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Counting inclusion with Chantal Mouffe: a radical democratic approach to intellectual disability research
- Authors:
- SIMPLICAN Stacy Clifford, LEADER Geraldine
- Journal article citation:
- Disability and Society, 30(5), 2015, pp.717-730.
- Publisher:
- Taylor and Francis
As mandates for social inclusion of people with intellectual disabilities remain unfulfilled, many scholars question whether the concept of inclusion is to blame. Critics worry that quantitative measurements of inclusion miss what should count: a meaningful life gained from a sense of belonging. The authors argue that both the concepts of inclusion and belonging embody a communitarian ethos in which citizens mirror the values of their community. In contrast, Chantal Mouffe’s radical democratic approach to inclusion emphasises the importance of difference and the inevitability of exclusion. Mouffe thus offers a way to broaden our approach to social inclusion in the twenty-first century. (Edited publisher abstract)
The power of difference in inclusive research
- Author:
- WOELDERS Susan
- Journal article citation:
- Disability and Society, 30(4), 2015, pp.528-542.
- Publisher:
- Taylor and Francis
Inclusive research involves people with intellectual disabilities actively and strives for empowerment and normalisation. Less is written about the power dynamics in a research team consisting of researchers and people with intellectual disabilities and the possible value of such collaboration. In this auto-ethnography the authors reflect on these aspects and the challenges along the way. They conclude that striving for normalisation can be paralysing; ‘doing the same’ is not always possible and can be disempowering for all members of the research team. Acknowledging differences and uniqueness enriches research outcomes and makes us reflect on our own, sometimes rigid, academic frameworks. (Edited publisher abstract)
Love in a cold climate: changes in the fortunes of LGBT men and women with learning disabilities?
- Author:
- ABBOTT David
- Journal article citation:
- British Journal of Learning Disabilities, 43(2), 2015, pp.100-105.
- Publisher:
- Wiley
‘Secret Loves, Hidden Lives?’ was a piece of research which explored the lives and loves of gay, lesbian and bisexual people with learning disabilities. The research arguably influenced the development of policy in that same sex relationships were subsequently mentioned in English government policy on learning disability. The research had an extensive programme of dissemination, and whilst no systematic attempt was made to measure the impact of the dissemination or the research, this study suggests ways in which the research might (or might not) have made a difference in relation to: telling untold stories, supporting front line workers with practical resources, challenging negative assumptions held by staff in services and putting LGBT people with learning disabilities in touch with each other. The study also considers work which was left undone and reflects on the opportunities to support LGBT people with learning disabilities in the current context of financial austerity. (Publisher abstract)
Outcomes from the National High Secure Learning Disability Service: findings and challenges
- Authors:
- MORRISSEY Catrin, et al
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 9(3), 2015, pp.116-1233.
- Publisher:
- Emerald
Purpose: The “outcomes revolution” in healthcare has yet to impact strongly on secure intellectual disability (ID) services in the UK. The purpose of this paper is to review the service-level outcome studies that exist for this population, and to explore some of the challenges of conducting such research. It further describes some illustrative routine outcome data from the National High Secure Learning Disability Service. Design/methodology/approach: Routinely collected outcome measures (length of stay; violent incidents; Emotional Problem Scale (EPS) Behaviour Rating Scale and EPS Self-Report Inventory) were analysed for two overlapping cohorts of patients resident in the high-secure service between 2008 and 2013. Findings: The median length of stay of those discharged during the study period (n=27) was around 9.9 years (range one to 40 years). A significant proportion (25 per cent) of discharges resulted in an eventual return to high security. There did not appear to be a treatment effect over two to three years using staff-rated global clinical measures, but patient-rated clinical measures did reduce. Violent incidents also reduced significantly over a longer period of four years in treatment. Research limitations/implications: There are identified challenges to research design and outcome measurement which need to be addressed in any future cross-service studies. Originality/value: There are relatively few published outcome studies from forensic ID services. None of the studies have used clinical measures of changes or patient-rated outcome measures. (Publisher abstract)
Life histories as counter-narratives against dominant and negative stereotypes about people with intellectual disabilities
- Authors:
- STEFANSDOTTIR Guorun V., TRAUSTADOTTIR Rannveig
- Journal article citation:
- Disability and Society, 30(3), 2015, pp.368-380.
- Publisher:
- Taylor and Francis
The history of intellectual disabilities is largely a story of discrimination and social exclusion portraying people with intellectual disability as abnormal and inferior. This article describes a particular methodological approach to inclusive life history research with a small group of women with intellectual disabilities in Iceland. The article documents how, through a four-year collaborative research process, the life histories became counter-narratives to dominant historical beliefs and stereotypes. In addition to the personal empowerment of the women and the construction of a collective memory, this project has also resulted in public sharing of their stories through speaking up and giving presentations, and thus potentially also changing the historical memory. (Publisher abstract)
Commentary on "The use of cognitive behaviour therapy to treat depression in people with learning disabilities: a systematic review"
- Author:
- LANGDON Peter E.
- Journal article citation:
- Tizard Learning Disability Review, 20(2), 2015, pp.65-68.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to provide a commentary on “The use of cognitive-behaviour therapy to treat depression in people with learning disabilities: a systematic review”. Design/methodology/approach: Drawing on the literature, as well as both clinical and research experience, some reasons are outlined for the lack of attention given to psychological therapies to treat depression amongst people with intellectual disabilities (IDs). Findings: More research is needed, but existing evidence is promising regarding the effectiveness of adapted cognitive-behaviour therapy for depression amongst people with IDs. Originality/value: The commentary draws attention to the scope for developing a range of effective cognitive, behavioural and cognitive-behavioural treatments. (Publisher abstract)
A commentary on "First-hand experience of accessible information"
- Author:
- BUELL Susan
- Journal article citation:
- Tizard Learning Disability Review, 20(2), 2015, pp.88-91.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to provide a commentary on Clare Mander's paper on people with learning disabilities’ first-hand experience of accessible information. Design/methodology/approach: The commentary reflects on some of the findings presented by Mander and builds on these, with particular emphasis on what it means to understand information. Findings: Everything from initial product design to building capacity and constructing knowledge requires expertise and attention to detail. (Edited publisher abstract)
It's good to talk
- Author:
- McMILLAN Ian
- Journal article citation:
- Learning Disability Today, 15(2), March/April 2015, pp.12-13.
- Publisher:
- Pavilion
- Place of publication:
- Hove
To help to make talking therapies more accessible to people with learning disabilities and mental health issues Oxleas NHS Foundation Trust launched the TLC service, a therapeutic service for Greenwich residents with learning disabilities in July 2013. From launch to the end of 2014 the service received over 50 referrals. This article explains how the service helped one 21-year-old who was unemployed and was also experiencing severe anxiety. (Edited publisher abstract)
Taking the tablets
- Author:
- REEVES Dot
- Journal article citation:
- Learning Disability Today, 15(2), March/April 2015, pp.16-17.
- Publisher:
- Pavilion
- Place of publication:
- Hove
As tablet computers grow in popularity and use, people with learning disabilities are increasingly experiencing the benefits they can bring. This article looks at how tablet computers can be used to help improve communication, increase empowerment and give people with learning disabilities a greater voice in their community. The article includes ten tips for using tablet computers with people with learning disabilities and presents a short case study on the use of tablets to help support workers and service users to learn Makaton. (Original abstract)
Intellectual disability, personality disorder and offending: a systematic review
- Authors:
- RAYNER Kelly, et al
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 9(2), 2015, pp.50-61.
- Publisher:
- Emerald
Purpose: This review seeks to systematically review studies where personality disorder has been explored as a descriptive or possible predictive factor in offending behaviour in people with an intellectual disability. The paper aims to discuss this issue. Design/methodology/approach A systematic search of several databases was conducted and 15 studies met the inclusion criteria and were included in this review. Findings: Methodological limitations and problems in accurate diagnosis within this client group preclude firm conclusions being reached. Originality/value: It is concluded that further research should be conducted, with particular attention paid to the conceptualisation and assessment of personality disorder. (Publisher abstract)