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Learning Disability Mortality Review (LeDeR) Programme: action from learning
- Authors:
- NHS ENGLAND, NHS IMPROVEMENT
- Publishers:
- NHS England, NHS Improvement
- Publication year:
- 2019
- Pagination:
- 35
- Place of publication:
- London
This report provides examples of the local changes that have been made to services so far and highlights the extensive work which is happening nationally in response to common themes raised through Learning Disability Mortality Review (LeDeR) programme carried out between spring 2018 and spring 2019. The LeDeR programme was established in May 2015 to support local areas across England to review the deaths of people with a learning disability, to learn from those deaths and to put that learning into practice. There is growing recognition across the health and social care sector of the inequalities faced by people with a learning disability and their families. The LeDeR programme is opening conversations with a wide range of professionals who may have never previously considered the challenges faced by people with a learning disability and their families, either because they are perceived to be served mainly by specialist learning disability services or professionals did not have sufficient awareness of the need for reasonable adjustments. This growing recognition is, in part, attributable to the tireless campaigning of families whose loved ones have died a potentially premature death. The LeDeR programme has introduced clear expectations relating to mortality review and NHS England and NHS Improvement are committed to ensuring that, moving forward, LeDeR reviews are completed in a timely way and lead to tangible service improvements. (Edited publisher abstract)
Delivering high quality end of life care for people who have a learning disability: resources and tips for commissioners, service providers and health and social care staff
- Authors:
- NHS ENGLAND, PALLIATIVE CARE FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 57
- Place of publication:
- Redditch
This ‘top tips’ guide aims to support commissioners, providers and clinicians to reduce inequalities in palliative and end of life for people with a learning disability, focusing on ‘The Ambitions for Palliative and End of Life Care’. These six ambitions, which provide a framework for national and local health and care system leaders to take action to improve palliative and end of life care, are: Each person is seen as an individual; Each person gets fair access to care; Maximising comfort and wellbeing; Care is coordinated; All staff are prepared to care; Each community is prepared to help. This document sets how to achieve each ambition, signposts relevant tools and resources and provides good practice examples. (Edited publisher abstract)
Learning disability mortality review (LeDeR): action from learning report 2020/21
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2021
- Pagination:
- 60
- Place of publication:
- Redditch
The fifth annual University of Bristol LeDeR report considers reviews of deaths notified to LeDeR in the calendar years 2018 to 2020, summarises what is working well and makes recommendations to address inequalities and prevent premature mortality among people with a learning disability. This action from learning report highlights some of the many activities and measures health and social care services have put in place since our last report in July 2020, both locally and nationally. It also updates the commitments that we made in both that report and the COVID-19 action from learning report, published in November 2020. The report covers: COVID-19, including Covid vaccination programme and adapting in lockdown; management of medical conditions – respiratory conditions, seasonal flu vaccination, cardiac care, identifying deterioration/sepsis, diabetes, constipation, cancer, epilepsy; and changing how we work – Do Not Attempt Cardio Pulmonary Resuscitation, end of life care, reasonable adjustments, annual health checks (AHCS), STOMP-STAMP (medication), inequalities for people from minority ethnic communities. (Edited publisher abstract)
Learning Disability Mortality Review (LeDeR) programme: action from learning report 2019/2020
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2020
- Pagination:
- 50
- Place of publication:
- Redditch
This action from learning report details some of the work that has taken place across the NHS over the past year as part of the Learning Disability Mortality Review (LeDeR) programme and in response to findings from reviews of deaths, with further examples provided via the Learning Disability Mortality Network on NHS Futures. LeDeR was commissioned in 2015 with the aim of contributing to the improvement of quality of care and health outcomes for people with a learning disability. The report contains information and examples of good practice at both a national and local level to show the things that have been learnt from the reviews so far of deaths of people with a learning disability and the changes that have happened and are planned as a result of that learning. The report also provides details of the actions taken to address the key clinical priorities identified in the LeDeR learning report 2019/2020, namely: respiratory conditions, sepsis, reducing hospital admissions for people with complex care needs, constipation and cancer screening. (Edited publisher abstract)