Search results for ‘Subject term:"end of life care"’ Sort:
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When professionals weep: emotional and countertransference responses in end-of-life care
- Editors:
- KATZ Renee S., JOHNSON Therese G., (eds.)
- Publisher:
- Routledge
- Publication year:
- 2006
- Pagination:
- 303p.
- Place of publication:
- New York
This book compiles the work of a dynamic group of leaders who address the issues surrounding the intersection of the personal and the professional in the context of end-of-life care. The 18 chapters are divided into six parts which introduce the topic and discuss special issues, specific populations and settings, personal-professional reflections and practice implications, ending with a conclusion.
Hospice care in the UK
- Author:
- HOSPICE UK
- Publisher:
- Hospice UK
- Publication year:
- 2016
- Pagination:
- 24
- Place of publication:
- London
Drawing on an analysis of the hospice responses to the Minimum Data Set (MDS) for Specialist Palliative Care Services and Hospice UK data collected for Scotland, this report provides an overview of scope, challenges and opportunities for hospice care in the UK. It provides key statistics on hospice care for 2014-15, including numbers of people accessing support from hospices. The report also details the percentage of people receiving support in different hospice settings, including: community and hospice at home; inpatient hospice care; day hospice and outpatient clinics; bereavement care; and supporting care in other settings. The report focuses on hospices for adults, but also includes a summary of hospice care for babies, children and young people in the UK. It concludes by outlining the wider changes needed to ensure that hospice care is available to everyone at the end of life. These include developing community-based responses, placing death and dying at the centre of public health strategies, better support for families and carers, improved knowledge about people's needs , and long-term planning and reliable funding. (Edited publisher abstract)
End of life care: fifth report of session 2014-15
- Author:
- GREAT BRITAIN. Parliament. House of Commons. Health Committee
- Publisher:
- TSO
- Publication year:
- 2015
- Pagination:
- 53
- Place of publication:
- London
Looks at the state of end of life care, highlighting great variation in quality and practice across both acute and community settings. The report argues that round-the-clock access to specialist palliative care in acute and community settings would greatly improve the way that people with life-limiting conditions and their families and carers are treated, especially if there were opportunities to share their expertise with other clinicians. The report sets out a number of action points for improvement, and in particular recommends that social care should be free at the end of life. The report suggests that all staff who provide palliative and end of life care to people with life limiting conditions should receive training in advance care planning, including the different models and forms that are available and their legal status. It also calls on the government to provide free social care at the end of life to ensure that no one who would like to die at home dies in hospital for want of a social care package of support. In addition, the report recommends: a senior named person in each NHS Trust to be given responsibility for monitoring how end of life care is being delivered within their organisation; sustainable, long term funding for the hospice sector; universal access to bereavement support for families; and further research into measuring the quality of end of life care and the priorities that matter most to people with terminal illnesses, their families and carers. (Edited publisher abstract)
End of life care: why supporting family carers is vital
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2014
- Pagination:
- 10 minutes 46 seconds
- Place of publication:
- London
This film looks at the family support service for the families and carers of people who are at the end of their lives at Leicestershire and Rutland Hospice. Social workers work with other staff members to identify families who are in need of support. They can offer a sitting service to enable carers to have some time away from their caring responsibilities and bereavement support and counselling to those who have lost a loved one. In the film Benita, who looks after her mother, talks about the support she receives from a regular sitter. Trevor, a bereaved man, explains how he was initially reluctant to have counselling but came to find it helpful and supportive in dealing with his grief. This film was previously available under the title 'End of life care: supporting the carers', revised in 2014.
Draft national framework for the delivery of bereavement care in Wales
- Author:
- WALES. Welsh Government
- Publisher:
- Wales. Welsh Government
- Publication year:
- 2021
- Pagination:
- 37
- Place of publication:
- Cardiff
This consultation seeks views on the Draft National Framework for the Delivery of Bereavement Services in Wales. The framework seeks to set out how to respond to those who are facing, or have experienced, a bereavement in Wales. Bereavement is experienced in relation to the death of a person wherever and whenever it happens. For the purpose of this framework it includes pre-bereavement (a grief reaction before someone dies, sometimes referred to as anticipatory grief) and includes bereavement experience of anyone, whatever their relationship to the person who dies. It includes bereavement due to the death of any person, including those who die before birth. Aimed to those involved and providing bereavement services, the framework includes: implementation of the bereavement standards; implementation of clear referral pathways; introduction of quality standards for the design and delivery of national training programmes. The consultation closes on 17 May 2021. (Edited publisher abstract)
Bibliotherapy and bereavement: harnessing the power of reading to enhance family coping in pediatric palliative care
- Authors:
- RUSCH Rachel, et al
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 16(2), 2020, pp.85-98.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
Bibliotherapy is a therapeutic intervention that could potentially be utilized by pediatric palliative care social workers to aid in providing individualized support and adaptive coping techniques through end-of-life and bereavement. Multiple modalities of implementing bibliotherapy are considered, including applications in individual and group counseling. An institutionally supported bibliotherapy program that aims to provide therapeutic and recreational texts for patients, families and clinicians is described. Suggested guidelines and book titles for use in practice with bereaved siblings and families are provided alongside targeted description for use in clinical practice. (Edited publisher abstract)
Beyond the questions: shared experiences of palliative and end of life care
- Author:
- NELSON Annmarie
- Publisher:
- Marie Curie Palliative Care Research Centre
- Publication year:
- 2016
- Pagination:
- 26
- Place of publication:
- Cardiff
This report presents a supplementary analysis of a public survey carried out by the Palliative and end of life care Priority Setting Partnership (PeolcPSP) with the James Lind Alliance (JLA) in 2013-14. The report presents and discusses themes that cover: communication; support, including bereavement, financial support, supporting families and supporting staff; access to services; co-ordination and distribution of services; out of hours and emergency support; managing symptoms and medication; understanding dying; and perceptions of palliative care. The findings reveal respondents’ frustrations with lack of care and treatment, as well as with a lack of communication and understanding around death and dying. The report calls for further investment on service provision at the end of life, including alternative service models to address the priorities for care that patients and families find most important. (Edited publisher abstract)
Government response to the House of Commons Health Select Committee report on end of life care
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2015
- Pagination:
- 18
- Place of publication:
- London
The government’s response to the Health Select Committee’s report on end of life care sets out what has been done recently to improve end of life care, including: the 5 priorities for the care of the dying person; the Care Quality Commission’s inspection regime; and publication of the choice review and ambitions for palliative and end of life care. The response addresses the following areas: beyond the Liverpool Care Pathway; access to palliative and end of life care; competence of the workforce; advance care planning; Cardiopulmonary Resuscitation (DNACPR) Orders; community resourcing; free social care at the end of life; funding; bereavement support; measuring quality of care; research into palliative and end of life care; and leadership. (Edited publisher abstract)
‘But I do believe you've got to accept that that's what life's about’: older adults living in New Zealand talk about their experiences of loss and bereavement support
- Authors:
- BELLAMY Gary, et al
- Journal article citation:
- Health and Social Care in the Community, 22(1), 2014, pp.96-103.
- Publisher:
- Wiley
Older people's views, experiences and sources of bereavement support were explored following the death of a spouse, family member or other significant individual. Telephone interviews were conducted with 28 bereaved older adults recruited from the Brief Risk Identification Geriatric Health Tool trial participants in three geographically diverse District Health Boards in New Zealand. Analysis adhered to the principles of grounded theory and followed the National Centre for Social Research ‘Framework’ approach. Findings indicate that family and friends play a fundamental role supporting older bereaved adults, both emotionally and practically. Existing community-based organisations were identified as an important source of support following bereavement. Despite the emotional, financial and practical challenges associated with bereavement, the majority of participants questioned the role of, need for and value of formal bereavement support services. Instead, study participants cited a combination of being older and previous life experiences as factors that had enabled them to cope with these largely ‘expected’ events. Moreover, they demonstrated considerable resilience in managing the emotional and practical changes associated with loss and bereavement.The paper highlights the value of adopting a public health-based approach as a way of optimising bereavement support via the use of existing community organisations previously known to older people. (Edited publisher abstract)
End of life care: supporting the carers
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2012
- Place of publication:
- London
This film looks at the family support service for the families and carers of people who are at the end of their lives at Leicestershire and Rutland Hospice. Social workers work with other staff members to identify families who are in need of support. They can offer a sitting service to enable carers to have some time away from their caring responsibilities and bereavement support and counselling to those who have lost a loved one. In the film Benita, who looks after her mother, talks about the support she receives from a regular sitter. Trevor, a bereaved man, explains how he was initially reluctant to have counselling but came to find it helpful and supportive in dealing with his grief. This film has now been revised and is available under the new title 'End of life care: why supporting family carers is vital'.