Search results for ‘Subject term:"learning disabilities"’ Sort:
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“It was emotional” – A group for people with learning disabilities to talk about end of life
- Authors:
- REILLY Deirdre Emer, RAYMOND Kathryn, O'DONNELL Chris
- Journal article citation:
- British Journal of Learning Disabilities, 48(3), 2020, pp.199-205.
- Publisher:
- Wiley
Background: Academic research and reports from healthcare professionals tell us people with learning disabilities are not routinely supported to learn about end‐of‐life issues or make plans for the end of their lives. Materials: Questionnaires were used to check how much people knew. Accessible symbols were used to help people understand end‐of‐life specific terms. Method: Partnering with a charity, three sessions were held in three consecutive weeks to ask people in a convened group what they wanted to know and help them learn. The sessions supported people to start creating their own plans for funerals, where they want to die and what should happen with their possessions. Results: This group had between 21 and 23 (N = 23) attendees each week and all except one person came back after the first week. The participants were keen to highlight what they did not know and learn about end‐of‐life issues. They also wanted support to plan for the end of their lives and their parents' lives, and the group tried to provide information and support on these topics. Conclusion: This group was a valuable exercise that was very much needed by local people with learning disabilities. The group will run again and should be offered in other areas. Groups of this kind can offer unmet needs that are highlighted by national guidance in England, UK such as the NHS long‐term plan and the Learning Disability Mortality Review Programme. (Edited publisher abstract)
Finding the right assessment measures for young people with intellectual disabilities who display harmful sexual behaviour
- Authors:
- MALOVIC A., MURPHY G., COULTON S.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 33(1), 2020, pp.101-110.
- Publisher:
- Wiley
Background: Previous studies and national reports have all noted that a significant proportion of the young people who display harmful sexual behaviours have intellectual disabilities. However, research on the topic has been scarce. This study presents a systematic review of the literature relating to clinical instruments specifically developed or adapted for adolescents with intellectual disabilities who display harmful sexual behaviours. Method: An electronic search of databases was completed for published articles in English from the earliest possible date to the end of 2013. Results: No published articles met the full search criteria. This confirmed the lack of published clinical measures, apart from two risk assessment instruments. Conclusions: Given the lack of measures, it is recommended that the focus of future research needs to be on developing or adapting instruments that will offer researchers’ and clinicians’ empirical as well as clinical data on this all‐too‐often‐overlooked population of vulnerable youth. (Publisher abstract)
Stories of people who have attended a lesbian, gay, bisexual and trans support group in a secure intellectual disability service
- Authors:
- TALLENTIRE Liz, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 33(1), 2020, pp.17-28.
- Publisher:
- Wiley
Background: This research is about people who have intellectual disabilities and live in a secure hospital. It is about a group of people who meet at a support group. The support group is for people who are lesbian, gay, bisexual or transgender. Methods: These people with intellectual disabilities helped with planning, doing, and telling other people about the research. They told their stories about going to the support group. Results: Their stories were joined together into a group story. The story said that the group helped people in lots of different ways. For some people going to the group was difficult at first because it was ?coming out’. This means telling other people you are lesbian, gay, bisexual, or transgender. Then it got easier and people started to feel better about themselves. Then they wanted to help others and this was important in their lives. Conclusions: This group seemed to help people get better. The paper gives some ideas for setting up other groups and doing more research. (Edited publisher abstract)
Violent incidents in a secure service for individuals with learning disabilities: Incident types, circumstances and staff responses
- Authors:
- MALDA Castillo Javier, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(6), 2018, pp.1164-1173.
- Publisher:
- Wiley
Background: The issue of violence in secure services has long been recognized both in the UK and worldwide. However, there is currently scarce literature available about violence within learning disability (LD) secure settings. Methods: Secondary data analysis was conducted on violent incidents, using information routinely collected by the staff over a 1‐year period. Results: Physical assaults were the most frequent type of incident, and the distribution in terms of days or months was homogenous and incidents were concentrated in the corridors, lounges and dining rooms of secure facilities. Antipsychotic medication was not regularly prescribed. Generalized linear modelling analyses revealed significant predictors that increased the chances of seclusion and physical restraint, such as being female or directing the violence towards staff. Conclusions: These findings can inform staff training on violence prevention and suggest that increased ward‐based supervision and enhanced use of psychological formulations may help in reducing violence within this service context. (Publisher abstract)
Fathers of adults who have a learning disability: roles, needs and concerns
- Authors:
- DAVYS Deborah, MITCHELL Duncan, MARTIN Rachel
- Journal article citation:
- British Journal of Learning Disabilities, 45(4), 2017, pp.266-273.
- Publisher:
- Wiley
Accessible summary: 1) This study asked fathers of adults who have a learning disability about their experiences, what helps them and any worries they may have; 2) Fathers reported different experiences of being a father to an adult with a learning disability and talked about things that were helpful, such as their wives, grandparents, having information and hobbies; 3) Fathers were worried about the person who has a learning disability in the future; 4) Fathers can be important in supporting people who have a learning disability throughout their lives. Background: There is little research that specifically relates to fathers of adults with a learning disability despite the social expectation that fathers will provide a supportive role over the lifespan. Methods: Semi-structured interviews were carried out with seven fathers of adults with a learning disability to explore their roles, needs and concerns. Data were analysed using a framework associated with interpretative phenomenological analysis (IPA). Results: Themes arising demonstrate that fathers were shocked at the diagnosis of learning disability but usually reported adaptation over time. The impact of learning disability upon men's lives, their perception of their adult child and the roles they assumed were varied. Fathers valued support from wives and grandparents, having knowledge and interests and work-type roles. All fathers were concerned about the future yet comprehensive futures planning was lacking. Some fathers reported difficulties in being emotionally open, and referred to societal stereotypes. Fathers valued positive support from service providers; however, this relationship was often in conflict. Conclusion: Although mothers are often the main carers for adults with a learning disability, fathers can make a significant contribution. The findings presented here support the results of previous studies regarding paternal response to learning disability and varied impact upon men's lives. Identified support strategies include leisure interests, volunteer/work roles, having information and support from wives and grandparents. Ongoing concerns incorporate the future and ambivalent relationships with service providers, which could have a negative impact upon the individual who has a learning disability. (Publisher abstract)
Healthy eyes, teeth and ears
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 3
- Place of publication:
- London
This factsheet provides information on how social care staff can support people with learning disabilities to look after their eyes, teeth and ears. It is the fifth in a series of factsheets which show how social care staff can support the health needs of people with learning disabilities. The leaflet also includes a link to a supporting slide set that can be used by social care staff as a training resource. (Edited publisher abstract)
Common health problems that social care staff should be aware of
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- London
This factsheet provides information for social care staff on the common health problems that affect people with learning disabilities. These include epilepsy, respiratory diseases, dysphagia, constipation, diabetes and mental health problems. It is the sixth in a series of factsheets which show how social care staff can support the health needs of people with learning disabilities. The leaflet also includes a link to a supporting slide set that can be used by social care staff as a training resource. (Edited publisher abstract)
How social care staff can support people with learning disabilities and dementia
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- London
This factsheet provides information on how social care staff can support people with learning disabilities and dementia. It covers recognising signs of dementia, sharing information about what a diagnosis of dementia means, and things social care staff can do. It is the 11th in a series of factsheets which show how social care staff can support the health needs of people with learning disabilities. The leaflet also includes a link to a supporting slide set that can be used by social care staff as a training resource. (Edited publisher abstract)
How social care staff can recognise and manage pain in people with learning disabilities
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- London
This factsheet provides information for social care staff on how to recognise and manage pain in people with learning disabilities. It is the tenth in a series of factsheets which show how social care staff can support the health needs of people with learning disabilities. The leaflet also includes a link to a supporting slide set that can be used by social care staff as a training resource. (Edited publisher abstract)
Variation in rates of inpatient admissions and lengths of stay experienced by adults with learning disabilities in England
- Authors:
- JAMES Elaine, HATTON Chris, BROWN Mark
- Journal article citation:
- Tizard Learning Disability Review, 22(4), 2017, pp.211-217.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to analyse rates of inpatient admissions for people with learning disabilities in England and to identify factors associated with higher rates of inpatient admission. Design/methodology/approach: Secondary analysis of data submitted as part of the Transforming Care programme in England. Findings: 2,510 people with learning disabilities in England were inpatients on 31st March 2016. Findings indicate that people with learning disabilities are at risk of higher rate of inpatient admission than can be explained by prevalence within the general population; this risk may be associated with areas where there are higher numbers of inpatient settings which provide assessment and treatment for people with learning disabilities. Research limitations/implications: Variability in the quality of the data submitted by commissioners across the 48 Transforming Care Plan areas mean that greater attention needs to be paid to determining the validity of the common reporting method. This would improve the quality of data and insight from any future analysis. Practical implications: The study’s findings are consistent with the hypothesis that geographical variations in the risk of people with learning disabilities being admitted to inpatient services are not consistent with variations in prevalence rates for learning disability. The findings support the hypothesis that building alternatives to inpatient units should impact positively on the numbers of learning disabled people who are able to live independent lives. Originality/value: This is the first study which examines the data which commissioners in England have reported to NHS England on the experience of people with learning disabilities who are admitted as inpatients and to report on the possible factors which result in higher rates of inpatient admission. (Publisher abstract)