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Lifespan personalisation: strategic briefing
- Author:
- BENNETT Caroline
- Publisher:
- Research in Practice
- Publication year:
- 2015
- Pagination:
- 20
- Place of publication:
- Dartington
This briefing shares key research messages relating to personalisation and makes use of existing evidence to explore the challenges and opportunities of a lifespan approach to personalisation. It draws on learning from the Valuing People Annual Person-Centred Reviews programme, Getting a Life, the Transition Support programme, Children’s Individual Budget Pilot and the SEND pathfinder programme. The aligning of policy across children’s and adults’ services creates an opportunity to implement a lifespan approach to personalisation, improving outcomes for disabled children and young people, individuals and families, whilst reducing duplication and bureaucracy for the professionals working with them. For most people a ‘lifespan approach’ is simply the experience of ‘growing up’. For many disabled children and young people the experience is very different, their lives are compartmentalised into services that distinguish between children, young people and adults and the natural progression from childhood to adulthood is much more challenging as the professionals involved in their education, health and care change and have different roles depending on age. The paper addresses the following key areas: the policy context; safeguarding and personalisation; what supports good personalisation; organisational roles and responsibilities; strategic leaders; service managers; and senior professionals and social workers. The paper concludes with an outline of the next steps in developing a lifespan approach to personalisation (Edited publisher abstract)
Transition planning for disabled children: quick guide
- Author:
- HAYWARD Lynette
- Publisher:
- National Assembly for Wales. Research Service
- Publication year:
- 2012
- Pagination:
- 4p.
- Place of publication:
- Cardiff
For all young people adolescence is an important time of change and transition, when they start to make choices for their future and begin to develop independence and autonomy. Transition should be a time of positive change but for disabled teenagers it brings added challenges. The Welsh Government has sought to improve the process of transition planning for disabled young people and the consultation on its Social Services (Wales) Bill includes a proposal to give Welsh Ministers powers to specify what transitional services and assistance local authorities will be required to provide. There are problems with transition from children’s to adult services and it is also proposed that support could be considered up to the age of 21 to young people in the highest categories of need. This Quick Guide considers what factors help to achieve successful transitions for disabled young people, including the importance of multi-agency collaboration.
Personalisation in children’s social work: from family support to “the child’s budget”
- Author:
- WHITAKER Emilie Morwenna
- Journal article citation:
- Journal of Integrated Care, 23(5), 2015, pp.277-286.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to explore the changing meaning of personalisation from the New Labour era of bespoke, integrated family support to the more recent implementation of personal budgets for disabled children to deliver “choice and control”. The paper explores the discursive change from early help to “intervention”, the shifting conceptualisation of parents and the turn away from family support towards a focus upon individualised commissioning to meet needs. Design/methodology/approach: In addition to a literature review of policy shifts, findings presented are taken from an ethnographic case study of one team of children’s disability social workers. Observations were undertaken of the team in the office space and at meetings, in addition interviews were conducted with all team members and with seven families. An interpretivist and qualitative approach was adopted throughout. Findings: Findings reveal the frontline and familial challenges of delivering choice and control in a climate of austerity and child-centricism. Salient points for integration around families and between organisations as personalisation narrows in scope are also considered. Research limitations/implications: Findings are taken from one case study site; further research in different sites is required to consider the array of understandings and experiences across the social care landscape and to provide a strong empirical baseline. Originality/value: The paper reports on one of the first ethnographic studies of personalisation in children’s services. The paper is of value to practitioners and managers in social care and the NHS. It is also of value to academics exploring the conceptual and practical issues of individualised care. (Publisher abstract)
Our support, our lives: joining up the public services used by disabled people
- Author:
- DAVIES Alissa
- Publisher:
- SCOPE
- Publication year:
- 2015
- Pagination:
- 39
- Place of publication:
- London
Examines how health and social care integration can work better for working-age disabled people in the care system and applies key lessons and themes from integrated care and disabled people’s definitions of independent living to a wider range of public services. The report draws on desktop analysis of the impact of current integrated care initiatives on working-age disabled people, findings from interviews and focus groups with disabled adults, and Scope’s Better Care Project research. It argues that while the drivers behind integration have mostly been considered in the context of the ageing population the evidence strongly indicates that disabled adults should become a priority group for integrated care, alongside older people. It suggests that existing integrated care initiatives are not going far enough and considers how the Better Care Fund, Integrated Care Pioneers and Integrated Personal Commissioning can do more to improve outcomes for disabled adults. To help ensure the full potential of integrated care is full realised, the report identifies key action points on the following three fronts: incentives and rewards for independent living; a longer-term approach to risks and benefits; and making it clearer whether schemes apply to disabled adults. The report concludes that future plans for joined up support should apply the lessons from existing integrated care initiatives to the wider integrated support agenda, addressing all the barriers to independent living and encompassing education, work, volunteering, welfare and housing. (Edited publisher abstract)
Children with special educational and complex needs: guidance for Health and Wellbeing Boards
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2014
- Pagination:
- 19
- Place of publication:
- London
This document provides guidance and advice for health and wellbeing boards on how best to oversee the implementation of changes made by the Children and Families Act 2014. The Act introduces a new statutory requirement for local services to work together when providing care and support for children and young people with special educational needs (SEN) and disabilities and the HWBs are responsible for overseeing the implementation of this new requirement. The document provides hints and sources of further information which a boards can draw on with their partners. It includes questions which HWBs may wish to consider in managing their organisations, building up a picture of local needs and looking at local commissioning. (Edited publisher abstract)
Making it personal: a provider guide to personalisation, personal budgets and education, health and care plans
- Author:
- NICOLL Tricia
- Publication year:
- 2014
- Pagination:
- 63
- Place of publication:
- London
Guidance aimed at all organisations that provide support to young disabled people and children and young people with special educational needs. It is part of a suite of new guidance commissioned by the Department for Education to support the personalisation agenda and the implementation of the Children and Families Act 2014. The document illustrates the changes in practice that personalisation necessitates with examples and case studies, as well as pointing to helpful tools. The guide examines the concept of personalisation, the actors and context in which the personalisation agenda needs to operate, focusing on young people’s participation and their families, the communities in which providers operate, the wider Local Offer and commissioning strategy, and personal budgets. It then looks at the new Education, Health and Care plan process, focusing on planning for outcomes and adulthood, planning positively around risk and planning as an organisation. The document includes a section on how to go about delivering services and support to young disabled people and children and young people with special educational needs, by encouraging an organisational culture, working with commissioners, working with personal budgets and pooled budgets and supporting workers to do things differently. A final section provides guidance and resources on how to review plans and assess progress. (Edited publisher abstract)
Supporting children with special educational needs and disabilities
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2014
- Pagination:
- 19
- Place of publication:
- London
This guidance aims to help health and wellbeing boards (HWBs) support children with special educational needs and disabilities to get joined up care from local services. It provides advice on how best to oversee the implementation of changes made by the Children and Families Act 2014, which introduces a new statutory requirement for local services to work together when providing care and support for children and young people with special educational needs and disabilities. HWBs are responsible for overseeing the implementation of the new requirement, ensuring that local services are fulfilling their role and that children are getting the care they need. The guidance includes questions which an HWB may wish to consider in managing its organisation, building up a picture of local need and looking at local commissioning. (Edited publisher abstract)
From the pond into the sea: children's transition to adult health services
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2014
- Pagination:
- 76
- Place of publication:
- Newcastle upon Tyne
This themed review investigates arrangements for the transition of children with complex health needs from children's to adult services in England. Visits were made to 19 areas and 23 services were inspected. The review included young people between the ages of 14 and 25 who were receiving a children's continuing care packages, had life-limiting or life-threatening conditions, or received care from three or more multi-disciplinary health professionals are a result of long term conditions. The National Network of Parent Carer Forums outcome measures are also used as a Framework to report the findings. Findings are discussed in the following areas: the transition process, funding, transition plans, involvement and choice, carers, different health settings, training, transfer to adult services, and integrated and holistic care. Evidence of some excellent care was identified, but the review also found that young people with complex health needs did not always receive the necessary care and support when they move on to adult care services. Issues identified included children's services stopping the care they provide before adult services have started and families receiving inadequate information and support. Presents four priorities for action: commissioners and providers must involve young people and their families and understand what they want from their care; national guidance must be followed; GPs should be more involved at an earlier stage in planning for transition; and services must be tailored to meet the needs of young people transferring from children’s health services and include extra training for health care staff. Case studies and examples of good practice are included. (Original abstract)
Social work practice in the chronic care model: Chronic illness and disability care
- Author:
- FINDLEY Patricia A.
- Journal article citation:
- Journal of Social Work, 14(1), 2014, pp.85-95.
- Publisher:
- Sage
Summary: Maintaining good quality of life and health in face of living and/or aging with a chronic illness and/or disability can be challenging. The health care and related education and training of these individuals to become proactive partners in their ongoing care is the cornerstone of most chronic care models. Findings: Social workers are not specifically mentioned in most chronic care models. However, as the health and social care processes can become complicated if the individual has barriers to partnering roles necessitated by chronic care models, a role for the social worker should be more clearly defined. Examination and application of the ecosystems perspective defines a clear role for social work to work collaboratively with other health professionals within a chronic care model. Application: This paper explores how social work’s ecosystems model can interface with Wagner’s Chronic Care Model to fill the void that some individuals may experience in seeking and maintaining care to provide a useful framework to facilitate interventions within that model. (Publisher abstract)
A four-part ecological model of community-focused therapeutic recreation and life skills services for children and youth with disabilities
- Authors:
- KING G., CURRAN C.J., McPHERSON A.
- Journal article citation:
- Child: Care, Health and Development, 39(3), 2013, p.325–336.
- Publisher:
- Wiley
Aim: This article presents a four-part model of community-focused therapeutic recreation and life skills services for children's rehabilitation centres. Method and Results: The model is based on 15 years of clinical and management practice in a Canadian context combined with evidence from the literature on community-focused service delivery. The model incorporates an ecological approach and principles from models of therapeutic recreation, community capacity building, and health promotion, as well as client/family-centred care. The four pillars of the model reflect a set of integrated services and principles designed to support the participation of children and youth with disabilities in community activities. The pillars involve providing community outreach services, providing community development services, sharing physical and educational resources with community partners, and promoting the organisation as a community facility that provides adapted physical space and specialised instruction. The lessons learned in implementing the model are discussed, including the importance of ensuring the sustainability of community recreation programmes. Conclusions: The model will be of use to managers and service organisations seeking to develop an integrated programme of community-focused therapeutic recreation and life skills services based on a collaborative capacity-building approach. (Publisher abstract)