Search results for ‘Subject term:"learning disabilities"’ Sort:
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Lifelines: an account of the life experiences of seven people with a mental handicap who used the NIMROD service
- Editors:
- HUMPHREYS Simone, EVANS Gerry, TODD Stuart
- Publisher:
- Kings Fund
- Publication year:
- 1987
- Pagination:
- 137p.
- Place of publication:
- London
(Uses a case-study approach to illustrate the experiences of seven users of the NIMROD service.
Hidden lives and deaths: the last months of life of people with intellectual disabilities living in long-term, generic care settings in the UK
- Authors:
- TODD Stuart, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 34(6), 2021, pp.1489-1498.
- Publisher:
- Wiley
Rationale: This paper concerns mortality and needs for end-of-life care in a population of adults with ID living in generic care homes. Methods: Various sampling strategies were used to identify a difficult to find a population of people with ID in generic care homes. Demographic and health data were obtained for 132 people with ID. This included the Surprise Question. At T2, 12 months later, data were obtained on the survival of this sample. Findings: The average age was 68.6 years, and the majority were women (55.3%). Their health was typically rated as good or better. Responses to the Surprise Question indicated that 23.3% respondents might need EoLC. At T2, 18.0% of this population had died. The average of death was 72.2 years. The majority died within the care setting (62.9%). Implications: The implications for end-of-life care and mortality research are discussed. (Edited publisher abstract)
Reflecting on change: consumers' views of the impact of the All-Wales strategy
- Authors:
- TODD Stuart, et al
- Journal article citation:
- Mental Handicap, 21(4), December 1993, pp.128-136.
- Publisher:
- British Institute of Mental Handicap
Reports on the views of users of services for people with learning difficulties in Wales living in the community.
Caring for people with learning disabilities who are dying
- Authors:
- BLACKMAN Noelle, TODD Stuart
- Publisher:
- Worth
- Publication year:
- 2005
- Pagination:
- 53p.
- Place of publication:
- London
This book is about providing good end-of-life care in learning disabilities supported living services. Death and dying are parts of our lives that resonate with meaning and emotion. This account provides is a practical introduction.
A strategy for all seasons
- Authors:
- FELCE David, BEYER Steve, TODD Stuart
- Journal article citation:
- Community Care, 3.8.95, 1995, pp.22-23.
- Publisher:
- Reed Business Information
Looks back at the history of a planned, integrated approach to learning difficulties and ask what the future holds.
Place of death of people with intellectual disabilities: an exploratory study of death and dying within community disability service settings
- Authors:
- TODD Stuart, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 25(3), 2021, pp.296-311.
- Publisher:
- Sage
- Place of publication:
- London
This article describes an exploratory study of deaths of people with intellectual disabilities (IDs) that had occurred in group homes managed by an ID service provider in Australasia. Such settings are increasingly recognised as places for both living and dying. Little is known about the extent to which they encounter the death of a person with ID and with what outcomes. Data were obtained from service records and telephone interviews on 66 deaths occurring within a 2-year period. The findings suggest that death is an important but relatively rare event within ID services. This rate of death was influenced by the age structure of the population. Most of the deaths occurred within a hospital setting. Cause of death did not have much impact upon place of death. However, setting characteristics seemed to have some influence. As an exploratory study, lessons for future population-based research in this area are addressed. (Edited publisher abstract)
Last months of life of people with intellectual disabilities: a UK population‐based study of death and dying in intellectual disability community services
- Authors:
- TODD Stuart, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 33(6), 2020, pp.1245-1258.
- Publisher:
- Wiley
Background: Population‐based data are presented on the nature of dying in intellectual disability services. Methods: A retrospective survey was conducted over 18 months with a sample of UK‐based intellectual disability service providers that supported over 12,000. Core data were obtained for 222 deaths within this population. For 158 (71%) deaths, respondents returned a supplemented and modified version of VOICES‐SF. Results: The observed death was 12.2 deaths per 1,000 people supported per year, but just over a third deaths had been deaths anticipated by care staff. Mortality patterns, place of usual care and availability of external support exerted considerable influence over outcomes at the end of life. Conclusion: Death is not a common event in intellectual disability services. A major disadvantage experienced by people with intellectual disabilities was that their deaths were relatively unanticipated. People with intellectual disabilities living in supported living settings, even when their dying was anticipated, experienced poorer outcomes. (Edited publisher abstract)
‘Being there’: the experiences of staff in dealing with matters of dying and death in services for people with intellectual disabilitie
- Author:
- TODD Stuart
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 26(3), 2013, pp.215-230.
- Publisher:
- Wiley
Research on staffed housing for people with intellectual disability has identified the challenges in achieving positive quality of life outcomes. However, a less well considered dimension of such services is that they are places of living and dying. This paper looks at the experiences of staff in dealing with issues of death and dying. In depth qualitative interviews were held with 22 staff in 5 different providers and who had experienced, in total, 27 deaths of people with intellectual disability. The data highlight that staff felt providing a good quality of care at the end of life was an important but unrecognised dimension of their work. This work could be broken down into several different phases, dying, death and beyond death. Bad deaths were felt to be those deaths which prevented staff from ‘being there’ with individuals over those phases. (Publisher abstract)
Learning Disability and Autism Network (LDAN)
- Author:
- TODD Stuart
- Journal article citation:
- Llais, 83, Spring 2007, pp.15-17.
- Publisher:
- Learning Disability Wales
The re-organisation and re-structuring of research in Wales and the creation of CRC Cymru has given rise to a new Learning Disability and Autism Network. The author discusses the developments, and looks at how this initiative could stimulate increased dialogue and discussion about learning disability research.
When it comes to dying, what difference does learning disability make?
- Author:
- TODD Stuart
- Journal article citation:
- Llais, 74, Autumn 2004, pp.6-10.
- Publisher:
- Learning Disability Wales
Outlines a research study on the effects of the death of a person with learning disability on staff and parents and the support services did or did not provide.