Search results for ‘Subject term:"end of life care"’ Sort:
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Palliative care 1: principles of palliative care nursing and end-of-life care
- Author:
- BECKER Robert
- Journal article citation:
- Nursing Times, 7.4.09, 2009, pp.14-16.
- Publisher:
- Nursing Times
This article describes the definitions, goals and principles of palliative care nursing, and the diversity and challenges of providing this care.
End of life care for people with dementia living in care homes
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, NATIONAL END OF LIFE CARE PROGRAMME
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2012
- Pagination:
- 4p.
- Place of publication:
- London
This At a glance briefing summarises key messages from the research briefing End of life care for people with dementia living in care homes (SCIE 2012). It highlights the findings in the areas of advance care planning, finding out what people with dementia want from their end of life are, ensuring that the need for end of life care for people with dementia is recognised, ensuring care is holistic and is not just about physical care, the experience of family carers, training for staff and measuring the outcomes of end of life care.
Phenomenology in end-of-life care: implications for philosophy and clinical practice
- Author:
- ORDILLE Joan
- Journal article citation:
- Clinical Social Work Journal, 44(2), 2016, pp.170-178.
- Publisher:
- Springer
- Place of publication:
- New York
Care of the terminally ill and dying in the hospice setting is a growing practice field for social workers. Support to family, as well as the patient, is implicit in hospice care, adding to the reach and impact of the hospice social worker’s role. As people age and approach the end of life, they may encounter changes in their experience of time, space and of the material world. They often have to redefine the role of hope in their day to day lives. Based on these changing experiences and perceptions, phenomenology, with its focus on a patient’s subjective, lived experience, has implications for end-of-life care. The role of empathy and compassion are also explored in relation to existential experiences of the terminally ill through the lens of phenomenology and Eastern philosophy. To complement the Western biomedical model of care for the dying, insight from Eastern philosophical traditions, which view living and dying on the same continuum, and provide an expanded view of suffering bring comfort and understanding to how living and dying are processed within the phenomenology of patient experience and the hospice model of care. Case vignettes demonstrate social work theory and practice at the intersection of various interrelated phenomena when caring for those facing the end of life. (Publisher abstract)
End of life care: what matters to the person who's dying
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2014
- Pagination:
- 11 minutes 31 seconds
- Place of publication:
- London
In this film a palliative care specialist nurse from St Joseph's Hospice, London, defines holistic assessment as an on-going process involving the physical, social, psychological and spiritual care of a person at the end of life. Through an interview with a woman with a chronic health condition, holistic assessment is shown working in practice; we see how she is supported to develop a plan which states her wishes about her end of life care. This provides clarity for the family of the person as well as her health and social care team. There is also an interview with a woman who was initially reluctant to make plans about her end of life care but, with the help of a social worker, has now done so and feels more confident and in control because she feels supported. This film was previously available under the title 'End of life care: holistic assessment' which was revised in 2014. (Edited publisher abstract)
SCIE research briefing 40: end of life care for people with dementia living in care homes
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, MORIARTY Jo, et al
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2012
- Pagination:
- 24p.
- Place of publication:
- London
This research briefing provides a summary of recent research about the care provided in care homes to people with dementia in the period leading up to the end of their lives. It aims to provide an overview of a range of issues important to care home residents, carers and providers. It summarises research findings in the areas of advance care planning; the views of people with dementia; the need for end of life care; access to specialist palliative care and support; providing holistic care; the experience of family carers; staff training; and measuring the outcomes of end of life care. The briefing also highlights gaps in the research evidence and the implications for the policy community; care home managers and staff; people with dementia and their carers.
Bio-psycho-social-spiritual needs of adolescents and young adults with life-threatening illnesses: implications for social work practice
- Authors:
- BEERBOWER Emily, WINTERS Drew E., KONDRAT David C.
- Journal article citation:
- Social Work in Health Care, 57(4), 2018, pp.250-266.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This paper explores the biopsychosocial and spiritual needs of adolescents and young adults (AYA) with life-threatening or terminal illnesses. AYA are situated between childhood and adulthood (ages 15–25) and have distinct biopsychosocial and spiritual needs unique to their developmental stage. Having a life-threatening or terminal illness directly challenges normal AYA developmental tasks and identity formation. AYA experience more troubling physical symptoms during the dying process compared to other age groups, which leads to significant psychological distress and an increased need for pharmacological treatments. In general, AYA desire to be fully informed and involved in the health care decision-making process, leading to ethical dilemmas when the AYA is a minor and their wishes differ from the wishes of their legal guardian(s). Social workers are especially well-equipped to serve this population due to aligning professional standards and ability to advocate for holistic care within interdisciplinary teams. Additional research is needed to tailor holistic interventions to meet the needs of this population. (Publisher abstract)
Midhurst Macmillan Community Specialist Palliative Care Service: delivering end-of-life care in the community
- Authors:
- THIEL Veronika, et al
- Publisher:
- King's Fund
- Publication year:
- 2013
- Pagination:
- 34
- Place of publication:
- London
The Midhurst Macmillan Service is a community-based, consultant-led, specialist palliative care service in a rural community, which serves some 150,000 people across Surrey, Hampshire and West Sussex. The service was set up in 2006 in response to the sudden closure of a local hospital with a Macmillan Cancer Support palliative care unit. It has since evolved to provide end-of-life services to local people at home. and to prevent avoidable admisisons to hospital . It is jointly funded by the NHS and Macmillan Cancer Support to a total value of £1.2 million per year. This report describes a model of care that is co-ordinated across a range of partners including GPs, district and community nurses and social workers, complemented by 70 volunteers who fulfil a variety of roles. The report includes story case studies indicating the difference that the service has made in administering pain relief and providing practical and emotional support at the end of life. Among key lessons and distinctive points of this service are: awareness raising and relationship building; holistic care assessment and personalised care planning; referrals from any health professional; and rapid access to care from a multidisciplinary team. This study is part of a research project undertaken by The King’s Fund and funded by Aetna and the Aetna Foundation in the United States, to compare five successful UK-based models of care co-ordination. (Original abstract)
End of life care: holistic assessment
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2012
- Place of publication:
- London
In this film a palliative care specialist nurse from St Joseph's Hospice, London, defines holistic assessment as an on-going process involving the physical, social, psychological and spiritual care of a person at the end of life. Through an interview with a woman with a chronic health condition, holistic assessment is shown working in practice; we see how she is supported to develop a plan which states her wishes about her end of life care. This provides clarity for the family of the person as well as her health and social care team. There is also an interview with a woman who was initially reluctant to make plans about her end of life care but, with the help of a social worker, has now done so and feels more confident and in control because she feels supported. This film has now been revised and is available under the new title 'End of life care: what matters to the person who's dying'.
How nurses working in acute care can help to ensure patients achieve a good death
- Author:
- HAYES Anita
- Journal article citation:
- Nursing Times, 13.7.10, 2010, p.18.
- Publisher:
- Nursing Times
People should be able to die in the place of their choice. New guidance from the National End of Life Care Programme (NEoLCP) gives practical advice on how to ensure patients' preferred priorities are achieved.
End of life care strategy: quality markers and measures for end of life care
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2009
- Pagination:
- 52p.
- Place of publication:
- London
The End of Life Care Strategy published in July 2008 included a commitment to publish quality markers for end of life care. This publication reflects the comments received in response to the Department of Health consultation on Quality Markers. The quality markers aim to provide commissioners and providers with guidance in delivering improvements in care. The document is organised in separate sections for commissioners and individual providers. Providers listed include: primary care, acute hospitals, community hospitals, care homes, palliative care facilities, end of life care services in the community, community nursing services, ambulance services and out of hours medical services. The quality markers are not mandatory.