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Assessing quality of life and mortality in adults with intellectual disability and complex health problems following move from a long-stay hospital
- Authors:
- BHAUMIK Sabyasachi, TYRER Freya, GANGHADARAN Satheesh
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 8(3), September 2011, pp.183-190.
- Publisher:
- Wiley
In England, residents of long-stay hospitals for adults with an intellectual disability (ID) now live in the community. The success of this can be assessed based on factors such as quality of life and mortality. This study measured quality of life at 6 months prior to moving, and at 6 months and 1 year after relocation in 51 adults with ID with complex health problems who had moved from a long-stay hospital into various community supported living accommodations. Mortality and causes of death were investigated in those who died within 2 years of relocation. Findings revealed that quality of life improved between baseline and 6 months follow-up but levelled off at 1 year follow-up. Three adults died during the first 2 years of moving to the community; all had complex problems. The authors concluded the need for careful and considered planning when relocating people with ID who had complex health problems, irrespective of their current residence.
Psychological treatments in intellectual disability: the challenges of building a good evidence base
- Authors:
- BHAUMIK Sabyasachi, et al
- Journal article citation:
- British Journal of Psychiatry, 198(6), June 2011, pp.428-430.
- Publisher:
- Cambridge University Press
While psychological treatments are common interventions in the treatment of people with learning disabilities, the evidence base for their clinical efficacy, and cost-effectiveness, is limited. This editorial describes the strengths and limitations of the evidence base for a range of psychological treatments available. It focuses on behavioural interventions, cognitive-behavioural therapy and psychodynamic therapies. The editorial also highlights current problems in conducting randomised controlled trials in this area and suggests a way forward. The author concludes that developing a research-based evidence base is critical to the establishment of new services and interventions, and is necessary in supporting the value of existing services.
Transition for teenagers with intellectual disability: carers' perspectives
- Authors:
- BHAUMIK Sabyasachi, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 8(1), March 2011, pp.53-61.
- Publisher:
- Wiley
Teenagers with intellectual disabilities have significantly more health problems than the rest of the population and many encounter difficulties accessing the services they need during the transition from children's to adult services. This multidisciplinary, interagency study was undertaken in Leicester city, Leicestershire County and Rutland County. Its main aims were to estimate the number of teenagers with intellectual disability between the ages of 16 and 19 and their levels of mental and physical health care needs, to identify their carers' perceptions of the transition process to adult services, and to make recommendations on addressing unmet needs. A mapping exercise was used to identify teenagers with diagnosed intellectual disabilities, and face-to-face semi-structured interviews were carried out with the carers of 24 teenagers. The article describes the study and presents results, including demographic characteristics, the pattern of disabilities, a comparison of health problems of Caucasians and South Asian teenagers, and key issues reported by carers. Most of the teenagers had significant levels of intellectual disabilities, multiple problems, required constant supervision, and were using a range of health, social care and education services. However, their carers still reported unmet needs and 50% had difficulty in accessing services. Different patterns of service use and unmet needs were found among the ethnic groups identified in the sample. Carers were concerned about lack of information concerning transition planning and adult services and wanted earlier, more coordinated transition planning, and the researchers noted the need for quality information and validated standardised tools that could be used for transition planning.