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Improving quality of life outcomes in supported accommodation for people with intellectual disability: what makes a difference?
- Authors:
- BIGBY Christine, BEADLE-BROWN Julie
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(2), 2018, pp.e182-e200.
- Publisher:
- Wiley
Background: The quality of life (QOL) of people with intellectual disability living in supported accommodation services is variable, influenced by many possible factors. Various frameworks have attempted to identify these factors without assigning value, direction of influence or relative impact on outcomes. Methods: A realist review of the literature aimed to expose different propositions about variables influencing QOL outcomes and review the strength of supporting evidence for these, to identify their relative influence. Evidence was reviewed for and against each of five clusters. Results: Evidence was strongest for the presence of staff practices (use of Active Support), front-line management practice (use of practice leadership), culture (enabling and motivating), human resources policies and practice (that support front-line leaders and recruitment of staff with the right values), adequate resources, and small, dispersed and homelike settings. Conclusions: The evidence informs policy and practice but in some clusters remains limited, warranting further research which measures outcomes on all QOL domains. (Publisher abstract)
Engagement of people with long-term conditions in health and social care research: barriers and facilitators to capturing the views of seldom-heard populations
- Authors:
- BEADLE-BROWN Julie, et al
- Publisher:
- Quality and Outcomes of Person-centred Care Policy Research Unit
- Publication year:
- 2012
- Pagination:
- 56
- Place of publication:
- Canterbury
Explores the recent literature on barriers and facilitators to including seldom heard groups as participants in research. Eighteen databases were identified for the final search, and 83 papers included in the review. These predominantly focused on four categories as being difficult to reach or engage in research: intellectual disability, older adults, in particular those with dementia, mental health conditions and minority ethnic groups. Almost half the papers reviewed focused on those with intellectual disabilities. A key barrier to inclusion was the assumptions made by various people (researchers, gatekeepers, ethics committees, funders and so on) involved at each stage of the research process, including research design, ethics and recruitment. The paper suggests that there has been limited progress in developing methods to systematically include these groups in recent years and that there is a need for more research exploring the use of alternative techniques for eliciting responses. (Edited publisher abstract)