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Resilience in families with children and adult members with intellectual disabilities: tracing elements of a psycho-social model
- Authors:
- GRANT Gordon, RAMCHARAN Paul, FLYNN Margaret
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 20(6), November 2007, pp.563-575.
- Publisher:
- Wiley
This paper seeks to illumine how families with children and adult members with intellectual disabilities manage to manifest a buoyant and durable capacity over time. It is therefore concerned centrally with the idea of resilience. Drawing from diverse theoretical literatures from child development and protection and gerontology, the paper begins with a review of constructions of resilience. In an attempt to assess where there seems to be support for resilience in families, the core of the paper tests empirical evidence about positive experiences of families supporting children and adults with intellectual disabilities against the theoretical literature on resilience. The findings are used to suggest conditions under which resilience is produced and maintained, and to identify emergent elements of a psycho-social model of resilience in families with children and adult members with intellectual disabilities.
Participation in health care decision-making by adults with learning disabilities
- Authors:
- FOVARGUE Sara, KEYWOOD Kirsty, FLYNN Margaret
- Journal article citation:
- Mental Health and Learning Disabilities Care, 3(10), June 2000, pp.341-344.
- Publisher:
- Pavilion
Reports the findings of a qualitative study into decision-making on health care issues by people with learning disabilities. It suggests that they are largely excluded from the process, and that this contributes to the known difficulties in obtaining equity of access.
"We will remember Steven”: Cornwall after 'the murder of Steven Hoskin: a serious case review’
- Author:
- FLYNN Margaret
- Journal article citation:
- Journal of Adult Protection, 12(2), May 2010, pp.6-18.
- Publisher:
- Emerald
This author (chair of Lancashire County Council’s Adult Safeguarding Board), had been invited by the director of Cornwall County Council’s (CCC) adult social care department, following publication of ‘The murder of Steven Hoskin: a serious case review’ (SCR) in 2007, “to restore public confidence ... and provide ... an evidence based assessment of ... progress” on the SCR recommendations for system-wide and agency-specific changes to improve the safeguarding of young people with learning disabilities in England. She details written documentation from each agency in contact with Steven and the people who moved into his bedsit, and who submitted to the management reviews required by the SCR. In addition she interviewed over 40 boardroom representatives, middle managers and frontline personnel from each of the 9 children’s and adult social care, Primary Care Trust, NHS, police, adult protection, young offender, youth work, housing and tenant agencies involved, in December 2008. The text describes “something of their work priorities and ... programmes since” and is punctuated by quotes from staff. Under two headings, ‘agency-specific actions’ and system-wide actions’, the author reviews the SCR recommendations, the agencies’ action plans, and documents actions completed across and within agencies. She reports significant progress in terms of attitude, and reforming work methodology, but says there are still challenges to overcome.
Please don't let it happen on my shift. Supporting staff who are caring for people with learning disabilities who are dying
- Authors:
- BROWN Hilary, BURNS Sophie, FLYNN Margaret
- Journal article citation:
- Tizard Learning Disability Review, 8(2), April 2003, pp.32-41.
- Publisher:
- Emerald
Reports on a qualitative study of services that have cared for a person with learning disabilities during a terminal illness. The project was based on a series of case studies, twenty-one individual case studies were included from twelve different services. Interviews were also carried out with staff, relatives and service users. The research reflects current concern about access to health care as well as the national priority being placed on improvements in cancer services for all patients. The study documents how the service learned of the person's illness, how they mobilised services and made decisions, how effectively agencies worked together and what support staff needed in the person's last months and weeks. It also considers the way staff, as individuals and teams, made sense of their experience and evaluated the input of other professionals. The article looks at two cases in detail to highlight the findings.