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Is there a place within academic journals for articles presented in an accessible format?
- Author:
- GARBUTT Ruth
- Journal article citation:
- Disability and Society, 24(3), May 2009, pp.357-371.
- Publisher:
- Taylor and Francis
This article addresses some of the difficulties inherent in disseminating emancipatory research findings in academic journals in a way that is empowering to people with learning difficulties in the UK. It calls for academics to challenge the editorial criteria of academic journals to consider accepting articles written in a more accessible style. It argues that from a social model point of view the products of the research, as well as the process, should be accessible to people with learning difficulties. It looks at what an accessible article is and why it is important, the editorial criteria of some academic journals, different models of presenting emancipatory research and suggests some innovative ways forward that highlight the need to 'get involved' in the world of people with learning difficulties and to consider accessible information as a rights-based issue.
Breaking bad news to people with learning disabilities: a literature review
- Author:
- BROWNRIGG Sophie
- Journal article citation:
- British Journal of Learning Disabilities, 46(4), 2018, pp.225-232.
- Publisher:
- Wiley
Background: This article provides a literature review exploring reasons for disclosure and nondisclosure of bad news to people with learning disabilities. Connections are made to current policy, law and ethics to highlight the complexity of this issue. Methods: This review examines literature on disclosing bad news to people with learning disabilities from 2007 to 2017. A total of 13 articles were found with nine articles having a direct focus on breaking bad news. Results: The main themes identified from this review are maintaining rights and dignity, upholding duty of care, underestimating resilience, protection from harm and capacity to understand. Exploration of who should disclose is examined in reference to relatives, staff and healthcare professionals. Conclusions: Trends surrounding disclosure of diagnosis and prognosis to people with learning disabilities have not kept pace with the trend to disclose with the general population. People with learning disabilities are frequently not informed of their terminal diagnosis and often die without this knowledge. Equally, bad news concerning a friend or relative may also be withheld. (Publisher abstract)
Cosmetic surgery for people with learning disabilities: considerations for adult protection practice
- Author:
- CAMBRIDGE Paul
- Journal article citation:
- Journal of Adult Protection, 4(2), May 2002, pp.9-20.
- Publisher:
- Emerald
Explores the ethical issues surrounding the use of cosmetic surgery for and by people with learning disabilities. Although such interventions are less common in Britain than in the US, there is a growing interest in the use of cosmetic surgery to correct perceived defects in appearance and speech impairment. However, the assumed potential of cosmetic surgery brings adult protection concerns into stark relief.