Search results for ‘Subject term:"end of life care"’ Sort:
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Consultation report: feedback on the quality of end of life care
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2016
- Pagination:
- 26
- Place of publication:
- London
This is NHS England’s report of a public consultation undertaken on the collection of feedback relating to the quality of end of life care through the VOICES-SF survey (Views Of Informal Carers’ Evaluation of Service – Short Form). The survey measures of end of life care provision, using a sample extracted from the database held by The Office of National Statistics by selecting from adult deaths registered in the months January to April. This document sets out the findings of the consultation and how they are likely to contribute to any potential changes to the format and structure of the survey in the future. Specifically, the consultation looked at: how the survey findings are reported; how the survey is currently used; who takes part in the survey; how frequently the survey is carried out; and how quickly the survey data is published. Respondents indicated that VOICES-SF survey findings would be more helpful if the sample size were made large enough to report at a local level; asking for the views of a range of people, and not just the bereaved, would provide different perspectives and give richer sources of insight; and shortening the time lapse between the point of care and the publication of results would enable them to confidently make decisions based on up-to-date and relevant data. (Edited publisher abstract)
Draft national framework for the delivery of bereavement care in Wales
- Author:
- WALES. Welsh Government
- Publisher:
- Wales. Welsh Government
- Publication year:
- 2021
- Pagination:
- 37
- Place of publication:
- Cardiff
This consultation seeks views on the Draft National Framework for the Delivery of Bereavement Services in Wales. The framework seeks to set out how to respond to those who are facing, or have experienced, a bereavement in Wales. Bereavement is experienced in relation to the death of a person wherever and whenever it happens. For the purpose of this framework it includes pre-bereavement (a grief reaction before someone dies, sometimes referred to as anticipatory grief) and includes bereavement experience of anyone, whatever their relationship to the person who dies. It includes bereavement due to the death of any person, including those who die before birth. Aimed to those involved and providing bereavement services, the framework includes: implementation of the bereavement standards; implementation of clear referral pathways; introduction of quality standards for the design and delivery of national training programmes. The consultation closes on 17 May 2021. (Edited publisher abstract)
What's important to me: a review of choice in end of life care. Annex A: summary of findings from public engagement on the National Review of Choice in End of Life Care
- Author:
- CHOICE IN END OF LIFE PROGRAMME BOARD
- Publisher:
- Choice in End of Life Care Programme Board
- Publication year:
- 2015
- Pagination:
- 28
- Place of publication:
- London
Sets out the findings from a national engagement exercise which took place to support the Review of Choice in End of Life Care, commissioned by the Government in July 2014. The consultation received over 1,000 responses from members of the public and professionals and informs the Review's report 'What's important to me: a review of choice in end of life care.' The consultation asked people the kind of choices people should be able to make at end of life; examples where people have been able to make choices; and how could the impact of a 'national choice offer' be evaluated to see if it improved people's experience of care at the end of life. Key themes emerging from the consultation were that people wanted to: be cared for and die in their place of choice; involved in and have control over decisions about their care; want access to high quality care given by well trained staff; access to the right services when needed; and have support for physical, emotional, social and spiritual needs. Suggestions on what could be measured to assess impact included the National Survey of Bereaved People, care planning, access to services, quality of care and involvement in care. (Original abstract)
A national review of choice in end of life care: consultation paper and response form
- Author:
- CHOICE REVIEW
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2014
- Pagination:
- 7
- Place of publication:
- London
A consultation document seeking views on the choices that are important to people at the end of life, what they would mean in practice and whether and how they could be made a reality. Almost half a million people die in England each year. However, significant numbers of people do not currently have proper opportunities for their choices about how, when and where they receive end of life care to be identified, discussed or met. This consultation is part of a Government review of choices in end of life care – to help shape its national choice offer. The review is being undertaken by an independent programme board, chaired by the Chief Executive of the National Council for Palliative Care. The information gathered will outline the kinds of choices that people would like to be able to make at the end of life and information about the funding, systems and processes that would be needed to enable choices to be acted upon. The review focuses on end of life care for adults aged 18 and over, and within the current legal framework. Therefore, it does not focus on assisted dying or anything that would involve changes to mental capacity legislation. The consultation period closes on 30 September 2014. (Edited publisher abstract)
Spirituality and religion in end-of-life Care ethics: the challenge of interfaith and cross-generational matters
- Authors:
- NELSON-BECKER Holly, et al
- Journal article citation:
- British Journal of Social Work, 45(1), 2015, pp.104-119.
- Publisher:
- Oxford University Press
The complexity of illness and care needs at the end of life often include religious and spiritual issues. Religion and spirituality can be important coping mechanisms for meeting these challenges. However, although many people may want spirituality incorporated as a component of their care, spiritual needs are not always recognised or supported by the existing social care and medical systems. To address the need for more information on these issues, the authors present two social work cases that draw from our clinical experiences among patients with life-limiting disease conditions. Through these cases highlighting interfaith and cross-generational family issues, different ways social workers may become involved in their interactions with patients' spiritual or religious concerns at the end of life are identified. The authors conclude with suggestions for providing appropriate and culturally competent social and health care that promote ageing in place for persons with life-limiting illness conditions. (Edited publisher abstract)
Transforming your care: vision to action: a consultation document 9 October 2012-15 January 2013
- Author:
- NORTHERN IRELAND. Health and Social Care Board
- Publisher:
- Northern Ireland. Health and Social Care Board
- Publication year:
- 2012
- Pagination:
- 77
- Place of publication:
- Belfast
This document summarises the key proposals for change in the context facing health and social care (HSC) in Northern Ireland and forms the basis for a public consultation on the future of care provision. The report provides details on why there is a compelling need for change and outlines proposals in response to the ‘Review of Health and Social Care in Northern Ireland, Transforming Your Care’ (2011). The discussion of proposals, what they mean and what significant local implications they may have is structured around a set of thematic areas, including population health and wellbeing, delivering services at home and in the community (integrated care partnerships), older people, long term conditions, palliative and end of life care, mental health, learning disability, physical disability and sensory impairment, family and child care, maternity and child health, acute care in hospitals, and the links with the Republic of Ireland and Great Britain. The document also discusses what changes are needed to support the implementation of these proposals, the possible implications for the workforce and organisation, for the finance, for technology advances. (Edited publisher abstract)