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Passport to health
- Authors:
- BLAIR Jim, GLAYSHER Kirsty, COOPER Sue
- Journal article citation:
- Learning Disability Today, 10(1), January 2010, pp.28-30.
- Publisher:
- Pavilion
- Place of publication:
- Hove
To help improve the hospital experience and the standard for care for people with learning disabilities and their families, St Georges Hospital in south west London has been running a new passport scheme. The passport contains important information about the person, such as their health and health difficulties, likes and dislikes, and any medication that they may be on. It is divided into 3 sections: things that must be known; things that are important; and likes and dislikes. The information provides a good overview of the whole individual and not just their ill health, and enables the staff to understand them as people and thus provide better care. Passports have been widely distributed to people with learning disabilities, and are filled out by the person or their supporters before admission. Following the success of the scheme with people with learning disabilities, it has also been rolled out to people with dementia care needs, mental health problems, people who have experienced strokes, and younger people.
Hospital care for young people with a learning disability: moving from children’s services to adult services
- Author:
- MENCAP
- Publisher:
- Mencap
- Publication year:
- 2021
- Pagination:
- 11
- Place of publication:
- London
This guide helps young people with a learning disability, and their families, understand and prepare for their transition from children to adult’s health services. Simple changes in hospital care can be vital for people with a learning disability. People with a learning disability face severe health inequalities throughout their life and are more likely to die avoidably and die younger. Having access to the right information at the right time and health workers making reasonable adjustments are fundamental to achieving the best outcomes for people with a learning disability and their whole family. The guide aims to help them understand their rights, such as asking for reasonable adjustments or meeting with the transitions team or learning disability nurse at the hospital to discuss their move to adult’s health services. (Edited publisher abstract)
The patient passport: improving the patient journey of people with a learning disability through the acute hospital setting
- Author:
- KENT Allyson
- Journal article citation:
- Community Connecting, 11, November 2007, pp.18-21.
- Publisher:
- Community Connecting
The author discusses the patient passport for people with learning disabilities. Its aim is to provide information to help acute hospital staff understand the range of needs of the person being admitted to hospital, assisting in the development of the person's care plan during their stay. The author also provides examples of Decision Making Pathways and Best Interest Pathways designed to preserve both the safety of the person with a learning disability and the staff involved with their care.
Commentary on “Does he have sugar in his tea?”
- Authors:
- HESLOP Pauline, et al
- Journal article citation:
- Tizard Learning Disability Review, 17(2), 2012, pp.64-68.
- Publisher:
- Emerald
This paper provides a commentary on the previous paper by Ruth Bell in this journal issue. Bell’s paper concluded that a hospital passport system can play a key role in supporting the effective care of people with learning disabilities. This commentary outlines some ‘reasonable adjustments’ for people with learning disabilities in primary and secondary care. It then discusses 3 issues. The first is whether there is a specific need for a hospital passport or whether some other comprehensive and multipurpose document would be more effective. Second, it discusses the need to connect individuals, primary care, and secondary care so that people with learning disabilities attending an Annual Health Check or entering secondary health care already have an up-to-date comprehensive document which they bring with them. The third is the need for hospital staff to be requesting and using such documents. The article concludes that personal health files that include hospital passport-type documents could make a difference and provide a better link between individuals and primary and secondary healthcare services.
Let down by the NHS
- Author:
- SAMUEL Mithran
- Journal article citation:
- Community Care, 24.6.10, 2010, pp.26-28.
- Publisher:
- Reed Business Information
A new Mencap survey confirms that people with learning disabilities receive worse care than others. Two short case studies are presented. The first case study describes how the appointment of a consultant learning disability nurse and the use of a health passport at St George's Healthcare NHS Trust was able to improve care. The second case study describes how a learning disability liaison nurse was able to help in the care of one patient with severe learning difficulties.
Secondary healthcare and learning disability: results of consensus development conferences
- Authors:
- CUMELLA Stuart, MARTIN David
- Journal article citation:
- Journal of Learning Disabilities, 8(1), March 2004, pp.30-40.
- Publisher:
- Sage
Many people with learning disabilities live shorter lives and have poorer health than the rest of the population. This results in part from less access to healthcare, and several studies have evaluated ways of improving primary healthcare for this group. Much less attention has been paid to the experiences of people with a learning disability in general hospitals. This exploratory study used consensus development conferences of people with a learning disability, their supporters, family, professionals and managers. It was reported that hospitals frequently failed to communicate with, provide emotional support for, or adapt to the specific needs of patients with a learning disability. Hospital staff noted that community services failed to provide information about patients, and that hospital staff lacked training in communicating with people with a learning disability. Fieldwork identified a range of solutions to deal with these problems, most of which involved incremental changes in hospital and community health procedures.