Search results for ‘Subject term:"end of life care"’ Sort:
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Using evidence for transformation change for homecare workers and service users in palliative and end of life care
- Authors:
- IRISS, NHS EDUCATION FOR SCOTLAND
- Publisher:
- IRISS
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- Glasgow
Brings together evidence from research, practice, and improvement from three linked reports from the NHS Education for Scotland Networked Evidence Search and Summary Service on what works in supporting care at home staff providing palliative and end of life care. It reports that the role of care at home staff is emotionally and practically demanding, yet there is often little or no training or support. The report highlights what staff need to support them and the actions that need to be put in place. These include suggestions to improve staff access to information; learning and development needs; and service improvement in the areas of multi-agency communication and bereavement support. (Edited publisher abstract)
End‐of‐life doulas: a qualitative analysis of interviews with Australian and international death doulas on their role
- Authors:
- RAWLINGS Deb, et al
- Journal article citation:
- Health and Social Care in the Community, 29(2), 2021, pp.574-587.
- Publisher:
- Wiley
Death doulas (DD) are working with people at the end of life in varied roles with more clarity needed around their role and place within the health and social care systems. The aim of this work is to explore the DD role in end‐of‐life care from the perspective of DDs. A sub‐group of 20 DDs from a larger quantitative survey participated in semi‐structured telephone Skype or Zoom interviews. Interview data were analysed using thematic analysis. Seven themes emerged from the qualitative analysis: what a DD offers, what a DD does, challenges and barriers, occupational preferences, family support, contract of service/fee and regulation. There is a general perception that healthcare professionals (HCP) do not understand what it is that DDs do; thus, the current study has helped to demystify the DD role and potentially reduce suspicion. The lack of a DD business model sees inconsistencies in what services each DD offers and what patients and families can expect. End of life is complex and confusing for patients and families and there is a need to further explore the DD role and how it can work when there are many inconsistencies in working practice. More research is required to look at the interplay among DDs, HCPs and palliative care volunteers in addressing the gaps in care provision and how these relationships might be more seamlessly managed. (Edited publisher abstract)
Knowledge set for end of life care
- Author:
- SKILLS FOR CARE
- Publisher:
- Skills for Care
- Publication year:
- 2010
- Pagination:
- 14p.
- Place of publication:
- Leeds
- Edition:
- Rev. ed.
Knowledge sets are sets of key learning outcomes for specific areas of work within adult social care. They are designed to improve consistency in the underpinning knowledge learnt by the adult social care workforce in England. It is intended that the key learning outcomes within each knowledge set will be used by employers to develop in-house learning and by training providers, publishers and awarding bodies to produce learning programmes, resources and, potentially, awards. The key learning outcomes are intended to provide minimum standardised outcomes that employers may use either to produce their own in-house learning or learning packages, or as a benchmark when buying in learning provision or learning packages. This document explains the principles and content of end of life care knowledge sets.
Communication skills training in end-of-life care
- Author:
- MORRIS Jodie
- Journal article citation:
- Nursing Times, 29.11.11, 2011, pp.16-17.
- Publisher:
- Nursing Times
The University Hospitals Coventry and Warwickshire Trust set up a two-day training course on communication skills in end-of life care for health assistants. Evaluations showed this increased staff confidence in discussing death and dying with patients and families. This article describes setting up the training course, the course content and the evaluation undertaken.
An end of life care training programme from hospice staff
- Authors:
- LANSDELL John, MAHONEY Mary
- Journal article citation:
- Nursing and Residential Care, 13(9), September 2011, pp.438-440.
- Publisher:
- MA Healthcare Ltd.
- Place of publication:
- London
Seventeen percent of deaths occur in care homes where there may be inadequate end-of-life training of staff. This article discusses a study funded by St Catherine’s Hospice, Crawley into developing end-of-life care competence in care homes. The 3-year study aimed to drive up standards of end-of-life care in care homes to a level of ‘best practice’ by providing a clearer, structured model for ongoing education and support. In year 1, the training programme identified competency requirements through meetings with hospice and key care home staff. In year 2, a 5-day competency course was held which incorporated the competency requirements developed within year 1 as well as focusing on implementing palliative care in non-specialist settings. The care home staff who attended this course shared their learning with the rest of the home. In year 3, competence assessments were linked with homes’ appraisal frameworks to ensure long-term follow on. The article concludes by discussing a competency package that could be disseminated to other care homes.
Tailoring the care certificate: supporting people at the end of their life
- Author:
- SKILLS FOR CARE
- Publisher:
- Skills for Care
- Publication year:
- 2020
- Pagination:
- 27
- Place of publication:
- Leeds
The Care Certificate was introduced in 2015 to ensure that all social care and healthcare workers have the knowledge, skills and behaviours to provide compassionate, safe and high-quality care and support. Some of the standards have been contextualised to different working situations or services to help new workers, or workers new to a particular area of care, to apply the content to their specific roles. The Care Certificate has been contextualised in six areas: autism; dementia; end of life care; learning disability; lone working; mental health. This document includes the end of life care contextualised standards. (Edited publisher abstract)
Working with colleagues and other professionals when caring for people with dementia at the end of life: home care workers’ experiences
- Authors:
- MANTHORPE Jill, et al
- Journal article citation:
- International Journal of Care and Caring, 3(4), 2019, pp.567-583.
- Publisher:
- Policy Press
Caring for people with dementia often necessitates inter-professional and inter-agency working but there is limited evidence of how home care staff work as a team and with professionals from different agencies. Through analysis of semi-structured interviews, the research explores the experiences of home care workers (n = 30) and managers of home care services (n = 13) in England (2016‐17). Both groups sought to collaboratively establish formal and informal practices of teamwork. Beyond the home care agency, experiences of interacting with the wider health and care workforce differed. More explicit encouragement of support for home care workers is needed by other professionals and their employers. (Edited publisher abstract)
The need for flexibility when negotiating professional boundaries in the context of home care, dementia and end of life
- Authors:
- ABRAMS Ruth, et al
- Journal article citation:
- Ageing and Society, 39(9), 2019, pp.1976-1995.
- Publisher:
- Cambridge University Press
Professional boundaries may help care staff to clarify their role, manage risk and safeguard vulnerable clients. Yet there is a scarcity of evidence on how professional boundaries are negotiated in a non-clinical environment (e.g. the home) by the home-care workforce in the context of complex care needs (e.g. dementia, end-of-life care). Through analysis of semi-structured interviews, we investigated the experiences of home-care workers (N = 30) and their managers (N = 13) working for a range of home-care services in the South-East and London regions of England in 2016–17. Findings from this study indicate that home-care workers and their managers have clear perceptions of job role boundaries, yet these are modified in dementia care, particularly at end of life which routinely requires adaptability and flexibility. As a lone worker in a client's home, there may be challenges relating to safeguarding and risk to both clients and workers. The working environment exacerbates this, particularly during end-of-life care where emotional attachments to both clients and their family may affect the maintenance of professional boundaries. There is a need to adopt context-specific, flexible and inclusive attitudes to professional boundaries, which reconceptualise these to include relational care and atypical workplace conventions. Pre-set boundaries which safeguard clients and workers through psychological contracts may help to alleviate to some extent the pressure of the emotional labour undertaken by home-care workers. (Edited publisher abstract)
What works to support care at home staff providing palliative and end of life care? Evidence from improvement knowledge
- Author:
- INGLIS Shelia
- Editor:
- MUIRHEAD Stuart
- Publisher:
- IRISS
- Publication year:
- 2017
- Pagination:
- 14
- Place of publication:
- Glasgow
This evidence summary aimed to explore the skills and the support required by social care and care at home staff to provide palliative and end of life care. It aimed to retrieve examples of improvement, recommendations for service improvement, evaluation reports and practice development. The summary identifies key findings from three reports identified. They cover the knowledge, skills and personal qualities needed by care at home workers; areas in which care at home workers felt inadequately prepared for the role; and different ways of providing support (including information and knowledge support, training, and improvement opportunities). It is one of three linked evidence summaries from the NHS Education for Scotland Networked Evidence Search and Summary Service, which combine evidence from research, practice and improvement to inform an action plan City of Edinburgh Council. (Edited publisher abstract)
What works to support care at home staff providing palliative and end of life care? Evidence from published research
- Author:
- INGLIS Shelia
- Editor:
- MUIRHEAD Stuart
- Publisher:
- IRISS
- Publication year:
- 2017
- Pagination:
- 15
- Place of publication:
- Glasgow
This report examines the evidence of published research to explore what works to support care at home staff in providing palliative and end of life care. Specifically, it investigates the capabilities and support social care and care at home staff need in providing palliative and end of life care; and the solutions that can help to build these capabilities and provide this support. The review identified five relevant published research studies. Key findings included that care at home staff need the capabilities to provide personal care; emotional and social support; care for the dying; respite care for family members; and domestic support. The review also identifies support and solutions in the areas of: information and knowledge support, training, and improvement opportunities. Summaries of the research identified are included. (Edited publisher abstract)