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Conceptualizing inclusive research with people with intellectual disability
- Authors:
- BIGBY Christine, FRAWLEY Patsie, RAMCHARAN Paul
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(1), 2013, pp.3-12.
- Publisher:
- Wiley
A comprehensive review of the peer reviewed literature and key texts was undertaken to more clearly conceptualize inclusive research with people with intellectual disability and identify the issues associated with ways of approaching it. Three approaches to inclusive research were identified: advisory, leading and controlling, and collaborative group. Using the literature and the authors' own experience, each approach is illustrated and discussed. A clearer conceptual framework is developed to guide researchers and administrators as they consider inclusive research and its feasibility to particular research questions. A strong self-advocacy movement is identified as one of the conditions necessary for inclusive research to flourish. (Edited publisher abstract)
Views and experiences of people with intellectual disabilities and their families: (1) the user perspective
- Authors:
- RAMCHARAN Paul, GRANT Gordon
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 14(4), 2001, pp.348-363.
- Publisher:
- Wiley
Presents a descriptive summary of the views and experiences of people with intellectual disabilities (IDs) as they have been represented in research and other literature. The authors develop further the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, a review report commissioned by the Department of Health on the views and experiences of users and family carers focusing on the ways in which research might contribute to policy and practice. The literature review of user views and experiences produced three broad categories: testaments of life, which are mainly ethnographies and life histories; user movement media produced in an accessible format for people with IDs or by people with IDs themselves; and research based studies in their varying forms. It is demonstrated that no single approach is able to encompass all the interests of knowledge production, policy planning, and action or practice on its own. A more coordinated and broad-based research approach to user views and experiences is advocated.