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Caregiving and adults with intellectual disabilities affected by dementia
- Authors:
- COURTENAY Ken, JOKINEN Nancy S., STRYDOM Andre
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 7(1), March 2010, pp.26-33.
- Publisher:
- Wiley
This article describes a systematic review of the available Dutch, English, and German language literature on the current knowledge on social-psychological and pharmacological care given to older adults with intellectual disabilities (ID) and dementia. The authors note that the lack of robust evidence to meet the needs of older people with ID and dementia means that services often have to extrapolate from the evidence base of dementia care practices in the general population. The article outlines concerns over staff burden, behavioural interventions, and staff training, and notes that applications of care were emerging, but were not systematically studied – pharmacological agents and non-pharmacological, psychosocial techniques were being used to assist carers manage behaviour, but the evidence base of both non-pharmacological and pharmacological interventions that can help people and their carers is insufficient. In conclusion, with more adults projected to be affected by dementia, the authors note a need for an international research agenda that begins to address gaps in knowledge.