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Exploring a continuum of support for bereaved people with intellectual disabilities
- Authors:
- READ Sue, ELLIOT David
- Journal article citation:
- Journal of Intellectual Disabilities, 11(2), June 2007, pp.167-181.
- Publisher:
- Sage
- Place of publication:
- London
People strive to make meaning out of the death of their loved ones. People with intellectual disabilities, however, may not be actively involved in death and may therefore experience disenfranchised grief. Bereavement support for this population remains at best inconsistent across the UK. The aim of this article is to further explore a bereavement support model recently developed. A case study is utilized to demonstrate the practicalities inherent in the integrated approach offered. A bereavement support framework can provide a holistic perspective for people with intellectual disabilities when integrated with a systems approach to care delivery. The resultant strategy incorporates practical ideas that address the bereavement needs of people with intellectual disabilities, encapsulating all aspects of current and future care delivery. Finally, core recommendations are offered for consideration.
Living and dying with dignity: the best practice guide to end-of-life care for people with a learning disability
- Authors:
- READ Sue, MORRIS Heather
- Publisher:
- Mencap
- Publication year:
- 2007
- Pagination:
- 78p.
- Place of publication:
- London
This guide is the outcome of a two-year project in North Staffordshire (funded by the Big Lottery) in which Mencap and Keele University worked collaboratively to support individuals with a learning disability, their family and carers through their journey to the end of their life. The contents were decided on through the outcomes of focus groups and dialogue with parents, carers and health and social care professionals. Chapters include: the challenges of accessing end-of-life care for someone with a learning disability; recognising when someone is ill; holistic end-of-life care; promoting autonomy and choice; preparing for death and challenges to bereavement support. Case illustrations are used throughout. A check list which can be used to evaluate end-of-life care service provision is included. The publication also contains a listing of useful supporting resources.