Search results for ‘Subject term:"end of life care"’ Sort:
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The way we die now: personal stories of terminal illness in the UK
- Author:
- MARIE CURIE
- Publisher:
- Marie Curie
- Publication year:
- 2015
- Pagination:
- 18
- Place of publication:
- London
The stories of six people are presented to highlight the inconsistent care available for people with a terminal illness in the UK. The stories show that everyone’s experiences at the end of life is different, but are often accompanied by recurring themes such as the importance of clear communication and the need for emotional support. Each story is accompanied by key messages learnt from their experience which include: the need for available support for carers, early access to palliative care, and the ability to choose your own place of death. A list of questions for health and social care professionals to use to help them support people at the end of life is included. (Edited publisher abstract)
Together for health: end of life care annual report 2015
- Author:
- WALES. Welsh Government
- Publisher:
- Wales. Welsh Assembly Government
- Publication year:
- 2015
- Pagination:
- 38
- Place of publication:
- Cardiff
Highlights the progress made in end of life care and services in Wales and identifies areas for future improvement. In particular, the report looks at the progress made in implementing the actions set out in the End of Life Delivery Plan and how this is reflected through outcome and assurance measures. They show that: direct feedback from patients and their families about specialist palliative care services in Wales has shown over the past year that these services make an enormous difference to people’s quality of life in their closing days; 80 per cent of specialist palliative care urgent referrals were assessed within the agreed timescale; 93 per cent of the responses to the iWantGreatCare patients’ evaluation of their experience of specialist palliative care were positive; the percentage of people dying in hospital has fallen from 62.6 per cent in 2008-09 to 56.2 per cent in 2014-15; there has been a 15.7 per cent increase in the number of people registered on a primary care palliative register over the last 12 months; there has been a year on year increase in the number of people participating in the National Institute of Social Care Health Research palliative care studies since 2008. There are however a number of areas where further progress is required or where new issues need to be addressed, including: more consistent early identification of patients; allowing more people to receive care and die in the place of their choice; ensuring that there are sufficient nursing and care home places available; reducing unnecessary emergency and hospital admissions; and ensuring that people are better prepared for their deaths. (Edited publisher abstract)
Follow-up to PHSO report: dying without dignity. First Report of Session 2015–16
- Author:
- GREAT BRITAIN. Parliament. House of Commons. Public Administration Select Committee
- Publisher:
- The Stationery Office
- Publication year:
- 2015
- Pagination:
- 25
- Place of publication:
- London
This is a follow-up to the ‘Dying without dignity’ report which identified systemic issues affecting the quality and delivery of end of life care and used case studies to show how patients—and those close to them—had been affected by poor care. This report outlines the key areas in which significant and fast-paced improvements are expected. These are: culture, behaviour and training; the provision of integrated, 24/7 palliative and End of Life Care (EOLC) services; and leadership and commissioning. It also invites the Government to set out how it will ensure that the necessary improvements to end of life care provision are delivered. The report highlights the need to ensure that progress can be assessed objectively and suggests that clear targets for improvement are needed to enable such assessments. It concludes that comprehensive monitoring and reporting of progress against targets will also be required, and the Government must set out where responsibility for improving and monitoring end of life care lies. (Edited publisher abstract)
The 2015 Quality of Death Index: ranking palliative care across the world
- Authors:
- MURRAY Sarah, ECONOMIST INTELLIGENCE UNIT
- Publisher:
- Economist Intelligence Unit
- Publication year:
- 2015
- Pagination:
- 68
- Place of publication:
- London
This is the second edition of the Quality of Death Index, updating and expanding upon the first iteration, which was published in 2010. The new and expanded 2015 Index evaluates 80 countries using 20 quantitative and qualitative indicators across five categories: the palliative and healthcare environment, human resources, the affordability of care, the quality of care and the level of community engagement. To build the Index the EIU used official data and existing research for each country, and also interviewed palliative care experts from around the world. The report reveals that UK has the best quality of death, and rich nations tend to rank highest. Countries with a high quality of death share several characteristics and have the following elements in place: a strong and effectively implemented national palliative care policy framework; high levels of public spending on healthcare services; extensive palliative care training resources for general and specialised medical workers; generous subsidies to reduce the financial burden of palliative care on patients; wide availability of opioid analgesics; and strong public awareness of palliative care. (Edited publisher abstract)
The end of life care strategy: new ambitions
- Author:
- NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2014
- Pagination:
- 23
- Place of publication:
- London
Reports on key issues raised at the National Council for Palliative Care (NCPC) conference 'Refreshing the strategy: the next five years for end of life care: what do we need to do?', which was held at the halfway point of the 10-year 2008 End of Life Care Strategy. Key challenges identified at the conference included: the need to commission personalised care on the basis of local needs; the complex nature of end of life care in relation to the number of services involved; improving data and intelligence in end of life care, ensuring end of life care is available to everyone who needs it, better communication about death. The report also includes additional recommendations and thoughts about what next in end of life care which will be developed by NCPC in the future. (Edited publisher abstract)
Go gentle into that good night: the past, present, and future of end-of-life care
- Author:
- SINGER Adam E.
- Publisher:
- Rand Corporation
- Publication year:
- 2015
- Pagination:
- 382
- Place of publication:
- Santa Monica, CA
This dissertation examines the past, present, and future of end-of-life care in order to shed light on the most effective ways to organise and deliver it. End-of-life care has received increasing attention in recent years as the baby boomers age and health care costs continue to rise. This attention has brought with it remarkable growth in the field and improvement in care, but there remains work to be done in order to more consistently deliver high quality, compassionate, and patient- and family-centred end-of-life care. The paper presents the results of a cohort study into the symptom trends in the last year of life, 1998‐2010. It then summarises the findings of a systematic review of populations and interventions for palliative and end‐of‐life care and looks at the evidence on estimating the value of palliative care for older adults. (Edited publisher abstract)
Advance planning for end of life care
- Authors:
- O'KELLY Allison, et al
- Journal article citation:
- Journal of Dementia Care, 23(2), 2015, pp.30-33.
- Publisher:
- Hawker
Advance care plans can help to ensure that an individual's needs and preferences are respected at the end of life. It sets out the care interventions an individual wishes to receive, those they do not want to receive, and the setting where they want to be cared for at the end of life. This study looks at the effects of giving more information on end of life care during post-diagnostic counselling for people with dementia and whether it results in an increase in documented individual advance care plans. Five people and their accompanying partner, family member or carer took part in the research. After receiving information and having in-depth informal discussion about advance care plans, four out of five participants chose to complete a plan. Themes emerging from the study included: sense of control and autonomy; communication; the sensitivity of the timing of discussions; importance of family involvement; confidence in the process and the organisations that will have access to the information. This small study demonstrates the positivity expressed by participants about the advance care plan discussion and experience. (Original abstract)
Do people with dementia die at their preferred location of death? a systematic literature review and narrative synthesis
- Authors:
- BADRAKALIMUTHU Vellingiri, BARCLAY Stephen
- Journal article citation:
- Age and Ageing, 43(1), 2014, pp.13-19.
- Publisher:
- Oxford University Press
Aim: Place of death is an important component of the quality of a person's death. The aim of this study was to undertake a systematic review and narrative synthesis of the literature concerning place of death of people with dementia and the preferences for location of death of people with dementia as well as family carers and healthcare providers preferred location of death for patients with dementia. Methods and results: Studies relying on death certificate data show that patients with dementia die more commonly in care homes than other locations contrasting with prospective studies which show that death is more common in own residence and hospital. Age (older), gender (male), availability of hospital and nursing home beds and enrolment in hospice, influence place of death. There is very limited evidence of patients, family carers and healthcare providers' views on preferred location of death for patients with dementia and the only study included reported that, family carers views are more agreed to rather than patients own views regarding place of death. Conclusion: This study on place of death raises exploratory questions on end-of-life care for patients with dementia which has implications on health and social care policies related to dementia. (Publisher abstract)
Hospice: putting the heart back into dementia care
- Authors:
- TAPLEY Michael, REGAN Ann, JOLLEY David
- Journal article citation:
- Journal of Dementia Care, 21(5), 2013, pp.14-15.
- Publisher:
- Hawker
The authors report on the action taken at Willow Wood Hospice in Ashton under Lyne to help meet the end of life care needs of people with dementia. (Edited publisher abstract)
Time to choose: making choice at the end of life a reality
- Author:
- MACMILLAN CANCER SUPPORT
- Publisher:
- Macmillan Cancer Support
- Publication year:
- 2013
- Pagination:
- 28
Macmillan's vision is that people who are nearing the end of life will be supported to make decisions that allow them and their family or carers to be prepared for their death; also that their care will be well coordinated and planned so that they die in the place and in the way that they have chosen. This report examines the importance of choice at the end of life and the barriers to such choice. It suggests solutions, for example having greater access to community services, improving planning and coordination, and providing free social care to people at the end of life. It also recommends that the Care Bill currently going through Parliament should make it clear that health services and local authorities have joint responsibility for identifying and signposting carers to information, advice and support. It concludes that there should be a "national choice offer", to ensure those people who want to die at home get the support they need. (Edited publisher abstract)