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Peer-reviewed articles on inclusive research: do co-researchers with intellectual disabilities have a voice?
- Authors:
- STRNADOVA Iva, WALMSLEY Jan
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(1), 2018, pp.132-141.
- Publisher:
- Wiley
Background: Inclusive research is increasingly common in intellectual disabilities research, but ways in which voice of co-researchers with intellectual disabilities is presented remain underexplored in the literature. Materials and Method: The authors conducted a literature review and analysis of peer-reviewed journal articles reporting on inclusive research. The aim was to explore the ways the voices of co-researchers with intellectual disabilities are represented in published peer-reviewed journal articles. Results: The findings indicate that there are a wide range of ways in which inclusive research projects are reported in peer-reviewed journals. However, the experiences, views and opinions of co-researchers are often either absent or very selectively reported. Conclusions: The article concludes that although inclusive research has proliferated in the 21st century, more attention needs to be paid to the ways in which the voices of co-researchers with intellectual disabilities are heard in formal academic contexts. Guidelines for future practice are offered. (Publisher abstract)
Commentary on “Enabling access to information by people with learning disabilities”
- Author:
- WALMSLEY Jan
- Journal article citation:
- Tizard Learning Disability Review, 18(1), 2013, pp.16-19.
- Publisher:
- Emerald
The author offers a commentary on Oldreive and Waight's article (Ibid p.5) on enabling access to information by people with learning disabilities. The article reflects on the issues raised by this paper, drawing on 25 years' experience and research and concludes that accessible information needs to be tailored to the individual and part of a wider approach to improving access. As the original paper states, formats for information provision need to be tailored to individual abilities and practitioners should not rely on “easy read”. The author notes that it is unlikely that any technology will replace support from skilled people and provides a reminder that translating information does not equate to inclusion.
Inclusive learning disability research: the (nondisabled) researcher's role
- Author:
- WALMSLEY Jan
- Journal article citation:
- British Journal of Learning Disabilities, 32(2), June 2004, pp.65-71.
- Publisher:
- Wiley
Explores the role of the nondisabled researcher who supports inclusive research in learning disability. Argues for more transparency about the role in order to highlight the challenges of working inclusively on research projects, the real contribution of people with learning difficulties to research, and the training/support implications of working inclusively.
The development of community care for people with learning disabilities 1913 - 1946
- Authors:
- WALMSLEY Jan, ROLPH Sheena
- Journal article citation:
- Critical Social Policy, 21(1), February 2001, pp.59-80.
- Publisher:
- Sage
This article explores from an historical perspective the emerging debates on the similarities and differences between community care and institutional care. While institutional care has been widely condemned, community care has been welcomed as offering greater opportunities for adults who have long term care needs. The article argues, however, that it is more helpful to regard institutional and community care as a continuum, and draw on ongoing research into the history of community care for people with learning difficulties to show that community care has a longer history than has widely been assumed, and that some forms of community care were as much motivated by a desire to control as they were by a wish to provide care. The article ends with some consideration of the relevance of such historical studies for modern understandings of community care.
Using autobiographical approaches with people with learning difficulties
- Authors:
- ATKINSON Dorothy, WALMSLEY Jan
- Journal article citation:
- Disability and Society, 14(2), March 1999, pp.203-216.
- Publisher:
- Taylor and Francis
Biography and autobiography have been used in numerous ways to represent people with learning difficulties. This article reviews a variety of approaches to biography and autobiography with people with learning difficulties, and discusses the roles researchers play. Ends with a discussion of the potential of autobiography as a means to change the power relationships in disability research.
Helping ourselves
- Author:
- WALMSLEY Jan
- Journal article citation:
- Community Care, 1.6.95, 1995, pp.26-27.
- Publisher:
- Reed Business Information
Reports on Equal People, a course produced by the Open University in partnership with Mencap and People First. The course is unique in that it is open to everyone, including people with learning difficulties. Describes the aims of the course.
An investigation into the implementation of Annual Health Checks for people with intellectual disabilities
- Author:
- WALMSLEY Jan
- Journal article citation:
- Journal of Intellectual Disabilities, 15(3), September 2011, pp.157-166.
- Publisher:
- Sage
- Place of publication:
- London
People with intellectual disabilities are amongst the most disadvantaged groups in terms of health outcomes. To counteract this, regular screening of people with intellectual disabilities was introduced in 2008, with general practitioner (GP) practices financially incentivised to offer these Annual Health Checks (AHCs). Uptake of the health checks has been variable, with a national average of 41%. The aim of this project was to investigate the implementation of AHCs for people with intellectual disabilities in Oxfordshire, where only 26.1% of AHCs were completed in 2009–10. Visits were conducted to 6 GP practices where GPs had attended the AHC training and interviews were conducted with GPs who undertook health checks. In addition, the perspectives of people with intellectual disabilities were obtained through work with the ‘My Life My Choice’ self-advocacy group. This study found that slow progress in implementing AHCs was attributable to: uncertainty over who was eligible; limited awareness in general practices about the legal duty to make ‘reasonable adjustments’ to facilitate access; limited awareness of AHCs and their potential benefits amongst carers and adults with intellectual disabilities; and in some cases scepticism that AHCs were either necessary or beneficial. The article also explores the benefits of undertaking this project in partnership with a self-advocacy group.
Adulthood and people with mental handicaps: report of a research project
- Author:
- WALMSLEY Jan
- Journal article citation:
- Mental Handicap Research, 4(2), 1991, pp.141-154.
- Publisher:
- BIMH Publications
Describes a small project which used research interviews to discover the meaning of adulthood to the research participants, five adults with mental handicaps. The project set out to design a research process which would respect their status as adults. The paper focuses on the research process, and the merits and difficulties of the approach are discussed in the context of research methodologies which emphasise the need to redress the power imbalance inherent in more traditional methods.
The added value of inclusive research
- Authors:
- WALMSLEY Jan, STRNADOVA Iva, JOHNSON Kelley
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(5), 2018, pp.751-759.
- Publisher:
- Wiley
Background: The study asks when does inclusive research add value? The authors argue that this is important, given the additional time and cost of co‐researching with people with intellectual disabilities. The study is situated in debates about a “second generation” of inclusive research which advocates focussing more on outcomes than process. The authors argue that this is premature, rather the authors propose that inclusive research is valuable when it helps to recognize, foster, and above all communicate the contributions people with intellectual disabilities can make. Method: The authors conducted a literature review of 52 peer‐reviewed journal articles about inclusive research and analysed them. Results: The authors conclude that inclusive research adds value when there is a distinctive contribution which only co‐researchers with intellectual disabilities can make, when it highlights the contributions people with intellectual disabilities make, and when it contributes to better lives for the wider population of people with intellectual disabilities. Conclusions: The authors propose a revised definition of inclusive research to replace that published by Walmsley and Johnson in 2003. (Edited publisher abstract)
What stops doctors doing annual health checks?
- Authors:
- WALMSLEY Jan, et al
- Journal article citation:
- Learning Disability Today, June 2011, pp.30-33.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Annual health checks for people with learning disabilities were introduced in 2009. The findings of research into GP's experiences of offering annual health checks in Oxfordshire are reported. Of the six GP's interviewed only two practices had completed checks for over 50% of the people eligible. My Life My Choice champions, all people with learning disabilities, also visited three of the six practices and reported on the welcome they received.