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Shifting responsibilities: the patterns of formal service use by older people with intellectual disability in Victoria
- Author:
- BIGBY Christine
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 23(3), September 1998, pp.229-243.
- Publisher:
- Taylor and Francis
As adults with intellectual disability age and inevitably lose support provided by parents, many will become more reliant on formal services. Potentially they can utilise both the aged care and the disability service systems, although neither have explicit policies in relation to this group. This qualitative study in Australia examined the patterns of service use by older people with intellectual disability.
Parental Substitutes? The role of siblings in the lives of older people with intellectual disability
- Author:
- BIGBY Christine
- Journal article citation:
- Journal of Gerontological Social Work, 29(1), 1998, pp.3-21.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This Australian study examined the roles that siblings played in the lives of older people with intellectual disability and factors affecting this. Nearly half the sample had a sibling who acted as their primary carer after the death of the parents. However, in most cases this was not a permanent arrangement. In the long term a majority of older people did have a sibling who took responsibility for their well-being and played strong advocacy, mediator and supervisory roles. Fulfilment of such roles was associated with a lifelong close relationship between siblings.