Search results for ‘Subject term:"end of life care"’ Sort:
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Using evidence for transformation change for homecare workers and service users in palliative and end of life care
- Authors:
- IRISS, NHS EDUCATION FOR SCOTLAND
- Publisher:
- IRISS
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- Glasgow
Brings together evidence from research, practice, and improvement from three linked reports from the NHS Education for Scotland Networked Evidence Search and Summary Service on what works in supporting care at home staff providing palliative and end of life care. It reports that the role of care at home staff is emotionally and practically demanding, yet there is often little or no training or support. The report highlights what staff need to support them and the actions that need to be put in place. These include suggestions to improve staff access to information; learning and development needs; and service improvement in the areas of multi-agency communication and bereavement support. (Edited publisher abstract)
The role of care homes in end of life care. Briefing 2: place and cause of death for permanent and temporary residents of care homes
- Author:
- NATIONAL END OF LIFE CARE INTELLIGENCE NETWORK
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 14
- Place of publication:
- London
This briefing paper describes recent trends in the demographics of people who receive end of life care in a care home, presenting data on the place and cause of death for permanent and temporary residents of care homes. It also provides analyses of variation by geographical region. It reports that nearly two thirds (62 per cent) of people who died in care homes have dementia or Alzheimer’s disease as an underlying or contributory cause of death. It is the second of two briefings produced by National End of Life Care Intelligence Network to describe the important role that care homes play in the care of people at the end of life. (Edited publisher abstract)
Palliative and end of life care delivery plan
- Author:
- NHS WALES
- Publisher:
- Welsh Government
- Publication year:
- 2017
- Pagination:
- 27
- Place of publication:
- Cardiff
A three year plan outlining how NHS Wales intend to improve palliative and end of life care services for patients and their families though 2017-2020. The plan covers all aspects of palliative and end of life care, delivered by both primary and secondary care and the voluntary sector. It also details specific priorities across the themes of: supporting living and dying well; detecting and identifying patients early; delivering fast effective care; reducing the distress of terminal illness for patients and their families; improving information; targeting research; and education and training. (Edited publisher abstract)
Delivering high quality end of life care for people who have a learning disability: resources and tips for commissioners, service providers and health and social care staff
- Authors:
- NHS ENGLAND, PALLIATIVE CARE FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- NHS England
- Publication year:
- 2017
- Pagination:
- 57
- Place of publication:
- Redditch
This ‘top tips’ guide aims to support commissioners, providers and clinicians to reduce inequalities in palliative and end of life for people with a learning disability, focusing on ‘The Ambitions for Palliative and End of Life Care’. These six ambitions, which provide a framework for national and local health and care system leaders to take action to improve palliative and end of life care, are: Each person is seen as an individual; Each person gets fair access to care; Maximising comfort and wellbeing; Care is coordinated; All staff are prepared to care; Each community is prepared to help. This document sets how to achieve each ambition, signposts relevant tools and resources and provides good practice examples. (Edited publisher abstract)
Good decision making: what you need to know about the Mental Capacity Act and end of life care
- Authors:
- NATIONAL COUNCIL FOR PALLIATIVE CARE, DYING MATTERS COALITION
- Publishers:
- National Council for Palliative Care, Dying Matters Coalition
- Publication year:
- 2017
- Pagination:
- 20
- Place of publication:
- London
- Edition:
- 2nd ed.
This booklet provides information to help people approaching the end of life, their families and carers, and health and social care staff to understand the Mental Capacity Act (MCA) and how it affects decision-making at the end of life. It explains how people can use the MCA to express and protect their wishes about their future care and what it means for carers. It includes information on assessing a person’s capacity to make a decisions, making a best interests decisions, Independent Mental Capacity Advocates, and Deprivation of Liberty Safeguards (DOLS). (Edited publisher abstract)
The will-to-live scale: development, validation, and significance for elderly people
- Author:
- CARMEL Sara
- Journal article citation:
- Aging and Mental Health, 21(3), 2017, pp.289-296.
- Publisher:
- Taylor and Francis
Objectives: In old age, the will-to-live (WTL) is one of the most important indicators of subjective well-being (SWB). However, few studies to date have focused on WTL. In these studies, WTL has mainly been evaluated via indirect questions concerning factors that may influence peoples’ WTL, or by measures directed to patients with specific diseases. The current study describes the development and psychometric properties of a new WTL scale. Method: The five-item WTL scale was developed on the basis of previous qualitative and quantitative research, and was evaluated in a longitudinal study of a random sample of 868 adults, aged 75+. Results: Confirmatory factor analytic (CFA) models were computed showing that each of the five items contributed significantly to measurement of a single WTL latent factor. Goodness-of-fit statistics were in ideal parameters for these CFA models at each point of data collection. Moreover, temporal analyses indicated that the relative contribution to measurement for each item was equivalent across time, attesting to reliability of measurement and the construct validity of WTL measurement. Concurrent validity was supported by significant positive correlations between WTL and life satisfaction, happiness, self-rated health, morale, self-rated aging, and, as expected, by inverse associations of WTL with depression and loneliness. Conclusion: The results of these analyses indicate that the WTL scale is a valid and reliable instrument. Considering the importance of the WTL concept in late life, and the psychometric properties of the WTL scale, the authors recommend it for use in research and practice related to older adults’ SWB and end-of-life care. (Edited publisher abstract)
How social care staff can support palliative and end of life care for people with learning disabilities
- Author:
- PUBLIC HEALTH ENGLAND
- Publisher:
- Public Health England
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- London
This factsheet provides information on how social care staff can support palliative and end of life care for people with learning disabilities. It focuses on what staff can do to improve the experience of people they support when they are coming to the end of their lives in relation to the six ambitions of the Ambitions for palliative and end of life care framework. It is the 12th in a series of factsheets which show how social care staff can support the health needs of people with learning disabilities. The leaflet also includes a link to a supporting slide set that can be used by social care staff as a training resource. (Edited publisher abstract)
Care of dying adults in the last days of life (QS144)
- Author:
- NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE
- Publisher:
- National Institute for Health and Care Excellence
- Publication year:
- 2017
- Pagination:
- 22
- Place of publication:
- London
This quality standard covers the clinical care of adults (aged 18 and over) who are dying, during the last two to three days of life. It describes high-quality care in priority areas for improvement. The standard comprises the following quality statements: adults who have signs and symptoms that suggest they may be in the last days of life are monitored for further changes to help determine if they are nearing death, stabilising or recovering; adults in the last days of life, and the people important to them, are given opportunities to discuss, develop and review an individualised care plan; adults in the last days of life who are likely to need symptom control are prescribed anticipatory medicines with individualised indications for use, dosage and route of administration; and adults in the last days of life have their hydration status assessed daily, and have a discussion about the risks and benefits of hydration options. (Edited publisher abstract)
What works to support care at home staff providing palliative and end of life care? Evidence from improvement knowledge
- Author:
- INGLIS Shelia
- Editor:
- MUIRHEAD Stuart
- Publisher:
- IRISS
- Publication year:
- 2017
- Pagination:
- 14
- Place of publication:
- Glasgow
This evidence summary aimed to explore the skills and the support required by social care and care at home staff to provide palliative and end of life care. It aimed to retrieve examples of improvement, recommendations for service improvement, evaluation reports and practice development. The summary identifies key findings from three reports identified. They cover the knowledge, skills and personal qualities needed by care at home workers; areas in which care at home workers felt inadequately prepared for the role; and different ways of providing support (including information and knowledge support, training, and improvement opportunities). It is one of three linked evidence summaries from the NHS Education for Scotland Networked Evidence Search and Summary Service, which combine evidence from research, practice and improvement to inform an action plan City of Edinburgh Council. (Edited publisher abstract)
What works to support care at home staff providing palliative and end of life care? Evidence from published research
- Author:
- INGLIS Shelia
- Editor:
- MUIRHEAD Stuart
- Publisher:
- IRISS
- Publication year:
- 2017
- Pagination:
- 15
- Place of publication:
- Glasgow
This report examines the evidence of published research to explore what works to support care at home staff in providing palliative and end of life care. Specifically, it investigates the capabilities and support social care and care at home staff need in providing palliative and end of life care; and the solutions that can help to build these capabilities and provide this support. The review identified five relevant published research studies. Key findings included that care at home staff need the capabilities to provide personal care; emotional and social support; care for the dying; respite care for family members; and domestic support. The review also identifies support and solutions in the areas of: information and knowledge support, training, and improvement opportunities. Summaries of the research identified are included. (Edited publisher abstract)