in relation to: availability of trained facilitators; availability of services; lack of time and reluctance of people other than paid support staff to engage in the PCP process. It is concluded that services need to be aware of potential barriers to PCP so that strategies can be developed to overcome them, the first of which should be the ongoing training and support of facilitators.
What do we know about the health and health care of people with intellectual disabilities from minority ethnic groups in the United Kingdom? A systematic review
- Authors:
- ROBERTSON Janet, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(6), 2019, pp.1310-1334.
- Publisher:
- Wiley
Background: People with from minority ethnic communities face inequalities in health and health care. This systematic review considers the question of what is known about the health and health care of children and adults with intellectual disabilities from ethnic minority communities in the UK. Method: Studies published from 1990 to 2018 were identified via electronic literature databases, email requests and cross‐citations. Studies were reviewed narratively in relation to identified themes. Results: Twenty‐three studies were identified, most commonly focusing on South Asian communities. Very little information was identified on physical health or physical health care, with the identified evidence tending to focus on mental health care, access to specialist intellectual disability services, and inpatient services. Conclusion: Little is known about the health status of people with intellectual disabilities from minority ethnic groups in the UK. It is clear that they may experience barriers to accessing specialist intellectual disability services and other forms of health care. (Edited publisher abstract)
The impact of person centred planning
- Authors:
- ROBERTSON Janet, et al
- Publisher:
- Lancaster University. Institute for Health Research
- Publication year:
- 2005
- Pagination:
- 125p.
- Place of publication:
- Lancaster
The initial results show that person centred planning led to positive changes for individuals. Some changes were short-lived, but some continued beyond the end of the project. People experienced ongoing positive changes in the size of their social networks, their circle of friends, their presence in the community and the extent and range of their daytime activities. Changes were also seen in people’s contact with their families and the amount of choice available to them, but these improvements were not sustained. People with a plan were more likely to have access to some advocacy and health services. Some negative changes were reported in relation to people’s emotional, behavioural and health problems. These findings are not entirely surprising given that some people find change stressful; that new environments are more likely to seem risky (whether they really are or not); and that person centred planning tends to highlight existing health problems and get help with them. The overall message is that person centred planning was beneficial for people taking part in the study. It is also effective as a policy in promoting community involvement, changing daytime activities, extending contacts with families and friends, and improving choice for people with learning disabilities.