Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 2 of 2
“I love my sister, but sometimes I don't”: a qualitative study into the experiences of siblings of a child with profound intellectual and multiple disabilities
- Authors:
- LUIJKX Jorien, PUTTEN Annette A.J. van der, VLASKAMP Carla
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 41(4), 2016, pp.279-288.
- Publisher:
- Taylor and Francis
Background: Many previous family quality of life studies have relied on parental information for understanding if and how having a sibling with profound intellectual and multiple disabilities (PIMD) influences the sibling’s quality of life. In the current study, children had the opportunity to describe both positive and negative aspects of having a sibling with PIMD. Method: Photo elicitation interviews were conducted with 18 children (6–13 years old) and thematically analysed using the following domains: joint activities, mutual understanding, private time, acceptance, forbearance, trust in wellbeing, exchanging experiences, social support, and dealing with the outside world. Results: Overall, the children described both positive and negative experiences, indicating that having a sibling with PIMD influenced their quality of life in multiple ways. Most mentioned were experiences classified in the joint activities domain. Conclusion: Having a sibling with PIMD influences the life of the interviewed children both positively and negatively. Both the opportunity for shared activities with the sibling with PIMD and moments of private time are important for sibling quality of life. (Publisher abstract)
Does the severity of disability matter? the opinion of parents about professional support in residential facilities
- Authors:
- LUIJKX Jorien, BRUG A.Ten, VLASKAMP C.
- Journal article citation:
- Child: Care, Health and Development, 42(1), 2016, pp.8-15.
- Publisher:
- Wiley
Researchers have shown that the characteristics of a person with an intellectual disability (ID), in particular the severity of the disability, are related to the outcomes of professional support. Hardly any studies have asked parents and/or legal guardians for their own opinion about the quality of support given to their child/family member with ID. Therefore, this study examined the relationship between the severity of a person's disability and the opinions voiced by the parents and/or other legal guardians of that person concerning several aspects of the quality of support received in residential care. (Publisher abstract)