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Delivering high quality end of life care for people who have a learning disability: resources and tips for commissioners, service providers and health and social care staff
- Authors:
- NHS ENGLAND, PALLIATIVE CARE FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 57
- Place of publication:
- Redditch
This ‘top tips’ guide aims to support commissioners, providers and clinicians to reduce inequalities in palliative and end of life for people with a learning disability, focusing on ‘The Ambitions for Palliative and End of Life Care’. These six ambitions, which provide a framework for national and local health and care system leaders to take action to improve palliative and end of life care, are: Each person is seen as an individual; Each person gets fair access to care; Maximising comfort and wellbeing; Care is coordinated; All staff are prepared to care; Each community is prepared to help. This document sets how to achieve each ambition, signposts relevant tools and resources and provides good practice examples. (Edited publisher abstract)
Making written information easier to understand for people with learning disabilities: guidance for people who commission or produce easy read information: revised edition 2010
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2010
- Pagination:
- 37p.
- Place of publication:
- London
- Edition:
- Rev. ed.
Good practice guidance on commissioning and preparing easy read information for people with learning disabilities. Main areas covered include: defining easy read, commissioning material, and involving people with learning disabilities. Short case study examples are included. An additional section briefly covers other formats, such as audio, video/DVD, or interactive CD-ROMs or webpages. Annexes cover: Guidelines for producing Easy Read; Supplementary guidelines for professional typesetting and printing. The document is primarily at local and national public sector organisations who produce public information specifically for people with learning disabilities.
Using person centred thinking in continuing care
- Author:
- HELEN SANDERSON ASSOCIATES
- Publisher:
- Helen Sanderson Associates
- Publication year:
- 2010
- Pagination:
- 4p.
- Place of publication:
- Stockport
This case study describes how person centred thinking tools are being used in Wiltshire Primary Care Trust to help managed the health care of people with learning disabilities in a more person-centred way. The tools used include one page profiles, decision making agreements, learning logs, communications charts and risk assessments.
Good Learning Disability Partnership Boards: 'making it happen for everyone'
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2009
- Pagination:
- 38p.
- Place of publication:
- London
This good practice guidance has been developed to help Learning Disability Partnership Boards to oversee the monitoring and delivery of Valuing People Now. The contents includes local governance arrangements, membership of Partnership Boards, good and effective meetings, work programmes, performance and financial management, and communication and awareness raising. Best practice examples and a self-assessment template setting out the range of local data that Partnership Boards can access to inorder to assess progress locally are also provided.
Have we learned the lessons from Steven Hoskin's murder?
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2020
- Pagination:
- 12 mins
- Place of publication:
- London
This film focuses on the lessons learned from Steven Hoskin’s murder. Steven Hoskin was tortured and murdered by people who targeted him because of his learning disabilities. The serious case review into Steven’s murder found there had been serious failings by the agencies that should have been protecting him, but they had subsequently made significant improvements. Professor Michael Preston-Shoot and Hugh Constant indicate that although we have moved forward, many of the problems still persist. They say for real progress, we should be addressing key themes for development: information sharing and joint working; partnership working; legal literacy and proper training; and convening the system. Getting it right at strategic level, is absolutely key to ensuring every other level, in each partner agency, is able to contribute to good-quality multi-agency working. Key messages for practice are included. (Edited publisher abstract)
Supporting adults with learning disabilities to have better lives
- Author:
- LOCAL GOVERNMENT ASSOCIATION
- Publisher:
- Local Government Association
- Publication year:
- 2021
- Place of publication:
- London
This outcomes and improvement framework aims to help directors of adult social services work with their colleagues and partners to identify how they can improve how they support adults with learning disabilities and autism and how they can be assured that the care and support in their area is good value for money. Around 1.04 million people aged 15 to 64 in England have learning disabilities or autism or learning disabilities and autism. This group experience disproportionate levels of inequality and their quality of life outcomes are lower than it is reasonable to expect in the 21st Century. The framework is principally aimed at addressing services for adults with a learning disability and young people in transition from children’s services to adult services. This includes autistic people who also have a learning disability. The framework consists of six domains: provide systems leadership, governance and management arrangements; understand demand and use prevention and early interventions effectively including transitions; enable a care and support system that supports adults with LD&A to have a good quality of life; develop the local workforce to have the capacity and capability needed to support adults with LD&A needs; support adults with LD&A to stay safe, i.e. live the lives they want to; and operate efficient and accessible business systems and processes that ensure value for money. (Edited publisher abstract)
Winterbourne View review: good practice examples
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2012
- Pagination:
- 81p.
- Place of publication:
- London
Opened in December 2006, Winterbourne View was a private hospital owned and operated by Castlebeck Care Limited. It was designed to accommodate 24 patients in two separate wards, and was registered as a hospital providing assessment, treatment and rehabilitation for people with learning disabilities. It closed in June 2011 after the Panorama investigation. The government review found that Patients stayed at Winterbourne View for too long and were too far from home – the average length of stay was 19 months. Almost half of patients were more than 40 miles away from where their family or primary carers lived. There was an extremely high rate of ‘physical intervention’ – well over 500 reported cases of restraint in a fifteen month period. Multiple agencies failed to pick up on key warning signs – nearly 150 separate incidents – including A&E visits by patients, police attendance at the hospital, and safeguarding concerns reported to the local council – which could and should have raised the alarm. This good practice example document pulls together a number of good practice examples sent in by stakeholders and people who use services across England.
Homes not hospitals
- Author:
- BRITISH ASSOCIATION OF SOCIAL WORKERS
- Publisher:
- British Association of Social Workers
- Publication year:
- 2021
- Place of publication:
- Birmingham
Key documents to support social workers to work preventatively, strengthen legal literacy and more specialised ways of working to avoid admissions to hospital, support, advocate and challenge on behalf of people currently in assessment and treatment units or restrictive settings to enable a return to home as soon as possible. Resources include: best practice commissioning with citizens and communities statement; the role of the social worker and legal literacy; examples of good practice; top tips for social workers. (Edited publisher abstract)
Positive practice, positive outcomes: a handbook for professionals in the criminal justice system working with offenders with learning disabilities
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2011
- Pagination:
- 61p.
- Place of publication:
- London
This best practice handbook provides information, practical advice, sign-posting and best practice examples for criminal justice professionals working with offenders with learning disabilities and learning difficulties. This group includes police suspects and defendants in court. The handbook is intended as an introduction to this work and covers the essential information to help staff identify, communicate with, understand and support this group of people. It also covers relevant legislation that outlines the duties and obligations of criminal justice staff, and also health and social care staff, with regards to offenders with learning disabilities. Much of the advice and legislation covered is also relevant when working with offenders with communication problems and that may affect a person’s ability to cope in the criminal justice system. These include autism, Asperger Syndrome, ADHD (attention deficit hyper-activity disorder), and specific learning difficulties (such as dyslexia).
Person centred thinking and end of life care
- Author:
- HELEN SANDERSON ASSOCIATES
- Publisher:
- Helen Sanderson Associates
- Publication year:
- 2010
- Pagination:
- 2p.
- Place of publication:
- Stockport
This case study describes the use of person centred approaches by a Wiltshire-based nursing team to personalise the end of life care for people with learning disabilities. Two members of staff describe their use of a tool that considered separately what people liked and wanted so they can be happy and content (for example, keeping up the activities they enjoy) and what they needed to ensure health and safety (for example, appropriate care).