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Delivering high quality end of life care for people who have a learning disability: resources and tips for commissioners, service providers and health and social care staff
- Authors:
- NHS ENGLAND, PALLIATIVE CARE FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 57
- Place of publication:
- Redditch
This ‘top tips’ guide aims to support commissioners, providers and clinicians to reduce inequalities in palliative and end of life for people with a learning disability, focusing on ‘The Ambitions for Palliative and End of Life Care’. These six ambitions, which provide a framework for national and local health and care system leaders to take action to improve palliative and end of life care, are: Each person is seen as an individual; Each person gets fair access to care; Maximising comfort and wellbeing; Care is coordinated; All staff are prepared to care; Each community is prepared to help. This document sets how to achieve each ambition, signposts relevant tools and resources and provides good practice examples. (Edited publisher abstract)
National Mental Capacity Forum: Chair's annual report 2017
- Author:
- FINLAY Baroness
- Publisher:
- Great Britain. Her Majesty's Government
- Publication year:
- 2018
- Pagination:
- 41
- Place of publication:
- London
Annual report of the Chair of the National Mental Capacity Forum, covering the Forum’s work over the year, the Chair’s priorities for the coming year, and details of Forum members. Each chapter describes the achievements and ongoing work against the four priorities for 2017: Improving understanding; Hearing the voice of the person; Supporting carers; and Reducing and preventing exploitation. Achievements include the development of guidelines and training material for front line staff in the financial and banking sector and increased awareness of fraud and scam and the risks for people ‘in vulnerable circumstances.’ The report includes illustrative good practice examples of initiatives relevant to the implementation of the Mental Capacity Act. (Edited publisher abstract)
People with dementia and learning disabilities: reasonable adjustments
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2018
- Place of publication:
- London
This guide aims to help staff in public health, health services and social care to provide services that are accessible to people with learning disabilities that have or are at risk of developing dementia. It summarises current evidence and highlights policy and guidelines relating to people with learning disabilities and dementia. It includes links to a wide range of online resources, including those specifically about dementia in people with learning disabilities and to easy-read resources and apps related to dementia in general. The guide also includes case studies and examples of reasonable adjustments to services made in relation to people with learning disabilities and dementia. (Edited publisher abstract)
Supporting parents who have learning disabilities: strategic briefing
- Authors:
- TURNEY Danielle, TARLETON Beth, TILBURY Nadine
- Publishers:
- Research in Practice, Research in Practice for Adults
- Publication year:
- 2018
- Pagination:
- 32
- Place of publication:
- Dartington
An overview of the available evidence on 'what works' in working with parents who have a learning disability, including case study examples of good practice. The briefing aims to enable strategic leaders to: understand the practice tensions in this area, become familiar with the key research, and gain a greater understanding as to what will best support parents who have a learning disability. (Edited publisher abstract)
Dignity in health care for people with learning disabilities
- Author:
- HARDY Steve
- Publisher:
- Royal College of Nursing
- Publication year:
- 2017
- Pagination:
- 26
- Place of publication:
- London
- Edition:
- 3rd ed.
This guidance aims to improve dignity in health care for people with learning disabilities. It is designed primarily to support the nursing workforce but may also be useful for other health care and social care staff. The publication focuses on the experiences of people with learning disabilities, areas for improvement in relation to dignity, practical ideas on what nurses can do to improve dignity and sources of further information and support. It covers the importance of understanding people's health needs, respecting individuals, getting to know the person, having choices making decisions, feeling safe and communication. It also includes information relating to the particular health needs that people with learning disabilities may have, and provides guidance on working in collaboration with other service providers. It also includes good practice examples. The guide has been developed with the involvement of people with learning disabilities who use health care services in South East London, who shared their experiences at 3 focus group meetings. (Edited publisher abstract)
Helping me to 'do my thing': tips for Kirkless health and social care professionals supporting people with a learning disability and/or autism
- Author:
- COMMUNITY CATALYSTS
- Publisher:
- Community Catalysts
- Publication year:
- 2017
- Pagination:
- 6
- Place of publication:
- Harrogate
This document forms one part of the legacy of Do Your Thing, a project with a focus on people with a learning disability and/or autism who don’t use social care services. The document takes the approaches developed by Do Your Thing and the lessons learned and turns them into top tips. These tips are designed for health and social care professionals who are supporting people with a learning disability and/or autism to set up their own group, develop their own enterprise or more generally ‘do their thing’. Key tips include: find a way to connect with me; don’t judge me just on my case notes or history; don’t underestimate me; focus on things I am good at; show me the possibilities and potential; help me think things through and plan; work at my pace; help me find people who will support me; and capture stories, outcomes and impact. (Edited publisher abstract)
Preparing for adulthood: The role of social workers
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2019
- Pagination:
- 53
- Place of publication:
- London
This guide, commissioned by the Office of the Chief Social Worker for Adults, looks at what social workers need to do to help young people with learning disabilities prepare for adulthood. It provides a practice framework for social workers and their employers to use when supporting people to prepare for adulthood. The framework consists of five elements: Having the right conditions in place; Underpinning knowledge; The right values, skills and attributes; Supporting the person through the system; and Focus on the young person. For each element in the framework, the guide explores the context in which social workers are operating, what can be done to overcome the challenges, and identifies pointers towards a better way of doing things. Where appropriate, each section includes people's stories, and resources and tools for social workers to consider in their practice. The guide also includes a review of policy and practice guidance relating to preparing for adulthood and a checklist of what a social worker will need to do and have in place to support young people effectively. The guide builds on work carried out by Innovation Unit and the Social Care Institute for Excellence, looking at whether a Named Social Worker approach might improve support to people with learning disabilities. (Edited publisher abstract)
Smiling matters: oral health care in care homes
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2019
- Pagination:
- 34
- Place of publication:
- Newcastle upon Tyne
This review draws on one hundred inspections of care homes in England to examine oral health in care homes, with specific reference to the NICE guideline NG 48 on oral health for adults in care homes. It includes direct quotations from managers, staff and people using services and their relatives. It also includes good practice examples to highlight the benefits of good oral care for older people, people with learning disabilities and people living with dementia. The review found that staff awareness of the NICE guideline recommendations was low, over half of care homes visited had no policy to promote and protect people’s oral health, and nearly half of care homes were not providing staff training to support people’s daily oral healthcare. The review also identified challenges such as: a lack of dentists who were able or willing to visit care homes and local dentists not accepting new patients and the length of time it took to get an appointment with an NHS dentist. The report recommends mandatory staff training in oral care, oral health check-ups for all residents upon admission, better signposting to local dental services and awareness raising. (Edited publisher abstract)
An employers guide to supported employment
- Authors:
- MELLING Kathy, TURNER Sue
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2018
- Pagination:
- 52
- Place of publication:
- Bath
This guide sets out the business case for employing people with a mental health condition, a learning disability and / or autism. It provides information to help employers understand how they can address four key employment challenges: attitudes and the social model of disability; recruitment, selection and retention; implementing reasonable adjustments; and ensuring good communication and social integration. It includes case studies and provides links to resources and more detailed case studies which set out how local areas have addressed particular issues. Each section includes a summary of action points for employers to consider. The guide is aimed at NHS and other public sector employers who have a responsibility to lead on the employment of disabled people, but it provides useful resources for all employers. (Edited publisher abstract)
Getting things changed: successful professional practice when working with parents with learning disabilities
- Authors:
- TARLETON Beth, et al
- Publisher:
- University of Bristol
- Publication year:
- 2018
- Pagination:
- 37
- Place of publication:
- Bristol
This project investigates what good support for parents with learning difficulties looked like in three Local Authorities which had specialist teams for parents with learning difficulties. It looked at how success is defined by professionals, parents with learning difficulties and children and the factors that facilitate successful practice. The project used a case study approach, and included interviews with nine parents and the 37 professionals/practitioners they had worked with. Eight service managers and one commissioner were also interviewed. It also involved two advisory groups, one of professionals and academics, and the other was a parent advisory group. The findings are identified across key themes, including: parents relationships with children’s social workers and other professionals; professionals’ views of parents with learning disabilities and concerns regarding neglect, relationship based practice, multi-agency teamwork, the role of specialist services and commissioning. (Edited publisher abstract)