Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 1 of 1
Giving voice to persons with intellectual disabilities about family quality of life
- Authors:
- CORREIA Raquel Alveirinho, SEABRA-SANTOS Maria Joao, PINTO Paula Campos
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 14(1), 2017, pp.59-67.
- Publisher:
- Wiley
The major purpose of this study was to give voice to persons with intellectual disabilities (ID), and to explore their perspectives about their family quality of life (FQoL). Four focus groups were conducted with 17 men and women with ID (mild and moderate), aged between 16 and 53 years old. Full transcriptions of the focus group discussions were analyzed with the NVivo 10 software. The findings showed that persons with ID identify family relationships as the most important dimension for FQoL and that some differences between younger and older participants existed. Ethical and practical challenges, as well as the implications for research and intervention are discussed. The inclusion of individuals with ID as informants in research is a way to value their point of view, empower them, and recognise the knowledge that they are able to bring to research. (Edited publisher abstract)