Search results for ‘Subject term:"epilepsy"’ Sort:
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Key messages: managing long-term conditions
- Author:
- AUDIT SCOTLAND
- Publisher:
- Audit Scotland
- Publication year:
- 2007
- Pagination:
- 4p.
- Place of publication:
- Edinburgh
Services for adults with long-term conditions are examined, focusing on two conditions in particular, COPD and epilepsy. These conditions were selected because there had been little evaluation of these compared with other long-term conditions. Key messages are presented. The study involved analysis of quantitative activity data on long-term conditions, analysis of spend on long-term conditions, and interviews with staff at the SEHD and at a sample of NHS boards (including health professionals specialising in COPD or epilepsy), CHPs and council social work departments. The fieldwork was carried out in six NHS board areas: Ayrshire and Arran, Borders, Forth Valley, Greater Glasgow and Clyde, Highland and Tayside. Focus groups were held with people with COPD or epilepsy in the sample board areas and GPs
Managing long-term conditions
- Author:
- AUDIT SCOTLAND
- Publisher:
- Audit Scotland
- Publication year:
- 2007
- Pagination:
- 38p.
- Place of publication:
- Edinburgh
Services for adults with long-term conditions were examined, focusing on two conditions in particular: COPD and epilepsy. These conditions were selected because there has been little evaluation of these compared with other long term conditions. The study included analysis of quantitative activity data on long-term conditions, analysis of current spend on long-term conditions, a review of documents and interviews with staff at the SEHD and at a sample of NHS boards (including health professionals specialising in COPD or epilepsy), CHPs and council social work departments, 14 focus groups with people with COPD or epilepsy in the sample board areas, and surveys of GPs and practice nurses in the sample board areas. The fieldwork at boards was carried out in six areas: Ayrshire and Arran,
Young people’s experiences of living with epilepsy: the significance of family resilience
- Authors:
- CHEW Judith, CARPENTER John, HAASE Anne M.
- Journal article citation:
- Social Work in Health Care, 57(5), 2018, pp.332-354.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Objective: Young people with chronic illnesses, such as epilepsy, tend to have poorer psychosocial outcomes compared to their peers. Nevertheless, not all young people experience difficulties adapting to living with epilepsy. The aim of this study was to examine family processes, as little is known about their impact on young people’s adaptation to the condition. Method: Semi-structured interviews were conducted with 15 young people, aged between 13 and 16 years old, to explore their experiences of living with epilepsy from the perspective of family resilience. Results: Findings from these interviews provided in-depth descriptions of stressful circumstances encountered and family processes. These processes, which in turn promoted positive adaptation, included shared family beliefs, family connectedness, and communication processes that supported collaborative problem-solving. Conclusion: Practitioners who support young people living with chronic conditions, such as epilepsy, should consider interventions that promote family connectedness, as it allows young people to turn to their families for support in times of stress. Additionally, it is important to explore young people’s beliefs, helping (Edited publisher abstract)
Self-management education for children with epilepsy (review)
- Authors:
- STOKES T., et al
- Publisher:
- John Wiley and Sons
- Publication year:
- 2007
- Pagination:
- 13p., bibliog.
- Place of publication:
- Chichester
There is increased interest in the use of self-management education which helps patients to become 'experts' in their own illness. This is particularly important for children and young people with long-term illnesses, such as epilepsy. Epilepsy self-management programmes can include a variety of actions that can be taken by people with epilepsy to improve their quality of life; such as taking
The impact of childhood chronic neurological diseases on Greek families
- Authors:
- TZOUFI M., et al
- Journal article citation:
- Child: Care, Health and Development, 31(1), January 2005, pp.109-115.
- Publisher:
- Wiley
... social and demographic features were registered. Appropriate statistical processes were applied to compare the above-mentioned family groups and to study the differences between the families of children with epilepsy (n = 37) and the families of children with other CND (n = 15). Parents of children with CND discuss their problems less freely, talk less openly around home, score highly on FES subscale of Conflict and, pay more attention to ethical and religious issues and values. Furthermore, the families of children with other CND were more burdened regarding the financial state and the health status of other family members in comparison with families of children with epilepsy. In addition, families of children with epilepsy were more involved in social and recreational activities, appeared to be more
Self-management education for adults with epilepsy (review)
- Authors:
- SHAW E.J., et al
- Publisher:
- John Wiley and Sons
- Publication year:
- 2007
- Pagination:
- 14p., bibliog.
- Place of publication:
- Chichester
There is increased interest in the use of self-management education which helps patients to become 'experts' in their own illness. This is particularly important for people with long-term illnesses, such as epilepsy. Epilepsy self-management programmes can include a variety of actions that can be taken by people with epilepsy to improve their quality of life; such as taking antiepileptic
Integrated services for people with long-term neurological conditions: evaluation of the impact of the national service framework
- Authors:
- BERNARD Sylvia, et al
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2010
- Pagination:
- 179p.
- Place of publication:
- York
The National Service Framework (NSF) for Long-term Neurological Conditions (LTNCs) recognised the need for an integrated approach to service delivery. This study aimed to identify what helps or hinders integrated services and to identify best models and practice of delivering continuity of care from the perspectives of people with LTNCs, their families, and professionals involved in their care. The research had three main components: a literature review; in-depth case studies in six neurology ‘service systems’ to identify the key indicators of good quality integrated service provision; and a benchmarking tool. The research identified three types of service that can promote continuity of care for people with LTNCs: community interdisciplinary neurological rehabilitation teams; nurse specialists; and proactive, holistic day opportunities services. The benchmarking tool was used to conduct a survey of English PCTs to audit progress towards implementation of the NSF nationally and the extent to which integrated services were available to people with LTNCs. Of the 152 PCTs in England, 118 responded (78%). Results of the survey showed that there is considerable variation in the availability of services for people with LTNCs, and that the implementation of the NSF for LTNCs has been hindered by competing policy, organisational and financial priorities.
Integrated services for people with long-term neurological conditions: evaluation of the impact of the national service framework: summary
- Authors:
- BERNARD Sylvia, et al
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2010
- Pagination:
- 4p.
- Place of publication:
- York
The National Service Framework (NSF) for Long-term Neurological Conditions recognised the need for an integrated approach to service delivery. This study aimed to identify what helps or hinders integrated services and to identify best models and practice of delivering continuity of care from the perspectives of people with LTNCs, their families, and professionals involved in their care. The research had three main components: a literature review; in-depth case studies in six neurology ‘service systems’ to identify the key indicators of good quality integrated service provision; and a benchmarking tool. The research identified 3 types of service that can promote continuity of care for people with LTNCs: community interdisciplinary neurological rehabilitation teams; nurse specialists; and proactive, holistic day opportunities services. The benchmarking tool was used to conduct a survey of English PCTs to audit progress towards implementation of the NSF nationally and the extent to which integrated services were available to people with LTNCs. Of the 152 PCTs in England, 118 responded (78%). Results of the survey showed that there is considerable variation in the availability of services for people with LTNCs, and that the implementation of the NSF for LTNCs has been hindered by competing policy, organisational and financial priorities.
Understanding disability: causes, characteristics and coping
- Author:
- STOPFORD Victoria
- Publisher:
- Edward Arnold
- Publication year:
- 1987
- Pagination:
- 171p., illus., bibliogs.
- Place of publication:
- London