Search results for ‘Subject term:"end of life care"’ Sort:
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Caring for each other: a rapid review of how mutual dependency is challenged by advanced illness
- Authors:
- PARSONS Joanne Elizabeth, et al
- Journal article citation:
- International Journal of Care and Caring, 5(3), 2021, pp.509-527.
- Publisher:
- Policy Press
This review explores factors sustaining and threatening couples’ relationships when both have advanced illness. Qualitative studies exploring relationships between two people in a marriage/partnership with advanced illness are included. A total of 12 articles are included. Internal enabling factors, external enabling factors and threatening factors are identified. However, there is limited evidence internationally on factors sustaining these relationships and crisis factors. Little is known about the impact of crises on couples and the process of change from mutual dependency to carer and cared for. The article concludes that shifts by services towards holistic care focused on the couple’s needs are indicated. (Edited publisher abstract)
Occupational therapy training on palliative and end-of-life care: scoping review
- Authors:
- TALBOT-COULOMBE Claudia, GUAY Manon
- Journal article citation:
- British Journal of Occupational Therapy, 83(10), 2020, pp.609-619.
- Publisher:
- Sage
Introduction: While occupational therapists promote quality of life enabling occupation, many receive little to no training on palliative and end-of-life care. This study synthesizes relevant literature to find out what is known about training for them on this matter. Methods: A scoping review using Arksey and O’Malley’s five-stage framework exploring literature on palliative and end-of-life care training in occupational therapy (French or English; undergraduate or graduate). The first author screened the titles, abstracts, and keywords and selected literature to be read by the teams to extract and include relevant knowledge. Corroborated thematic analysis synthesized the findings. Result: Out of the 384 publications initially identified, 25 were included in the review. To be trained in palliative and end-of-life care, occupational therapists have to (a) be exposed to knowledge on specific (b) topics required for competent practice using (c) educational strategies supporting learning about palliative and end-of-life care. Conclusion: Whereas introductory-level knowledge of palliative and end-of-life care should be offered to all students, advanced training should allow occupational therapists to master the philosophy of this type of care, deepen the understanding of topics such as being confronted with death, and empower them to advocate for their unique contribution. (Edited publisher abstract)
The end of life within social work literature: a conceptual review
- Authors:
- HOLLAND Margaret M., PROST Stephanie Grace
- Journal article citation:
- OMEGA - Journal of Death and Dying, 82(4), 2021,
- Publisher:
- Sage
The current conceptual review sought to identify and describe how the end of life was conceptualized and operationalized in top-ranking, peer-reviewed social work journals considering the highly individualized and multidimensional experience of dying put forth by modern scholars and social work practitioners. An iterative content analysis of included articles (N = 103) revealed six themes within reported definitions and four themes within eligibility criteria. Definitions (n = 66) related to treatment responsiveness, the death process, dying, prognosis, admission to specific services, and old age. Eligibility criteria (n = 18) related to proxy assessment, diagnosis, prognosis, and functional ability assessments. Over one-third of included articles did not define what was meant by the end of life (36%; n = 37) and the majority did not include eligibility criteria (83%; n = 85). In conclusion, the complex lived experience of dying was not manifest within included articles raising important implications for research (e.g., measurement, meta-analysis) and social work practice (viz. service eligibility). (Edited publisher abstract)
Understanding what works, why and in what circumstances in hospice at home services for end-of-life care: applying a realist logic of analysis to a systematically searched literature review
- Authors:
- HASHEM Ferhana, et al
- Journal article citation:
- Palliative Medicine, 34(1), 2020, pp.16-31.
- Publisher:
- Hodder Arnold
Background: This study has undertaken a systematically searched literature review using a realist logic of analysis to help synthesise the diverse range of literature available on hospice at home services. Aim: To find out in the existing literature what features of hospice at home models work best, for whom and under what circumstances. Design: A realist logic of analysis was applied to synthesise the evidence focusing on mechanisms by which an intervention worked (or did not work). An initial programme theory was developed using the National Association for Hospice at Home standards, Normalisation Process Theory and through refinement using stakeholder engagement. Data sources: PubMed, Science Direct, AMED, BNI, CINAHL, EMBASE, Health Business Elite, HMIC, Medline, PsychINFO, SCOPUS, Web of Science, DARE, Google Scholar, NHS Evidence, NIHR CRN portfolio database, NIHR journal library of funded studies, including searches on websites of relevant professional bodies (August 2014, June 2017, June 2019). Results: Forty-nine papers were reviewed, of which 34 contributed evidence to at least one of the eight theory areas: marketing and referral, sustainable funding model, service responsiveness and availability, criteria for service admission, knowledge and skills of care providers, integration and coordination, anticipatory care, support directed at carers. Conclusions: This literature review shows it is possible to develop a coherent framework and test it against 34 published papers and abstracts. Central to this review was theory building, and as further evidence emerges, programme theories can be refined and tested against any new empirical evidence.
What works to support care at home staff providing palliative and end of life care? Evidence from published research
- Author:
- INGLIS Shelia
- Editor:
- MUIRHEAD Stuart
- Publisher:
- IRISS
- Publication year:
- 2017
- Pagination:
- 15
- Place of publication:
- Glasgow
This report examines the evidence of published research to explore what works to support care at home staff in providing palliative and end of life care. Specifically, it investigates the capabilities and support social care and care at home staff need in providing palliative and end of life care; and the solutions that can help to build these capabilities and provide this support. The review identified five relevant published research studies. Key findings included that care at home staff need the capabilities to provide personal care; emotional and social support; care for the dying; respite care for family members; and domestic support. The review also identifies support and solutions in the areas of: information and knowledge support, training, and improvement opportunities. Summaries of the research identified are included. (Edited publisher abstract)
Intellectual disabilities and decision making at end of life: a literature review
- Authors:
- KIRKENDALL Abbie, LINTON Kristen, FARRIS Saritha
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 30(6), 2017, pp.982-994.
- Publisher:
- Wiley
Background: Individuals with an intellectual disability are vulnerable to having end-of-life decisions made for them merely due to the presence of a disability. As a result, decisions made by others may not reflect the exact wishes of the individual. Methods: This review examines literature on individuals with an intellectual disability in making end-of-life decisions from the years 2000 to 2014. A total of 38 articles were found with 12 articles having a direct focus on end-of-life decision making. Results: The emerging themes include the following: (i) assumption of lack of capacity, (ii) inconsistency in evaluating capacity and communication challenges and (iii) third party decisions. Conclusions: Earlier discussions about end-of-life planning before the diagnosis of a life-limiting illness would be beneficial. Lacking is a consistent approach to determining capacity for individuals with an intellectual disability. The findings from this review provide a foundation for a decision tree in end-of-life decision making for individuals with an intellectual disability. (Edited publisher abstract)
Agency, social and healthcare supports for adults with intellectual disability at the end of life in out-of-home, non-institutional community residences in Western nations: a literature review
- Authors:
- MORO Teresa T., SAVAGE Teresa A., GEHLERT Sarah
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 30(6), 2017, pp.1045-1056.
- Publisher:
- Wiley
Background: The nature and quality of end-of-life care received by adults with intellectual disabilities in out-of-home, non-institutional community agency residences in Western nations is not well understood. Method: A range of databases and search engines were used to locate conceptual, clinical and research articles from relevant peer-reviewed journals. Results: The present authors present a literature review of the agency, social and healthcare supports that impact end-of-life care for adults with intellectual disabilities. More information is needed about where people with intellectual disabilities are living at the very end of life and where they die. Conclusions: The support needs for adults with intellectual disabilities will change over time, particularly at the end of life. There are some areas, such as removing barriers to providing services, staff training, partnerships between agencies and palliative care providers, and advocacy, where further research may help to improve the end-of-life care for adults with intellectual disabilities. (Publisher abstract)
End-of-life care and physician-assisted dying: setting the scene
- Authors:
- CAMPBELL Ruth, et al
- Publisher:
- British Medical Association
- Publication year:
- 2016
- Pagination:
- x,170
- Place of publication:
- London
This volume is the first of a three part report on a BMA project examining public and professional attitudes and understanding around end-of-life care issues and options. Part 1 seeks to set the scene against which the qualitative research commissioned by the BMA has been conducted, outlining the context in which public, parliamentary, and professional debate has been conducted, and bringing together both peer-reviewed research and surveys of opinion. The review examines: end of life care practice in the UK; practical challenges in end of life care, including mental capacity and decision making, depression, prescribing in the post-Shipman era, and accuracy of doctors’ estimates of survival for dying patients; the debate on assisted dying in the UK; and the international evidence on assisted dying, looking at the Netherlands, Belgium, Oregon and Switzerland. In addition, the report contains a comparative table of international legislation. The main focus of this review is on adults although there are profound implications both for children who are themselves dying and for children who have been bereaved. (Edited publisher abstract)
Adult hospice social work intervention outcomes in the United States
- Authors:
- ALCIDE Amary, POTOCKY Miriam
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 11(3-4), 2015, pp.367-385.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
A descriptive and critical analysis of the available empirical literature on social work psychosocial intervention outcomes for adult hospice patients and caregivers was conducted. The electronic bibliographic databases CINHAL (EBSCO), MEDLINE, ProQuest, EMBASE, Campbell Collaboration, and The Cochrane Central Register of Controlled Trials (CENTRAL, The Cochrane Library) were searched. Search criteria were (a) social work interventions, (b) intervention was tested, (c) adult hospice patients and/or caregivers, (d) studies within the United States, (e) and studies between 2004 and 2014. Of the 21 studies that met the initial search criteria, 5 publications met all review criteria. Based on assessment of study results, intervention effect, and quality of evidence, the ADAPT Problem-Solving Intervention (PSI) and the Hospice Caregiver Support Project have some indications of practical effect on caregiver quality of life, anxiety, stress, and problem-solving skills. The Caregiver Life Line (CaLL) intervention had little to no effect on caregiver role stress or coping skills. The few available studies provide foundational insight into the need for the expansion of research efforts to evaluate hospice social work interventions and document the contributions of social work to the field. (Publisher abstract)
Interventions to reduce unplanned admissions from care home settings
- Author:
- UNIVERSITY OF YORK. Centre for Reviews and Dissemination
- Publisher:
- University of York. Centre for Reviews and Dissemination
- Publication year:
- 2014
- Pagination:
- 5
- Place of publication:
- York
This briefing summarises evidence related to community geriatrician services, case management, discharge planning, integrated working between primary care and care homes, medicines management, the prevention of delirium and end-of-life care. Key points are: there is little good quality comparative evidence to inform strategies for reducing unplanned admissions from care homes; much of the evidence for integration and community geriatric services comes from case studies which are not always well reported and any positive findings may not be easily replicated elsewhere; closer working between healthcare and care home staff (through dedicated GP or community geriatric services), protected training for care home staff, and implementing processes for stated end-of-life care preferences all appear promising; NICE recommends that multifaceted interventions to prevent delirium should be implemented in long-term care settings; the lack of good quality evidence in this area highlights the need to monitor the impact of changes made to the delivery of services especially in relation to resource use and patient experience. (Edited publisher abstract)