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Deinstitutionalisation: the management of rights
- Author:
- JOHNSON Kelley
- Journal article citation:
- Disability and Society, 13(3), June 1998, pp.375-387.
- Publisher:
- Taylor and Francis
This article is based on an ethnographic study of the closure of a large institution for people with intellectual disabilities in Australia. Argues that deinstitutionalisation is a problematic process because it necessarily involves a tension between two incompatible discourses: one concerned with the 'rights' of people with intellectual disabilities and the other with their 'management'. This tension leads inevitably to compromises in the practice of deinstitutionalisation. Concludes by exploring the implications of this argument for future institutional closures.
Women with intellectual disabilities: finding a place in the world
- Editors:
- TRAUSTADOTTIR Rannveig, JOHNSON Kelley
- Publisher:
- Jessica Kingsley
- Publication year:
- 2000
- Pagination:
- 303p.,bibliog.
- Place of publication:
- London
Explores issues affecting the lives of women with learning difficulties around the world, looking at different aspects of life, including work, family, relationships and community involvement. Based on the experiences of women with and without learning difficulties.
“… but if you're afraid of things, how are you meant to belong?” What belonging means to people with intellectual disabilities?
- Authors:
- STRNADOV Iva, JOHNSON Kelley, WALMSLEY Jan
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(6), 2018, pp.1091-1102.
- Publisher:
- Wiley
Background: A policy commitment to social inclusion has brought about some positive changes in the lives of people with intellectual disabilities; yet many also continue to experience social isolation, poverty and abuse. The authors introduce a framework for belonging from the literature and then present a study exploring the views of people with intellectual disabilities about belonging. These are discussed in relation to the framework identified from the literature. Method: Three focus groups with 24 participants with intellectual disabilities were conducted in New South Wales and Victoria (Australia). The authors used inductive content analysis to identify four meanings of belonging: (i) belonging in relation to place, (ii) as being part of a community, (iii) as having relationships and (iv) as identity. Also discussed are commonly experienced barriers to belonging identified by participants. Conclusions: Implications for policy, service provision and practice are discussed. (Publisher abstract)
Inclusive research: making a difference to policy and legislation
- Authors:
- JOHNSON Kelley, MINOGUE Gerard, HOPKLINS Rob
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(1), 2013, pp.76-84.
- Publisher:
- Wiley
While inclusive research has become an important stream in research with people with intellectual disabilities, there is a tension between the possibly empowering research process and the strength of the research itself to make social change happen. This paper explores the contribution of two inclusive qualitative research studies in Australia and the Republic of Ireland to change in policy and legislation. Both studies used qualitative methods including life stories and focus groups to explore the issue of sexuality and relationships. In both studies, people with intellectual disabilities were actively involved in undertaking the research. Both studies revealed that it was difficult for people with intellectual disabilities to express their sexuality openly or to form adult relationships. Both studies were used by people with intellectual disabilities and their supporters to promote change in which they had a heard voice. (Publisher abstract)