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Family carers’ experiences of nutritional care for people living with dementia at home: an interpretative phenomenological analysis
- Authors:
- MOLE Louise, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 20(1), 2021, pp.231-246.
- Publisher:
- Sage
Objectives: Few studies have captured the experiences of family carers who manage the nutritional needs of family members living with dementia at home. The identification and management of symptoms that may affect nutritional status is often reliant upon the family carer. This interpretative phenomenological study aimed to explore the experiences and perceptions of the nutritional care of people living with dementia at home from the perspectives of the family members who support them. Method: Semi-structured interviews were conducted between October 2017 and February 2018. Participants were also asked to keep a diary of experiences for two weeks before the interview. An Interpretative Phenomenological Analysis approach was used throughout. Findings: Eight participants, with a mean age of 69.6 years residing in South West England were recruited and represented a range of familial roles. Following analysis, three superordinate themes were identified: ‘becoming carer and cook’, ‘changing role and relationships’ and ‘emotional eating’. Conclusion: Family carers make food and drink decisions daily, and feel a duty to take on the responsibility for food shopping and cooking. They are conscious about ‘doing the right thing’ when it comes to providing nutritional care, and some feel uncertain about the food choices they are making, particularly regarding a reliance on convenience foods. Changes in appetite, food preferences and mealtime habits related to dementia can lead to disruption affecting the dyad. It is important that family carers and people living at home with dementia are provided with adequate support regarding identifying nutritional risks, making appropriate food and drink choices and preventing the risk of malnutrition in the dyad. (Edited publisher abstract)
Help at home: what may be available in your local area
- Author:
- COUNSEL AND CARE
- Publisher:
- Counsel and Care
- Publication year:
- 2009
- Pagination:
- 32p.
- Place of publication:
- London
User-friendly factsheet intended for enquirers, and directly relevant to older people, their families and carers. This item deals with accessing home care
Family aides : a case study
- Author:
- SELLERS C.
- Journal article citation:
- FSU Quarterly, 40, March 1987, pp.12-19.
- Publisher:
- Family Service Units
A case study describing the 'failure' of a family aide in Leeds to help a multi-problem family.
Home from home: thinking about improving home and family support services for people with mental handicaps in Alyn, Deeside and Wrexham, in Clwyd
- Author:
- TYNE A
- Publisher:
- Community and Mental Handicap Education and Research Association
- Publication year:
- 1987
- Pagination:
- 32p., tables, bibliog.
- Place of publication:
- London
Older adult caregivers of developmentally disabled household members: service needs and fulfillment
- Authors:
- CASERTA M.S., et al
- Journal article citation:
- Journal of Gerontological Social Work, 10(1/2), 1987, pp.35-50.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Reports on a survey to identify the need for formal support services.
Intensive home help and home care services: a directory
- Authors:
- CLOKE Christopher, comp
- Publisher:
- Age Concern
- Publication year:
- 1984
- Pagination:
- 45p.
- Place of publication:
- London
Involving families in care homes: a relationship-centred approach to dementia care
- Authors:
- WOODS Bob, KEADY John, SEDDON Diane
- Publisher:
- Jessica Kingsley
- Publication year:
- 2008
- Pagination:
- 143p., bibliog.
- Place of publication:
- London
Families often wrestle with the decision to move a person with dementia into a care home. The decision can be highly charged and emotional, involving feelings of loss, sadness and guilt. Moreover, developing a good relationship between the family and the care home is not an easy matter. In this accessible guide the authors take person-centred dementia care a step forward by outlining ways in which care homes can help families to become partners in the caring process. Using case examples, quotations and research-based evidence, the authors offer practical advice and good practice guidelines for supporting relatives who choose to be involved in the care of people with dementia living in a care home, as well as highlighting the value of this involvement. The book is written in an easy-to-read style and incorporates useful features such as checklists for reviewing current practices and summaries of key points for each chapter.
A recipe for care: not a single ingredient: clinical case for change
- Author:
- PHILP Ian
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2007
- Pagination:
- 8p.
- Place of publication:
- London
The reconfiguring specialist services to bring care closer to home will make a big difference to the lives of older people and their families, according to Professor Ian Philp, National Director for Older People.
Families' experiences of caring for technology-dependent children: a temporal perspective
- Authors:
- HEATON Janet, et al
- Journal article citation:
- Health and Social Care in the Community, 13(5), September 2005, pp.441-450.
- Publisher:
- Wiley
In the present study, families' experiences of caring for a technology-dependent child were examined from a temporal perspective. This involved exploring the multiple 'technological', 'social' and 'natural' rhythms and routines around which the families' lives were variously structured. A purposive sample of 36 families with technology-dependent children who used one or more medical devices on a daily basis was recruited. Devices included feeding pumps, suction machines, dialysis machines and ventilators. Using mainly qualitative methods, children, parents and siblings were interviewed to establish what the care routines involved and how these impacted on family members. The authors found that the rhythms and routines of care varied across the sample, depending on the type and number of devices used, the individual child's needs, and who provided technical care during the day and/or at night at home and in other settings. While the children's health and quality of life benefited from the technology, the time demands of the care routines and lack of compatibility with other social and institutional timeframes had some negative implications for the children and their families, limiting their participation in school, employment and social life in general. The need to use and oversee the use of some medical technologies at night also meant that many parents suffered regular disruption to their sleep. In conclusion, the authors argue that the care of technology-dependent children at home places considerable time demands on families. More trained carers and short-term care provision, better coordination of services and improvements in the design of devices would all help to reduce the negative effects of the care routines on families.
Mentally handicapped young adults at home
- Author:
- TAPP Simon
- Publisher:
- University of East Anglia
- Publication year:
- 1987
- Pagination:
- 39p., bibliog.
- Place of publication:
- Norwich
Assessment of the stress encountered by families looking after mentally handicapped adults, and how practices, services and innovations could alleviate such problems.