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Delivering high quality end of life care for people who have a learning disability: resources and tips for commissioners, service providers and health and social care staff
- Authors:
- NHS ENGLAND, PALLIATIVE CARE FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 57
- Place of publication:
- Redditch
This ‘top tips’ guide aims to support commissioners, providers and clinicians to reduce inequalities in palliative and end of life for people with a learning disability, focusing on ‘The Ambitions for Palliative and End of Life Care’. These six ambitions, which provide a framework for national and local health and care system leaders to take action to improve palliative and end of life care, are: Each person is seen as an individual; Each person gets fair access to care; Maximising comfort and wellbeing; Care is coordinated; All staff are prepared to care; Each community is prepared to help. This document sets how to achieve each ambition, signposts relevant tools and resources and provides good practice examples. (Edited publisher abstract)
Good for business: the benefits of employing people with a learning disability
- Author:
- MENCAP
- Publisher:
- Mencap
- Publication year:
- 2017
- Pagination:
- 16
- Place of publication:
- London
A guide for employers outlining the business case for employing people with a learning disability. The paper sets out the economic benefits of employing people with a learning disability and the evidence on their work performance and employment costs, looking at willingness and ability to work and reliability. It suggests that championing inclusion can help boost staff morale, which can have a positive contribution on the work output of an organisation. In addition, employing people with a learning disability can promote diversity in the workplace and can help a company to maintain a positive reputation for corporate social responsibility. The document also describes Mencap supported employment services, which provide tailored support throughout the entire process – from recruitment through to on-the-job support and beyond. (Edited publisher abstract)
Co-production in transforming care: checking if co-production is happening
- Author:
- LOCAL GOVERNMENT ASSOCIATION
- Publisher:
- Local Government Association
- Publication year:
- 2017
- Pagination:
- 17
- Place of publication:
- London
This guide explains what co-production means, how to check if co-production is happening, and what Transforming Care Partnerships can do to support co-production. Transforming Care Partnerships are the groups of people working together to improve services and support for people with a learning disability and people with autism who display behaviour that challenges. The guide suggests that key indicators that co-production is happening include: there is a co-produced policy on co-production that shows the way everyone will work; there is a clear plan on co-production that has been co-produced; how the Transforming Care Partnership works is built on the co-production principles; all communication is open and easy to understand; and there is evidence of a ‘shift in power’ to people and families from professionals. (Edited publisher abstract)
Helping people with a learning disability to give feedback
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 6
- Place of publication:
- Redditch
This guide explains how, with the right support, people with a learning disability can have their say about the NHS. Support for people to give feedback includes: including people with a learning disability in feedback and engagement work; tapping in to local networks and voluntary organisations to ensure a larger number of people with a learning disability can be reached; ensuring information and questions presented as part of a survey or other feedback initiatives are easy to understand; involving people with a learning disability in designing and running feedback events so that they become more engaging and effective sessions; and ensuring people feel more empowered during any event where they are encouraged to have their say about healthcare. (Edited publisher abstract)
Learning disabilities market position statement: good practice checklist
- Author:
- OXFORD BROOKES UNIVERSITY. Institute of Public Care
- Publisher:
- Oxford Brookes University. Institute of Public Care
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- Oxford
A learning disability market position statement checklist that takes into account the Institute of Public Care's approach to ‘Commissioning Ordinary Lives for People with Learning Disabilities and/or Autism’. It provides a quick way of assessing whether a market position statement, which summarises the supply and demand in a local area or region, covers the right areas and the extent to which it is market facing. It can be used to review statements which take account of all ages across the whole system, such as health, education, social care, housing and communities. The checklist can be used by local areas use it to review their own market position statements and could also be used as part of a wider discussion with neighbouring authorities. (Edited publisher abstract)
Dignity in health care for people with learning disabilities
- Author:
- HARDY Steve
- Publisher:
- Royal College of Nursing
- Publication year:
- 2017
- Pagination:
- 26
- Place of publication:
- London
- Edition:
- 3rd ed.
This guidance aims to improve dignity in health care for people with learning disabilities. It is designed primarily to support the nursing workforce but may also be useful for other health care and social care staff. The publication focuses on the experiences of people with learning disabilities, areas for improvement in relation to dignity, practical ideas on what nurses can do to improve dignity and sources of further information and support. It covers the importance of understanding people's health needs, respecting individuals, getting to know the person, having choices making decisions, feeling safe and communication. It also includes information relating to the particular health needs that people with learning disabilities may have, and provides guidance on working in collaboration with other service providers. It also includes good practice examples. The guide has been developed with the involvement of people with learning disabilities who use health care services in South East London, who shared their experiences at 3 focus group meetings. (Edited publisher abstract)
Helping me to 'do my thing': tips for Kirkless health and social care professionals supporting people with a learning disability and/or autism
- Author:
- COMMUNITY CATALYSTS
- Publisher:
- Community Catalysts
- Publication year:
- 2017
- Pagination:
- 6
- Place of publication:
- Harrogate
This document forms one part of the legacy of Do Your Thing, a project with a focus on people with a learning disability and/or autism who don’t use social care services. The document takes the approaches developed by Do Your Thing and the lessons learned and turns them into top tips. These tips are designed for health and social care professionals who are supporting people with a learning disability and/or autism to set up their own group, develop their own enterprise or more generally ‘do their thing’. Key tips include: find a way to connect with me; don’t judge me just on my case notes or history; don’t underestimate me; focus on things I am good at; show me the possibilities and potential; help me think things through and plan; work at my pace; help me find people who will support me; and capture stories, outcomes and impact. (Edited publisher abstract)
Health charter for social care providers
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- London
A charter for adult social care providers and staff providing information about the steps they can take to improve the health and wellbeing of people with learning disabilities and improve their access good healthcare. The charter list a number of pledges and specific actions for staff. (Edited publisher abstract)
Adult - community CRT. Workbook 1: Care and Treatment Review (CTR): key lines of enquiry
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 23
- Place of publication:
- London
A workbook for panel members to record their findings during a Care and Treatment Review (CTR) for adults with autism or learning disabilities in the community. The workbook is based on the key lines of enquiry (KLOE) and shows what sort of questions to ask and where to find evidence. It also provides space to record findings and to record what you think if the person’s quality of care overall for each KLOE. The KLOEs, are: Does the person need to be in hospital?; Is the person receiving the right care and treatment?; Is the person involved in their care and treatment?; Are the person’s health needs known and met?; Is the use of any medicine appropriate and safe?; Is there a clear, safe and proportionate approach to the way risk is assessed or managed?; Is there active planning for the future and for discharge?; and Are family and carers being listened to and involved? It will also help with deciding what goes into the CTR report. It is one of a series of 6 workbooks, which each cover different types of CTR and Care, Education and Treatment Review panels. (Edited publisher abstract)
Accessing social care and health services in Wales
- Author:
- CARDIFF UNIVERSITY. School of Law and Politics
- Publisher:
- Mencap
- Publication year:
- 2017
- Pagination:
- 61
- Place of publication:
- Cardiff
- Edition:
- Version 2
This toolkit provides information and advice on access and entitlements to health and social care services for people with learning disabilities in Wales. The guide aims to help people are acting as learning disability advocates, including parents, carers, volunteers or professionals by providing them with clear information. The toolkit is divided into three parts: the duties and obligations of local authorities to assess and provide social care and support services; the duties of local health boards to provide health care services, including community-based services and assessing mental capacity; and information about challenging decisions about health and care services. The guide includes links to resources and an additional resources section which provides details of organisations providing information relating to social and health care provision. (Edited publisher abstract)