A review of the literature on transition for young people with learning difficulties, families and professionals.The report for the Social Care Institute for Excellence (SCIE) brings together the findings from three inter-linked investigations relating to the information needs of young people, their parents and supporters at transition. It was undertaken over a six month period between October 2003 and March 2004 and included: focus group interviews with young people, their parents and supporters; a systematic review of the literature on transition; and a review of the information already available for young people, parents and professionals, including an evaluation of materials by young people and parents. The project was carried out by the Norah Fry Research Centre (NFRC) in partnership with North Somerset People First (NSPF) and the Home Farm Trust (HFT).
A review of the literature on transition for young people with learning difficulties, families and professionals.The report for the Social Care Institute for Excellence (SCIE) brings together the findings from three inter-linked investigations relating to the information needs of young people, their parents and supporters at transition. It was undertaken over a six month period between October 2003 and March 2004 and included: focus group interviews with young people, their parents and supporters; a systematic review of the literature on transition; and a review of the information already available for young people, parents and professionals, including an evaluation of materials by young people and parents. The project was carried out by the Norah Fry Research Centre (NFRC) in partnership with North Somerset People First (NSPF) and the Home Farm Trust (HFT).
Subject terms:
service transitions, information services, learning disabilities, literature reviews, systematic reviews, user participation, young people, access to information, families;
This report for the Social Care Institute for Excellence (SCIE) brings together the findings from three inter-linked investigations relating to the information needs of young people, their parents and supporters at transition. It was undertaken over a six month period between October 2003 and March 2004 and included: focus group interviews with young people, their parents and supporters; a systematic review of the literature on transition; and a review of the information already available for young people, parents and professionals, including an evaluation of materials by young people and parents. The project was carried out by the Norah Fry Research Centre (NFRC) in partnership with North Somerset People First (NSPF) and the Home Farm Trust (HFT).
This report for the Social Care Institute for Excellence (SCIE) brings together the findings from three inter-linked investigations relating to the information needs of young people, their parents and supporters at transition. It was undertaken over a six month period between October 2003 and March 2004 and included: focus group interviews with young people, their parents and supporters; a systematic review of the literature on transition; and a review of the information already available for young people, parents and professionals, including an evaluation of materials by young people and parents. The project was carried out by the Norah Fry Research Centre (NFRC) in partnership with North Somerset People First (NSPF) and the Home Farm Trust (HFT).
Subject terms:
service transitions, information services, learning disabilities, literature reviews, systematic reviews, user participation, young people, access to information, families;
Developmental Medicine and Child Neurology, early cite 6 January 2019,
Publisher:
John Wiley and Sons
Aim: The aim of this review was to synthesize empirical evidence of family factors associated with participation of children with disabilities aged 5 to 12 years to inform the development of family‐centred participation‐fostering interventions. Method: A systematic search was performed for articles published in English between 2001 and 2017 in MEDLINE, PsycINFO, CINAHL, Scopus, and ASSIA following the Preferred Reporting Items for Systematic Review and Meta‐Analysis (PRISMA) guidelines. Quality of evidence was appraised using the Research Triangle Institute Item Bank. Family factors associated with participation were identified and assessed using a multistage ‘semi‐quantitative’ approach. Results: Thirty studies were included in the review. Four non‐modifiable ‘status’ factors consistently associated with participation were parental ethnicity, parental education, family type, and family socio‐economic status. Six modifiable ‘process’ factors with consistent associations with participation were parental mental and physical health functioning, parental self‐efficacy beliefs, parental support, parental time, family preferences, and activity orientation. Interpretation: Rehabilitation professionals should direct their focus towards modifiable family factors as primary targets for family‐centred interventions. Strategies that can improve families’ access to information, counselling, and community support services are likely to support children's participation by empowering families and optimizing their health and well‐being.
(Edited publisher abstract)
Aim: The aim of this review was to synthesize empirical evidence of family factors associated with participation of children with disabilities aged 5 to 12 years to inform the development of family‐centred participation‐fostering interventions. Method: A systematic search was performed for articles published in English between 2001 and 2017 in MEDLINE, PsycINFO, CINAHL, Scopus, and ASSIA following the Preferred Reporting Items for Systematic Review and Meta‐Analysis (PRISMA) guidelines. Quality of evidence was appraised using the Research Triangle Institute Item Bank. Family factors associated with participation were identified and assessed using a multistage ‘semi‐quantitative’ approach. Results: Thirty studies were included in the review. Four non‐modifiable ‘status’ factors consistently associated with participation were parental ethnicity, parental education, family type, and family socio‐economic status. Six modifiable ‘process’ factors with consistent associations with participation were parental mental and physical health functioning, parental self‐efficacy beliefs, parental support, parental time, family preferences, and activity orientation. Interpretation: Rehabilitation professionals should direct their focus towards modifiable family factors as primary targets for family‐centred interventions. Strategies that can improve families’ access to information, counselling, and community support services are likely to support children's participation by empowering families and optimizing their health and well‐being.
(Edited publisher abstract)
Subject terms:
participation, user participation, learning disabilities, systematic reviews, family relations, vulnerable children, evidence, family-centred approach, family support, access to information, service provision, empowerment, families, physical disabilities, disabilities;