Search results for ‘Subject term:"learning disabilities"’ Sort:
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The Subscriber Network
- Author:
- MARKS Bob
- Journal article citation:
- Tizard Learning Disability Review, 6(4), October 2001, pp.7-11.
- Publisher:
- Emerald
Discusses the work of the Subscriber Network, which is open to providers of services for people with learning disabilities in the East Kent area of England and is part of the University Affiliated Programmes (UAP) established jointly by the Tizard Centre and East Kent Health Authority. The network's role within the overall UAP is to disseminate information on best practice to as wide a group of service providers to the network at the end of its year. The results of a member satisfaction survey are presented, demonstrating positive views on the usefulness of networking membership among those taking part.
Easy read and accessible information for people with intellectual disabilities: Is it worth it? A meta-narrative literature review
- Authors:
- CHINN Deborah, HOMEYARD Claire
- Journal article citation:
- Health Expectations, 20(6), 2017, pp.1189-1200. Online only
- Publisher:
- Wiley
Background: The proliferation of “accessible information” for people with intellectual disabilities in UK health care has accelerated in recent years, underpinned by policy guidance alongside the recent introduction of mandatory standards. However, questions have been raised as to the impact of such resources as a means of enhancing involvement in health care and addressing health inequalities. Objective: To review and synthesise the evidence from different approaches used to evaluate the impact of accessible information for people with intellectual disabilities using a meta-narrative approach. Search strategy: Literature searches were iterative and incorporated formal databases, grey literature and hand searches alongside more intuitive and opportunistic methods. Inclusion criteria: Included English language papers published before December 2015 described the design and evaluation of written information adapted for adults with intellectual disabilities. Data extraction and synthesis: The authors organised the papers into five groups according to similarity in authors’ writing styles and presentation, epistemology and theoretical foundations, aims and methodologies, professional and organisational identities. Main results: The 42 included papers in the five groupings occupied diverse positions on (i) public communication vs individualised materials, (ii) literacy as contextualised skills vs social practices and (iii) the expertise of patients vs professionals. There was limited evidence for the impact of accessible health information, notwithstanding the potential benefits associated with their creation. Conclusions: Individually tailored information is more likely to meet personalised health information needs for people with intellectual disabilities. The emergence of different social formations in the creation of accessible information has potential for advancing engagement of diverse groups. (Edited publisher abstract)
Mental health crisis information for people with intellectual disabilities
- Authors:
- HEMMINGS Colin, OBOUSY Shaymaa, CRAIG Tom
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(3), 2013, pp.135-142.
- Publisher:
- Emerald
This study explores whether mental health crisis information could be modified to be made accessible and meaningful for people with intellectual disabilities. Personalized information to help in a mental health crisis was recorded on folded A4 sized sheets that could be carried in a conveniently sized wallet. Service users were recruited from the psychiatry of learning disabilities outpatient clinics in Croydon, UK. A total of 20 service user participants who had mild intellectual disabilities as well as mental health problems agreed to participate. Three quarters of the participants carried their crisis information wallets on a daily basis for six months before evaluation. They and their carers expressed positive feedback about them carrying the crisis information. No one carrying the information actually experienced a mental health crisis in the six months follow up period so their usefulness in such crises could not be evaluated. However, they were unexpectedly used in other non-mental health settings and reported to have been helpful. Although the sample size was small the findings suggested that the carrying of crisis information might be a helpful measure for some people with intellectual disabilities. A further, larger scale trial is warranted. (Edited publisher abstract)
Copying letters to service users with learning disabilities: opinions of service users, carers and professionals working within learning disability services
- Authors:
- HOVEY Toni, CHESWICK Claire
- Journal article citation:
- British Journal of Learning Disabilities, 37(1), March 2009, pp.50-55.
- Publisher:
- Wiley
The government has made a commitment that patients should be able to receive copies of clinicians' letters about them as a right in order to improve communication and enable patients to participate in their care. In South Gloucestershire, the opinions of local service users with learning disabilities, their carers, and professionals working within learning disability services about this issue were sought using questionnaires and focus groups in order to identify and then develop good practice. A number of practice issues were identified: protocols for developing individualised accessible information are needed, involvement of service users in the management of their information and maintenance of its confidentiality, and involvement of carers in the sharing of information, if this is appropriate. A communication strategy needs to be developed by services working with people with learning disabilities, in conjunction with service users and carers. The resource and training implications of this area of service development need to be considered.
Coronavirus and people with learning disabilities in England
- Author:
- LEARNING DISABILITIES ENGLAND
- Publisher:
- Learning Disabilities England
- Publication year:
- 2022
- Pagination:
- 11
- Place of publication:
- Birmingham
This briefing paper highlights the policy implications of the Covid-19 pandemic in England, drawing on the Coronavirus and People with Learning Disabilities Study and the experiences and reflections of people with learning disabilities, family members and those supporting people. The Coronavirus and People with Learning Disabilities Study directly interviewed (by video call or telephone) adults with mild/moderate learning disabilities at three time points over 12 months (Cohort 1). There was also an online survey at the same time points with family members or paid carers of people with severe/profound learning disabilities (Cohort 2). Findings for England are presented in this brief, but people’s experiences were similar across the UK. Specifically, this policy brief looks at impact in seven key areas, with recommendations for policy makers: employment and money; mental health and wellbeing; social care services; health and health services; digital inclusion; information; experiences of people with greater support needs. (Edited publisher abstract)
Mental health services for children and adolescents with learning disabilities: a review of research on experiences of service users and providers
- Authors:
- JACOBS Myrthe, et al
- Journal article citation:
- British Journal of Learning Disabilities, 44(3), 2016, p.225–232.
- Publisher:
- Wiley
Background: Children and young people with learning disabilities experience high rates of mental health problems. Methods: The present study reviewed the literature on mental health services for children with learning disabilities, to identify known models of service provision and what has been experienced as effective or challenging in providing good services. Results: Children with learning disabilities and their parents experience barriers accessing mental health services that are related to a lack of information and perceptions of services as being inadequate. Service providers identified a lack of resources as a barrier to meeting needs. Although positive experiences are also observed, many parents have found services to be inappropriate or overwhelming. Conclusion: Research linking population need to available resources, and service models to services users’ outcomes would be valuable to make clear recommendations on how mental health services can address the needs of this group more effectively. (Publisher abstract)
Promoting effective service user engagement for people with learning disabilities
- Author:
- GREIG Rob
- Journal article citation:
- Managing Community Care, 8(1), February 2000, pp.44-47.
- Publisher:
- Pavilion
Reports on initiatives, such as work of the Community Care Development Centre(CCDC) and Swindon People First, which aim to make organisations more user-focused.
No empowerment, no comment
- Author:
- WARD Linda
- Journal article citation:
- Community Care, 3.6.99, 1999, pp.26-27.
- Publisher:
- Reed Business Information
The UK self-advocacy movement for people with learning difficulties is burgeoning and service providers are beginning to take notice. Explains how the decibel level has risen.
Consultation: plan of action or management exercise?
- Authors:
- TOWNSON Louise, CHAPMAN Ross
- Journal article citation:
- Community Living, 12(4), April 1999, pp.16-17.
- Publisher:
- Hexagon Publishing
Consultation is one of the 'four Cs' of the government's Best Value initiative. The authors argue that consultation in its own right is not enough, and that people should be involved on committees right through to the top if a real change is to take place.
Restrictive practices on refugees in Australia with intellectual disability and challenging behaviours: a family’s story
- Authors:
- KING Julie, et al
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 10(4), 2016, pp.222-232.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to explore the experiences of a refugee family navigating complex disability and restrictive practice service systems. Living with disability, or caring for someone with disability can compound the disadvantage and marginalisation already experienced by refugees. The nexus between disability and refugee status, particularly intellectual disability and restrictive practices, has received little scholarly attention and almost nothing is known of people’s experiences in this situation. Design/methodology/approach: Thematic analysis of a case study is used to illustrate the experiences of a refugee family in this situation. The case study presented was part of a larger ethnographic study exploring the experiences of people of refugee background living with disability. Findings: There were numerous barriers to accessing appropriate services. The family experienced high levels of stress simultaneously navigating the resettlement process and the disability service system. They were poorly informed and disempowered regarding the care of their loved one and the use of restrictive practices. Experiences in the country of origin, employment responsibilities, and unfamiliarity with the service system were key factors in this family’s difficulty in safeguarding the rights of their family member with disability. Originality/value: This case study examines the complexity experienced when disability intersects with refugee background. Areas for additional research and significant gaps in service provision are identified. The case study clearly demonstrates the importance of understanding people’s pre- and post-settlement experiences to inform policy and service provision. (Publisher abstract)