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The Confidential Inquiry into the deaths of people with learning disabilities - the story so far
- Authors:
- HESLOP Pauline, MARRIOTT Anna
- Journal article citation:
- Tizard Learning Disability Review, 16(5), 2011, pp.18-25.
- Publisher:
- Emerald
A Confidential Inquiry to review the deaths of all people with learning disabilities from the age of 4 onwards in Gloucestershire and the Avon area, and to determine whether the deaths of people with learning disabilities are premature or not, was commissioned by the Department of Health in 2010. Its main aim is to improve the standard and quality of care for people with learning disabilities and ultimately their health outcomes. It has been commissioned to run until March 2013. This paper by 2 participants in the work of the Confidential Inquiry outlines the process, covering the background, the team, and the inquiry aims, scope and methodology. It also discusses issues faced in conducting the Confidential Inquiry, including engaging with and involving professionals, maintaining confidentiality, and the tension between wanting to base the findings on a sufficiently large number of cases so that the findings are robust and reliable but also wanting to make immediate changes to any potentially modifiable factors found to contribute to the deaths of people with learning disabilities. The step-by-step process adopted in the inquiry is illustrated in an appendix.
Supporting people with learning disabilities who self-injure
- Author:
- HESLOP Pauline
- Journal article citation:
- Tizard Learning Disability Review, 16(1), January 2011, pp.5-15.
- Publisher:
- Emerald
Despite large amounts of research conducted on self-injury in people with learning disabilities, little has addressed the perspectives of those with disabilities, and what they view as most helpful. This article, citing results from the Hidden Pain project which examined the views of those with learning disabilities on their self-injury, reports on the support that people with learning disabilities who self-injure say they have found, or would find, helpful in relation to their self-injury. Themes that emerged from people with learning disabilities, including those who use little or no verbal communication, is that they want opportunities to communicate their feelings and to be listened to. The paper concluded that being open to listening and developing one's own communication skills was essential for supporters of people with learning disabilities who self-injure to help this group.