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No voice unheard, no right ignored: a consultation for people with learning disabilities, autism and mental health conditions
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2015
- Pagination:
- 80
- Place of publication:
- London
This consultation seeks to explore views on a range of proposals, whose scope primarily covers: the assessment and treatment in mental health hospitals for people with learning disability or autism; adult care and support, primarily for those with learning disability but also for adults with autism (and the links to support for children and young people); and all those to whom the Mental Health Act currently applies (including children and young people). The proposals are intended to establish and strengthen key rights and choice options, including: the right for people with learning disabilities, autism and mental health conditions to be independent, to be part of a community and to live in a home of their choice; the right to be listened to, to have their wishes acted upon and the right to challenge decisions about them; their rights under the Mental Health Act; the right to control their support and services with a personal budget and the right to benefit from integrated health and social care; and access to better information about who is responsible for supporting their physical as well as their mental health. The consultation closes on 29 May 2015. (Edited publisher abstract)
Transforming care for people with learning disabilities: next steps: progress briefing from the Transforming Care Delivery Board
- Author:
- TRANSFORMING CARE DELIVERY BOARD
- Publisher:
- Transforming Care Delivery Board
- Publication year:
- 2015
- Pagination:
- 19
- Place of publication:
- London
Summarises progress across the key areas outlined in Transforming Care for People with Learning Disabilities - Next Steps, which set out an ambitious programme of system wide change to improve care for people with learning disabilities and/or autism, and behaviour that challenges (learning disabilities). The programme is led by six national partners, working closely with commissioners, managers, practitioners, providers and people with learning disabilities and their families. The aim is to ensure that where people are able, they can live within their local communities, with the right level of support, and close to home. The report assesses the impact of the programme activities with respect to five priorities, including: giving people with learning disabilities and/or autism, and their families, more choice and say in their care; ensuring that the best care is delivered now, whilst re-designing services for the future; improving care quality and safety by developing the skills and capability of the workforce; tightening regulation and the inspection of providers, strengthening providers’ corporate accountability and responsibility, to drive up the quality of care; and making sure the right information is available at the right time for the people that need it. (Edited publisher abstract)
Choice processes and satisfaction with care according to parents of children and young adults with intellectual disability in the Netherlands
- Authors:
- NEIBOER Anna P., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 36(2), June 2011, pp.127-136.
- Publisher:
- Taylor and Francis
Quality information on care for people with intellectual disabilities has become available in the Netherlands in recent years. However, despite the expressed desire for access to information on care providers, use of the available information seems to fall short of expectations. There is limited information on the decision-making processes and on what influences it. This study was designed design to better understand the effects of providing decision-support information only (services/quality indicators) and providing a combination of information and personal decision-making support (counselling/peer meetings) on the choice process and satisfaction with care. The study population consisted of 147 parents who sought protected living arrangements, assisted daily activities, or both for their child. The form of support affected the choice process, but did not affect satisfaction with care. Decision-support information combined with personal decision-making support led to less frequent switching of care providers and to more satisfaction with choice information. The parents made limited use of online decision-support information, but did use decision counselling. It is concluded that this population is better supported with an intensified personal approach rather than through the currently available generic approach using websites.