Search results for ‘Subject term:"foetal alcohol syndrome"’ Sort:
Results 1 - 1 of 1
Adaptation in families raising children with fetal alcohol spectrum disorder. Part I: What has helped
- Authors:
- COONS Kelly D., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 41(2), 2016, pp.150-165.
- Publisher:
- Taylor and Francis
Background: The aim of this paper is to use qualitative analysis to identify how parents have adapted to the experience of raising their child with foetal alcohol spectrum disorder (FASD). Method: Eighty-four parents and caregivers of children with FASD in Ontario, Canada, participated in in-depth, semi-structured interviews employing a basic interpretive approach. Results: Parents of children with FASD report a number of strategies, supports, and transformational outcomes. Using interpretative phenomenological analysis, 5 themes were identified: understanding FASD and advocating on their child's behalf, day-to-day adaptation, transformational outcomes, as well as the importance of informal and formal supports. Conclusions: Understanding what families do in order to facilitate adaptation is important when assisting families who may not be adapting as successfully. Continued research looking at the family experience of raising a child with a developmental disability, such as FASD, is necessary. (Edited publisher abstract)