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Quality of life: Its application to persons with intellectual disabilities and their families -introduction and overview
- Authors:
- BROWN Roy I., SCHALOCK Robert L., BROWN Ivan
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 6(1), March 2009, pp.2-6.
- Publisher:
- Wiley
The authors provide an overview of quality of life (QoL) conceptualization in the field of intellectual disabilities (ID), provide background information, and set an organizing framework for presenting concepts and concrete ideas for applying QoL. This framework is useful for three broad categories of application in the field of ID that form the application of QoL to individuals, groups of individuals, and to families. QoL thus can be used as a sensitizing notion that gives a sense of reference and guidance from the individual's perspective, focusing on the person and the individual's environment and provides a framework for conceptualizing, measuring, and applying the QoL construct. The applications also frame evaluation strategies for QoL research. The authors conclude that there is a need to identify relevant QoL evidence from the literature in a proactive way, and to ensure that it is methodologically sound, provides both quantitative and qualitative data, represents inter- and intra-individual variability, and illustrates changes over both the lifespan and across cultural settings.
Quality of life: from concept to future applications in the field of intellectual disabilities
- Authors:
- VERDUGO Miguel A., SCHALOCK Robert L.
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 6(1), March 2009, pp.62-64.
- Publisher:
- Wiley
The authors consider conclusions reached with respect to quality of life (QoL) in this special issue of the 'Journal of Policy and Practice in Intellectual Disabilities'. The conclusions are examined in terms of both the past and present developments and within the context of three major areas. These three are (1) application of QoL through support and intervention; (2) the application to family QoL and the development of a working model; and (3) application of QoL for policy and evaluation. These conclusions are examined in relation to implications for public policy in terms of support and intervention, measurement and evaluation, with particular focus on a greater understanding and acceptance of the implications and structure involved in the QoL model and the importance of family QoL. The authors maintain that this should entail the development of applications that are empirically based and, wherever possible, take into account the complexity of mediator variables.