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Longitudinal study of parents' impact on quality of life of children and young adults with intellectual disabilities
- Authors:
- CRAMM Jane M., NIEBOER Anna P.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 25(1), January 2012, pp.20-28.
- Publisher:
- Wiley
Five domains of quality of life for people with intellectual disabilities have been identified through research: material well-being, development and activity, physical well-being, social well-being, and emotional well-being. This study investigated how parents' perspectives on these domains relate to quality of life for children and young adults with intellectual disabilities. Questionnaires were used to gather information from 147 parents of children with intellectual disabilities, recruited from 4 cities in the Netherlands, at the start of the study and about 6 months later. The article describes the methodology and analysis and presents the findings. It reports that the well-being scores of parents in several quality of life domains were significant predictors of quality of life of their children, with main predictors of quality of life among children and young people with intellectual disabilities being physical well-being (children), social well-being (parents and children) and emotional well-being (parents and children).
Influence of the organizational environment on challenging behaviour in people with intellectual disabilities: professionals’ views
- Authors:
- OLIVIER‐PIJPERS Vanessa C., CRAMM Jane M., NIEBOER Anna P.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(3), 2019, pp.610-621.
- Publisher:
- Wiley
Background: This study examined the influence of the organizational environment on challenging behaviour in people with intellectual disabilities to increase understanding of the quality of support services for people with intellectual disabilities. Method: Twenty‐one professionals and managers from four specialized Dutch disability service organizations were interviewed. Data were analysed with a grounded theory approach, using Bronfenbrenner's ecological theory as a sensitizing frame. Results: The organizational environment (i.e., vision, values, sufficient resources) is related via the support service (i.e., providing stability, constant awareness) to residents’ challenging behaviour and is also linked directly to challenging behaviour (e.g., living environment, values). Organizations are restricted by national regulations, negative media attention and changing societal values, which negatively influence quality of support. Conclusions: The creation of a supportive organizational environment for staff, who in turn can provide quality support services to residents with demanding care needs, was found to prevent challenging behaviour in people with intellectual disabilities. (Edited publisher abstract)