Looks at services for young people with learning difficulties entering adulthood. Highlights lack of coordination between children and adult services as a continuing problem. Draws on the findings of research which surveyed young people with learning difficulties about the services they received.
Looks at services for young people with learning difficulties entering adulthood. Highlights lack of coordination between children and adult services as a continuing problem. Draws on the findings of research which surveyed young people with learning difficulties about the services they received.
Subject terms:
learning disabilities, planning, social services, social care provision, user participation, young people, adults;
Tizard Learning Disability Review, 8(4), October 2003, pp.19-28.
Publisher:
Emerald
Reports on a study of 283 families with youngsters with learning disabilities to examine the experiences of young people and their families in the transition from children's to adult services. The research was carried out by the Home Farm Trust and the Norah Fry Research Centre, University of Bristol, The research consisted of a postal questionnaire which was distributed to 370 families; 27 in-depth interviews which were conducted with parents in the family home; and 27 face-to-face interviews with the young people with learning difficulties from these families. The study found that existing legislation and guidance were largely failing youngsters with learning disabilities and their families at transition. There were substantial discrepancies between what ought to have been provided and what young people and their families experienced in practice, and significant difficulties as youngsters moved between children's and adult health and social services. Other difficulties experienced at transition are also reviewed, along with possibilities for improvements in practice. The study also looked at some innovative schemes and services in this area.
Reports on a study of 283 families with youngsters with learning disabilities to examine the experiences of young people and their families in the transition from children's to adult services. The research was carried out by the Home Farm Trust and the Norah Fry Research Centre, University of Bristol, The research consisted of a postal questionnaire which was distributed to 370 families; 27 in-depth interviews which were conducted with parents in the family home; and 27 face-to-face interviews with the young people with learning difficulties from these families. The study found that existing legislation and guidance were largely failing youngsters with learning disabilities and their families at transition. There were substantial discrepancies between what ought to have been provided and what young people and their families experienced in practice, and significant difficulties as youngsters moved between children's and adult health and social services. Other difficulties experienced at transition are also reviewed, along with possibilities for improvements in practice. The study also looked at some innovative schemes and services in this area.
Subject terms:
learning disabilities, parents, risk, social services, social care provision, user views, transport, young people, access to services, benefits, education, families, health care, good practice;
Reports on a research project, 'Journey to Independence', which looked at what people with learning difficulties have found useful in accessing and using direct payments. The project was carried out by a self-advocacy organisation Swindon People First in partnership with the Norah Fry Research Centre at the University of Bristol, with support from the Community Fund. The project also provided the project team with research skills needed to carry out the research, and provides important lessons for those wanting to increase the involvement of people with learning difficulties in research that concerns them.
Reports on a research project, 'Journey to Independence', which looked at what people with learning difficulties have found useful in accessing and using direct payments. The project was carried out by a self-advocacy organisation Swindon People First in partnership with the Norah Fry Research Centre at the University of Bristol, with support from the Community Fund. The project also provided the project team with research skills needed to carry out the research, and provides important lessons for those wanting to increase the involvement of people with learning difficulties in research that concerns them.
Subject terms:
learning disabilities, participatory research, research methods, research skills, self-advocacy, training, user participation, user views, access to services, direct payments, families;